Cure for Peeling Lips! | Daniel Miller's Blog

Cure for Peeling Lips!

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Hi there.

So. You came here for an answer, right? Or maybe you don’t even know what this site is about. Anyways, I hope you leave feeling like you have just learned something worth knowing. There are a lot of people dealing with what I’m about to discuss, and they painfully hide it each and everyday–spinning on an endless carousel. As my story begins, the past couple years no one had known that anything was wrong with me, except for a few of my closest friends who even still knew little about the magnitude of my condition. The following video is a documentary I created for people dealing with the same lip condition that I have been dealing with for the past four years. It has been a great struggle, and by the determination and constant reminder of never having to look at chapstick again, I am making it through! What I am talking about is a condition that I am going to call peeling lips. Its real name is Exfoliative Cheilitis. However most doctors and dermatologists seem to be unaware of this name. Every doctor I visited never once mentioned this name to me; and they usually prescribe some horrible ointment that does nothing but make it worse. As it stands, most people would never let their lips get like I did to cure them mainly because the embarrassment is so strong that unless they are one-hundred percent sure it’s going to work they see no use in trying–which is why so many people dealing with this believe it’s incurable. I’m here to give you that one-hundred percent. So what am I talking about? This is a condition in which the lips continue to grow skin, the skin dies, and then peels off–this happens daily for some people. That was the condition for me. Whole layers of skin would turn white and dead looking and then just rub off every morning when I took a shower, and it would build up during the day, it was embarrassing and a constant quick where’s a mirror, did she just see me do that, do I have my chapstick with me?, what about my tube of ointment–oh no now I won’t make it through work! It was horrible! So here is my answer to those crusty, peeling, flaking, chapped, cracking, embarrassing lips. Keep in mind this condition is not a disease. There is no allergic reaction to anything. There is no vitamin deficiency going on. You do not have a virus. You didn’t catch an STD. Put simply, the lip skin just heals differently than the rest of the skin, and if you continue to peel off that seemingly dead skin you are only making it worse. Take a look at my documentary below, and then continue on to watch me battle through and beat peeling lips for good. Oh yeah, and stop wasting your money on those dermatologist appointments, they won’t get you anywhere with this condition. (Legal stuff I am required to say to not get my blog taken down: I am not a doctor, so make sure you do what your doctor says! Also take this advise at your own risk, and, since I haven’t gotten a “degree” in medicine, I can’t possibly know anything!)

Update Feb 7, 2013: The text information is outdated, but I have left it for reference as it could possibly help some people out there struggling with this condition! I am finally cured, and if you want to figure out how I cured myself, I recommend watching the next four videos from the bottom upwards. There is also a ton of reference material with pictures and videos located down below, which I strongly encourage anyone having trouble with this to take a look at and see my progress over two years. This is a VERY SLOW road to travel down, but hopefully with my help and the help of others’ you can become cured as quickly as possible. Thank you so much everyone for all of your help and support, because I couldn’t have accomplished this without you! If I ever regress or get worse and develop this condition again, I promise to update you guys! I love you all! -Daniel

Finally Cured!!!


1.5 Year Update!

1 Year Update!

Introduction (Outdated Info)

This page is extremely long, and some of you might have already been here before and need to jump to different sections, so I’ve carefully laid out each section to make it easier to jump to different parts of the page:

First

I suggest you subscribe to my YouTube, and follow with me as I battle this and become brand-new again. Plus it’ll help me support this site as well, YouTube is my “2nd Job” and any subscribers I get seriously helps :) …(did I mention subscribing is free?) Also feel free to tweet me if you have any questions or concerns. I want to help you through this too…I know it’s not easy, and I’m here to support you. I got yo back! We also have a group on Facebook for everyone going through this, so if you would like to join the group you must add me as a friend and send me a message asking to join the group. (it’s a private group so you must be a friend of one of the members to join). I strongly suggest joining as we have a lot of discussions that might help as well as motivate you on your journey!






Now, Back to Basics…

Okay, so I already know most of you probably wondering what peeling lips is? Like I said earlier it’s not a disease or anything, so how in the world does someone get it?! It’s actually quite simple–and it all starts with trauma, in my personal case, which is what I’ll be discussing on this page–chapstick. First I’ll go into an explanation of using eye drops as most people may be more familiar with this scenario. Whenever you use eye drops, this causes your body to naturally stop creating its own tears since it doesn’t have to. Once you quit using eye drops your eyes will be extremely dry, thus causing you to reach for those eye drops again, and until you actually quit using them completely your body will never start making tears on its own again–same thing here. Recovery is slow, but eventually your eyes will make the tears needed without an external aid. My lips stopped creating the natural barrier and lubricant that is on a normal persons lips, because I kept using external products everyday. So, based on some research I have done, this is the answer to the why-and-how, on the cellular level, peeling lips continue to occur (for those of you knowledge seekers, remember this is all my opinion–I welcome other ideas as well in the comment section below). First quote: “Skin cells normally are constantly being formed deep beneath the surface of the skin. Over about a month, these cells die and flake off, making way for new skin cells. If you have psoriasis, skin cell turnover can happen in a matter of days; layers of skin build up, forming a white, flaky crust.” So what this is saying is from the cells “birth to death” the timeframe is about one month. It then goes on that this can be sped up to a mere few days, but doesn’t explain why. However, what is next will explain WHY it starts to happen in a matter of days. One more quote: “Because the lips are an area of low-intensity trauma (similar to knees and elbows), Koebnerization leading to psoriasis on lips can easily occur when lips become chapped, sunburned, or cracked — or even when a psoriasis patient eats a mild irritant or allergen.” LipsLOW INTENSITY TRAUMA…KEY WORD LOW INTENSITY. And what is EVERY SINGLE person struggling with peeling lips doing day and night? Traumatizing their lips. “How? I’m just taking the dead skin off…” No…you’re not just taking dead skin off, what you’re doing is making a cell, which wouldn’t normally be exposed to the elements of the air, which has no protective coating on it yet, which is still a “baby” in its cycle and setting it as the very top layer, something which in a normal persons lip wouldn’t be happening for at least two to three weeks. Okay…so Now it’s just have to heal right? Actually no…what happens then is when a cell is traumatized it starts the “healing process,” which if you haven’t noticed the cells cycle through much faster while trying to rebuild what was lost. Ever scraped your knee? What happened? The cells quickly built up and created a scab. Ever picked a scab? It starts the process over again. Same thing here except the lips don’t have the ability to scab since they are a mucous membrane (what looks like a scab in my pictures is actually just dried skin cells that are still connected to the underlying tissue and if removed also take the living tissue with it even if it doesn’t hurt). In my opinion these quickly-created cells are more of a fundamental structure, like the frame of a house. This is to get the framework in, and it will finish the inside later so to speak. So, you’re tearing down the framework every single day, thus causing further trauma and eventually followed by several complete layers of skin that are completely missing. What you need to do is STOP PEELING YOUR LIPS.  Eat strong, healthy foods (which I’ll get into later), exercise (try fat-burning yoga at home if you can’t get to a gym)…get yourself back on track. Don’t do some three times a day gloss then brush your lips in the evening kind of thing..that is the equivalent to putting a tarp over a broken down car, looking at the tarp a few days later, and since the tarp looks good as new, the car must be too! Then taking the tarp off and begin to drive it thinking it’s fixed. Guess what, it’s not. Don’t let the embarrassment of being in front of other people while your healing yourself make you live like this forever, a few months of embarrassment is nothing, and I promise you people will forget you ever had it. You won’t, but they will. Remember the cell cycle from birth to death is over a month, and we are going to need several cycles to completely rebuild what we’ve removed over the past several years, so I’m not promising quick results, I’m promising the result. But it will mean several months of unattractive lips. I am going to invite you to take a journey with me, and read my story.

My Story – the Beginning…

I hope you enjoyed the video, and, if any of you like me might be going through this very same thing and feel like the world is about to end, I really hope I may be of some help and confidence that the world is still spinning! Please feel free to share it with your friends, as getting people to know about this condition is the first step before actually showing someone you have it. Let me be your first step. I wanted to start with some background information about myself. When I was young my lips would become dry very easily, especially during the winter time, and they would crack and bleed. This was the beginning–chapstick. I had to use it a lot during the winter. As time went on and I got older into my teen years I started using it religiously several times a day. My lips never peeled and looked perfectly normal–I just needed chapstick all of the time. I don’t know what would have happened to them had I stopped using chapstick at that point, but I can only suggest anyone who is at that point to discontinue use immediately. In 2006 when I was 18 I moved to Florida after graduating high school. For the next year or two chapstick was my best friend, it was always with me..right by my side. My lips still appeared normal. No problems. However one day in 2008 I went to the dentist and they were working on my mouth and had to stretch my lips a bit more than normal, this caused them to become very dry…and is the only thing I can relate to the very start of my peeling lip condition. I started using floss by hand where you wrap it around your fingers and I stretched my lips a lot while doing that as well. At some point early that year, which is most likely only coincidence with the dentist event as I believe this would have happened either way, small parts of my lips started getting irritated and red. It wasn’t a lot so I thought nothing of it and put chapstick on it. Eventually the persistent irritation started causing my lips to swell and start the healing process. This caused them to die faster as well, which is where the cells started shedding. I wiped the dead cells off thinking nothing of it as it wasn’t on much of my lips. As I did this it caused the healthy cells nearby to be wiped off as well and become irritated–thus starting a new cycle and healing process. This continued for a while and consistently irritated more and more parts of my lip until nearly all of it was covered. Each morning I would wake up, take a shower, rub the skin off which would be an entire layer at times…and then put chapstick or some other skin lubricant on it. After I would get out of the shower my lips would be red and mildly swollen. They never really hurt or burned though. It literally looked to me as if I were missing layers of skin…which I clearly was; however, to everyone else they appeared normal most of the time. Over four-years later and after countless dermatologist appointments, I was still stuck here getting worse and worse each day. Finally the dermatologist said something that actually made sense, which was based around “well the only time I’ve ever seen this is with cases where the person constantly picks a scab…and it never heals. They tell me they don’t pick at it, but it’s clear they do, they do it without even knowing it–they’ll sit there and pick it while they’re telling me they don’t pick it.” This sparked a thought in my head…maybe the skin I’m taking off isn’t dead? I began to think on it for a while and decided that I really do pick at my lips, every day in the shower! I hadn’t considered it picking because I was only taking the “dead skin” off. I started my first journey at the end of October in 2011. The doctor said it was okay to get wet, just not rub it off so each day I would shower and get my lips soaking wet and then head to work after they dried. The reason I stopped my first attempt was because I was going on two vacations throughout January and March and I did not want to have unsightly lips during my vacations, which you can read about on my blog at the top of this page if you wish.

Starting my Attempt at the Cure

So I started vlogging on my fifth week during my second attempt. There wasn’t really much point to record the beginning, which I wish I would have at least recorded the very first week where I went from normal-looking lips to extreme growth. But oh well, it just builds up. I’m going to post my vlogs for you to watch, which I talk about my thoughts and theories already discussed earlier. One video even has me taking the top layer of dead skin off in them so it’s definitely going to be a little bit of a shocker video!

Progress Pictures and Blog Videos

 

-Saturday, March 3rd, 2012-

Now it’s time for some progress pictures, and, I apologize, these started around the same time as the videos unfortunately…but it’ still a great reference to see how the skin grows. I’ll post a picture of how normal my lips looked on day one. Click any image for a full-sized picture. If you hold the CTRL button while clicking it will open up in a new tab so you don’t have to press the back button to continue reading. There is also a Button on the bottom of each week to show more pictures and videos, these will be very helpful to a lot of people, so I seriously suggest reading each “Continue Reading” page! There is a lot of detailed information that is important…I just couldn’t put it on all this page because it was becoming insanely long. Notice: If you’re on a mobile browser you won’t be able to see the following section, so please click here to see my progress pictures and videos. Additionally you can also click that link if you’re on a regular computer as well if you’d like to see each week all stuffed on one page. The password is lips.

Interested in seeing a full year of
.
weekly Progress Pictures?
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Note they are not pleasant to see.
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Click here. Note each page is password protected.
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The password is lips.

 

UPDATE: 6-5-13

I am mostly just using aquaphor at the moment. And only use the steroid cream like once a week if that. My lips were starting to build up the past week, but I haven’t been out in the sun as much as it’s been cloudy and I’ve been really busy, but I was out for several hours yesterday and today my lips look amazing! So just keep on truckin guys, we’ll get there someday :) P.S. if you want to see what my lips look like on a day to day basis I make YouTube videos very often now, feel free to check them out…I don’t really talk about EC in them anymore though.  www.youtube.com/danielxmiller  

6-21-13 Final update for a while

This is what is really working for me, and my lips appear to be slowly healing! I’m getting the lines back on my lips so they are starting to turn normal on the outer parts. The inner parts I am still working with :) Watch the video for everything I am doing! (video is now located at the very top of this page)    …and soon to be healed completely! :)

Change Your Diet and Get Some Sleep!

This should be self-explanatory, but it really matters about what you eat. As what you eat contains all the nutrients your body is going to be using to heal your lips and keep you alive. You need to treat your body right. Since week 9 I have changed my diet considerably. I am eating a lot of raw and fresh foods. I eat peaches, grapes, bananas, kiwis, strawberries, spinach, cantaloupe, eggs, and practically anything else you can find in the natural section of your grocery store. I’ve also been eating lots of chicken too. Just make sure when you cook it you don’t cook it in grease, just either grill it in a pan or over a flame. I’m not the best dietician kind of guy, so this is going to be very long. Just stop eating processed foods, especially products with enriched flour or high fructose corn syrup. Just stick to the natural stuff. Do some research on raw organic diets and you should come up with some good recipes. And to add to this, make sure you are getting as much sleep as possible, sleeping is when the body heals, so the more you are sleeping, the more you are healing!          

Progress Galleries!

I created a forum for anyone who wishes to post their progress pictures. This will be motivation for you, me, and everyone else dealing with this…as well as show you progress that you may be unaware of. I hope some of you can find the courage to post pictures of your lips on there as I feel it is important. If you are uncomfortable with that, then just crop it out so only your lips show. It’s been a huge motivator for me and has really helped!

Click here to view the galleries!

 

Click here for the regular forum!

ATTN: To see the NEWEST comments first press the DISCUSSION button and select: Newest!

  • http://www.facebook.com/profile.php?id=672524047 Timmy Wakeland

    first of all, i wanna say i LOVE you. second thank you for posting this, i didnt freak out like you said. haha. this is kinda a first for me to see this kinda stuff…and im kinda writing this when im fixin to leave for work. you are one amazing guy, and this really didnt bother me at all…my parents brought me up to respect others no matter what, in other words put me in THEIR shoes….i have spinal bifada…its just mine is closed spine so im not in a wheel chair or anything…but i never played sports,,, i was told if i land on my back just right id die instantly…i never could have surgery because i could have been paralyzed….so mom said no. anyways i hope you see what im getting at…you worried all this time about me seeing this, and i STILL think you are amazing, i STILL wanna meet you, and i STILL LOVE you.and all the friends that see this should feel the same or they r not ur friend. i appreciate the trust you had in me to let me see this. and dont forget ive said it twice…..I LOVE YOU DANIEL. <3

    • http://www.danielxmiller.com Daniel Miller

      Thanks Timmy :) it means a lot! Love you too!

  • http://www.facebook.com/profile.php?id=672524047 Timmy Wakeland

    this is so interesting to see and read about…but at the same time hate that you have to go thru this ….

    • http://www.danielxmiller.com Daniel Miller

      I know…and there isn’t even a name for it! My goal is to just help these countless other people going through the same thing!…it’s very difficult…

  • http://www.facebook.com/profile.php?id=672524047 Timmy Wakeland

    i love that you trust me enough to be on the journey with you while you are trying to find a cure and reason for all this…we may live 8 hrs away but im always here for you ill try my best to help you try and make it thru it…love you <3

  • Teresa

    Daniel you are a wonderful person and I love you so much. I am so proud of you for all that you have accomplished and how you step out to help others. I’m sorry you are going through this, but you know I am here for you every step of the way.  Being your mom, it hurts me that you hurt, and I wish I had the answer.  You are such a strong person and have a kind heart. I’m sending you lots of love.  You are sending good out to the world and good will return back to you….Luv you bunches Dan!!

  • Tiggergp1

    Daniel babe you are such an awsome person I love you Unconditonally and remember babe I am always here for you no matter what. I LOVE YOU CUTIE <3

  • Jmbezares

    You’re very brave to share this with the world. I’m right there with you to know that if you help one person avoid letting it continue, or get on the road to healing..then you’ve done your part. =) You were meant to speak to the world.. you entertain and inform like few can. I look forward to seeing your face for many years and watching you dive into anything your heart wants to create. I send you lots of love and healing… remember to eat well!!! You are truly what you eat. #Millerfan

    • http://www.danielxmiller.com Daniel Miller

      I just wanted to say thank you so much for the comment you wrote…it really made me feel great, and the part about you are what you eat was
      so neat because yesterday I was doing a lot of research on peeling lips to see if
      there might be something else I can find, and one guy is stating about how
      everything has to do with what you eat and that I basically have to change my
      entire diet before I can start healing…so I’m going to try his techniques
      along with mine and see if that helps…I was literally eating every-single
      thing he said not too…lol.

      But your message made me feel so good…thank you!

  • Mike

    I really appreciate this website.  I have had Exfoliative Cheilitis for nearly 2 decades.  I’ve never seen a website that truly brings a visual understanding to people that don’t have the condition.  All the best on your cure attempt.

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much Mike! I greatly appreciate your comment! So sorry to hear you have been dealing with this for such a long time the past three years have been horrible enough for me, I couldn’t imagine living with it for 20! Hopefully this blog will help you as well… I also was wondering how you you came to my site? Just curious… :) thanks again for the comment!

      • Mike

        I made excheilitis.com a couple years back.  I saw your link posted on the website.    I’m a veteran when it comes to this condition and i’ve tried the leave alone approach before but was difficult to do with school, work, eating, smiling, talking etc.  I have been pondering for a long time another approach, which is a lip barrier. Like a “sock” for the lip. The leave alone method would be much easier if there were an actual barrier to prevent external aggravation to lips.  Micropore surgical tape is perfect for this. It is adhesive, can stick to damp skin, allows the skin to breath and is hypoallergenic.  I am going to try this, i will keep everyone updated.  I will buy large tape like this http://www.daynurserysupplies.com/Micropore_Tape_LARGE_p/acd3915.htm and cut it in the shape of my lips.

           You should join the exfoliative cheilitis facebook group if you haven’t already.  Here is the group’s creator website http://exfoliativecheilitis.blogspot.co.uk/, contact him and he’ll add you.

        • http://www.danielxmiller.com Daniel Miller

          Oh okay! Yes that sounds really exciting! Although I would personally be less embarassed doing what I’m doing now than using a tape over my lips. As it stands now, the dead skin on top provides the barrier needed. Only problem that results is the very inner skin of the lips at night, which actually seems to be healing slowly; so time will tell. I personally believe that once my outer lips are healed, the inner will follow.  I contacted him, thanks for letting me know about the group! I’ll be excited to show everyone my blog! I only wish I was finished so I had “real” proof it works! I do know this is the answer though. I only yesterday found out about the actual name “exfoliative cheilitis” so I will need to do some updating to my blog to recognize that! I can’t believe I searched for years and only yesterday found the real name for it! I had heard about some other cheilitis but it was just about the corners of the mouth and it wasn’t what I had. Keep me posted!

  • David

    Thanks for sharing Daniel, you are extremely brave. Like your mom said further down, you are sending good out to the world and good will come back to you. I have a added your blog as a link on my blog. Let’s get the information out there..

    Best of luck,

    /David
    http://exfoliativecheilitis.blogspot.com

  • Hockeystar

    Hi Dan,

    Thanks for being brave and raising awareness for EC as well as trying to find a cure. One question I have is how do you brush or clean your teeth?

    Thanks

    • http://www.danielxmiller.com Daniel Miller

      Hey hockeystar! Actually in my first video I state that I am not really brushing my teeth like normal. I have a Phillips Sonicare toothbrush, it’s electronic… What I do is just put the brush with as little water and no tooth paste on my teeth without stretching my lips as much as possible . And keep anything that builds up on my tongue and when I spit make sure it slides off so it doesn’t touch your lips. I don’t have any bad breath issues.

  • wowoo

    Great site man this helps a lot I think about suicide everyday and you are giving me hope. We see the world different than everybody else and if we cure oour lips we will appreciate life more like the little things eating out with friends walking out side with your head up. Keep us posted brother and if it dont work keep trying

    • http://www.danielxmiller.com Daniel Miller

      Hey there…sorry to hear that it’s bringing you down so much…I know it’s one of the hardest things in life to deal with! But I try to be as positive as I can about it….just think about things like I could be worse off…however I know this will work eventually, just not knowing how long is the difficult part! You’ll make it through! We are here for each other! Glad I could give you some hope!

    • uradumbass

      U think about suicide because ur lips peel???? Wtf

      • http://www.danielxmiller.com Daniel Miller

        This is very difficult to deal with…and being scared to look at someone in the eye, or not being able to be romatically involved with someone because of this is emotionally destroying. Having that constantly on your mind can bring so much pain into your life that you feel it can be the only escape. My goal here is to provide the escape we are all looking for, and to be able to have and live a normal life again.

      • Lips4Free

        You know in our society it’s better to avoid some problems rather than others and when you see the lips condition like Daniel’s it is definitily impossible to live the way you want, overall when this happens at the prime of life. It simply breaks you down and it is so disheartening to see that medicine is just incompetent about this, so alone with a crap terribly incapacitating.

  • drylips

    Im a fan of you now. Thanks for helping us out, because some of us aren’t strong enough to do it by ourselves. You make my heart smile. Thank you. I also wanted to say ive been steaming my lips because ive read that heat & humidity can speed up healing. But ill keep you updated.  

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much for your kind words. I don’t know how much that would help but def keep me posted!!!

  • wowoo

    Dude I read you took a layer off at work. Do you go outside looking like this? Your insane and brave if you do. Do people stare at you in disgust especially girls. If I do this Im staying home with months of food bought ahead of time. Theres no way you go out like this without wearing a mouth mask 

    • http://www.danielcmiller.com/ Daniel Miller

      Yes I go outside looking like this…Is it embarassing? Yes…people don’t stare in disgust though, they maybe look more concerned than grossed out. But yes if you can be able to stay home by all means do it, however get yourself outside every once in a while! Gotta get some fresh air. It’s worth it in the end though. Can’t wait to have beautiful lips again. I just tell myself “I’m not here to impress anyone, I’m here for me, and to help myself. There is no reason to keep harming my lips to get someone else’s approval.” You get used to it anyways. And no I don’t wear a mask….lol I had considered it though, but it was more embarassing!

      • wowoo

        wow man thats crazy I would probably do the mask thing or napkin over the mouth if I have to go out to the store or something and tell people Im sick. wow your brave Where im from people are more shallow if they see a slight crack on your mouth right away they say herpes or something and avoid you or just stare at your mouth with big eyes you know the look like I dont know whats on my face idiots

  • Benjamw88

    Hey Daniel,

    Is there something special you do to keep your lips dry when you wash your face and brush your teeth? That’s when my lips get the wettest. Also, I want to say that I think it’s cool you put this website up. It’ll bring more exposure to this condition and you’re helping those afflicted by it. 

    • http://www.danielxmiller.com Daniel Miller

      Thank you for the comment :) Actually to be completely honest I don’t brush my teeth hardly ever…I’ve found that the saliva works on its own to keep the mouth clean. But to get the occaisional build up I have a philips sonicare toothbrush  and keep it dry as I can by shaking the loose water in the sink, and just slowly and very carefully go around my teeth. I then let the built up saliva slide down my tounge into the sink. My breath does not stink so it’s honestly not much of a big deal if you don’t brush your teeth it just takes some getting used to. Eating the right foods will help this very much! If you eat bad foods then yes there is going to be more of the “bad” bacteria building up which causes bad breath.

      As far as the getting my face wet, if you research about what soaps actually do, they cause the ph levels in your skin to change and actually are not good for them! I use burts bees body wash 99.2% natural, and that’s only once in a while. For deoterant I have Tom’s of Maine deoterant which you can find at a store and that is honestly all you need. Just rinse your body off with water, it might sound weird at first, but I have never felt better and your skin will not smell. It may smell in the beginning as that is what these “cleaners” cause, but after a short period your body will return back to what it normally should be.

      But, if you feel you must and think I’m crazy, just only wash your cheeks and forehead with your fingers without letting water spray on your face and rinse off with your fingers as well. As for shampoo just tilt your head back and use your fingers to rinse that out as well…and use your soap/body wash on the rest of your body. Just make sure to keep the shower curtain open about 1/4 to half way and the door open! This is very important so you don’t build up moisture in the air. Also try not to use super hot water because that will cause your face to sweat.

      I hope this helps a little bit! Let me know if you have any questions or concerns.

      -Daniel

      • Benjamw88

        Hmm, I don’t think I can go without brushing my teeth everyday. I get plaque buildup fairly easily and my dentist keeps telling me to clean them more lol. Same with washing face. I get problems with sebum plugs on my nose and my dermatologist recommends more exfoliation.  If cutting down on brushing and washing with soap works for you, I’m glad. It makes keeping the lips dry much much easier.

        All the best on your cure attempt.

        -Ben

        • http://www.danielxmiller.com Daniel Miller

          Yeah, I can definitely understand that. What you should probably get is a philips sonicare toothbrush, or some kind of electric one. You don’t have to get an expensive one or anything, even the crest spinbrush will probably do. You just really need something where you don’t have to physically move the brush back and forth to clean your teeth so it doesn’t press too much on the lips…which is the main problem I have even with an electric brush. As far as washing your face, do it as normal, just do your best to avoid it running on the lips, and make sure to keep that shower curatin and door open, if you can.

  • Mike

    Hey Daniel, 

    My hat off to you sir! Going out in public like that takes some serious balls and you are to be commended for it. I’ve apparently developed cheilitis too in the past few months and I’m really gutted, but I’ve got a couple of questions to ask you. When your lips are like that, do you find that there’s pain and swelling below the crusts? I’m getting that and apparently that means the lip underneath is getting attacked by bacteria from the dead skin and therefore no new layers are being added. Do you have any insight on whether this is true or not? To be fair though, I got mine through biting and trying a dumb trick which didn’t help my condition at all. I hope there’s a cure for me too.Your website is awesome by the way, thanks for putting it up! I don’t feel so alone anymore! :)

    • http://www.danielxmiller.com Daniel Miller

      Hey there. Thank you so much for your reply! I haven’t noticed any significant amount of pain or swelling. However if this is your first cycle just starting out there could very easily be a lot of pain involved as the cells try to rebuild the framework of what has been lost. I did get a papercut feeling in the beginning on some parts of my lips though which is going to be normal and something that should ease up a bit after time. I do get a slight burning sensation about a couple times a week when the liquid I talk about is being built, which from what I can see is the protective layer being created again. And no I highly doubt there is any bacteria attacking your lips from the dead skin. Just keep holding out and wait for the first peel and I can bet you your lips will look much better underneath the dead skin layer. Keep me posted and if you have any more questions just ask. Thanks again!

  • Cdub94

     Daniel, I really don’t know what to say.  I can’t thank you enough for reaching out to help others, including myself – http://curezone.com/forums/fm.asp?i=1936520 (where you found me) .  You are such a strong/amazing person for doing this, and I will be here from now on  to support you and everyone else.

    Reading your info really hit home for me.  Everything you mentioned — the chapstick, and the peeling of the “dead skin” were always sources of suspicion when I tried figuring out the beginning of my problem.  And I always thought leaving the lips alone was the answer but because I was never 100% sure, I never followed through with it.  Now that you’ve enlightened me though, I’m ready to take the journey with you.  Please stay faithful and don’t let this condition bring you down.  Like you mentioned, there’s a ton of things you and I should be thankful for and it helps to remember that there are people out there who suffer from hunger, injustice, etc.; not just physical problems.

    One more thing, I wanted to ask how difficult it is for you to eat?  Eating is always a problem for me, and every bite I take is like a challenge.  It sounds kind of funny, but it’s a huge pain in the ass!

    Best regards,
    Chris

    • http://www.danielxmiller.com Daniel Miller

      Hey there I just wanted to thank you so much for reading my page! So glad I was able to brighen your day a little bit. Yes this may be tough, but I know I will be healed eventually. And if you would like to post your progress pictures just friend me on facebook and Ill add you to the EC group. As for eating, yes its extremelly difficult to eat, but as long as the food is dry and not too juicy I manage … your fork and knife will be your new best friend. Keep me updated and thanks again!

  • Teresamiller7

    Hi,I’m Daniel’s Mom. I am really proud of him for taking a step out and giving info to others…how he is trying to share what he is going through, with the hope it may help others too.  For those of you who have questioned how he can go out in public while he goes through this, well I just have to say, that I go out with him.  He is my son.  I love him.  He is strong, and the love his family gives him helps provide that strength.  We are all here for one another.  Daniel, you are a wonderful person!

    • Jaye

      Aw there are so many of us here who are SO proud of him. Dan pulled me out of near-depression when this was at it’s worse for me. He was the only one I could find that believed there was a cure or a way to beat this. Good to see family support :) xo

      • http://www.danielxmiller.com Daniel Miller

        Thanks Jaye ;)

    • Kal

      Hey Daniel’s mom, thanks to you and Daniel for being awesome. :-)

  • http://www.facebook.com/people/Joseph-Lee/100003809080370 Joseph Lee

     hello guy,you are very brave and thanks for your sharing,please add me to the ec group thank you.

    • http://www.danielxmiller.com Daniel Miller

      No problem. Just accept my friend request and I’ll be able to add you.

  • Jason Durr

    Daniel,
    You are truly an amazing young man with an incredible talent. Being able to invite strangers into your life to share your story is remarkable. I wish you the best of luck with your continuing efforts to help make your life a little better. Your devotion and passion should give anyone the strength to overcome any obstacle. You are an inspiration!

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much, Jason! That means a lot :) it was difficult to bring the page live, and I did it slowly at first with a password, and eventually felt comfortable enough to share it with the world. There just isn’t much information on this, and I feel like I’d be able to help a lot of people :) Thanks again for your message.

  • Lips4Free

    Hi Daniel, I want to congratulate you on your work and it is by a strongly way you have decided to bright this lips condition to light. This has to be known and I can imagine how difficult it is to get involved in a fight like this. You have put a face on this condition and I want to salute your perseverance because I know how disabling this problem is !

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much for your comment! The reason this is so hard to deal with is because it truly is unknown. Most of us wouldn’t mind the embarrassment we would have to go through if we knew that people looking at us already knew what we were going through (like acne for example, and people trying to get rid of it). It’s just when it’s something completely unheard of and you can “sense” people asking themselves “what is going on with his lips” that just makes it so much harder. Hopefully this site will bring some light to the world and it won’t be so difficult to deal with out in public. At least you can give someone a URL to visit if they seem to be asking themselves what in the world we are doing. Then they can have their answer.

      Thanks again for your continued support! Greatly appreciated. :)

  • Cdub94

    Hey Daniel,

    Just dropping by :) Stay faithful my friend, I’m here to support you.  Any improvements lately?

    • http://www.danielxmiller.com Daniel Miller

      Hey! Yes!! Some great improvements! :) As you saw on my Week 11 post this time when it peeled the skin underneath wasn’t completely hard to the touch! So I’m really excited! This is working….I can’t wait. Thanks again for your support!

  • Trocky2k9

    whats up Daniel im 28 years old, im also suffering from EC for 5 months i know im a NUB but i cant stand that my lips wont heal   …, i have been going to the sauna and getting lots of sun i also drink 3 table spoons of braggs vinegar a day the taste is so gross …, my top lip is almost fully cured and my bottom lip is about 70%  cured  …, i stop using all ointments after coming to your site on friday …, i hope and pray that your method works …, and i would like to thank you for being so BRAVE …., KEEP THE FIGHT GOING …, 

    • http://www.danielxmiller.com Daniel Miller

      Thanks for your comment! That’s really good to hear that most of your lips are healed! Keep up the courage and your lips will be completely healed soon enough :)

  • Polarlips

    Hi Daniel, thank you for creating websites for us. I’m also the sufferer and I’m also leaving my lips alone to re-trigger their ability to heal themselves. I know there may be some opposite opinions against this “free treatment”, but there are ppl out there getting cured using this method. So, let’s stay strong, hang in there, be patient and wait for our good days to come! Please continue your treatment update and we are also on the same boat to fight this through!

    • http://www.danielxmiller.com Daniel Miller

      You’re welcome :) thank you for writing! And it is my commitment to everyone to not give up and show the world with documented proof on a weekly basis that we can cure ourselves and show a timeline of expectancy

      Stay strong! Together we will achieve greatness :)

  • hilbobaggins

    Hi Daniel.  Terrific work.  You’ve inspired me.  I’ve been a lip nibbler / chapstick addict for about 15 years.  What you say here makes complete sense to me.  Of course this is the only way to heal.  Nature always wants to heal us but we need to get out of her way and let her do the job she wants to do!  Keep going, love.

    • http://www.danielxmiller.com Daniel Miller

      Absolutely right! :) Keep in touch and let me know how everything is going if you decide to take the dive. :)

  • http://www.facebook.com/people/Marion-Love/100002686346503 Marion Love

    Keep up the fight Daniel.

    • http://www.danielxmiller.com Daniel Miller

      That’s my goal :)

      ~I will reach it.

  • Teresa

    Hi Dan…It’s your mom popping in again to reassure you that I am supporting you thru all this! It’s wonderful to see the responses from other people who are going thru the same thing as you joining together and giving support to you and others too!  Great things can happen where positive energy abounds! And I’m soooo proud of how well you are putting the ever-evolving website together…so personable and very creative.  Can’t wait to see the FAQ section…..great idea!  As always, you have my love and support!  Luv U, Mom

    • http://www.danielxmiller.com Daniel Miller

      Thanks mom :) love you too! The site is turning out great, now just gotta wait until I’m normal again :) hehe

  • Trocky2k9

    UPDATE …, i went a week with out using any ointments on my lips …, i think your on to something here Daniel  …, my lips feel like there are naturally starting to moisten it self …, keep up the good work …, 

    • http://www.danielxmiller.com Daniel Miller

      Awesome! So glad to hear it! Keep me posted on how things go over the next few weeks! :)

  • http://www.facebook.com/people/Marion-Love/100002686346503 Marion Love

     Hows it going Daniel? This is my first week of letting my lips heal on their own and so far so good.

    • http://www.danielxmiller.com Daniel Miller

      It’s going pretty good :) I just uploaded a vlog for week 12 if you would like to check it out! Got some info I think might help this heal faster :) Keep me posted on your progress!

  • Trocky2k9

    What’s up Daniel its my second full week with out any thing on my lips …, my lips feel dry after I brush but then get better as the day goes on.., I feel great not having to apply lip balm on my lips every half an hr …, I hope my lips are recovering …, keep your head up your doing great …,

    • http://www.danielxmiller.com Daniel Miller

      Hey! Thanks for your comment :) yeah I love not having to worry about chapstick anymore! Keep me posted on your progress :) thanks for your support!

  • wowoo

    Dan. The doctor I went to told me we have a scab. The reason it doesn’t heal is because the scab is infected therefore the infection disrupts the healing. That liquid you noticed building up is pus from the infection. All you have to do is just add antibiotics pills and keep up your non peeling method. If you would’ve took antibiotic 3 months ago at the start you probably would’ve been healed already. I am starting my treatment next month I requested a 2 months leave of absence from my job. I am not leaving my house except to go to my roof for fresh air daily. I have 3 grand saved up for rent and food all paid for so theres no reason to go out.I am joining you in the battle GET SOME PILLS AND CONTINUE TO LEAVE IT ALONE it wont hurt. see ya 

    • Lips4Free

      It needs to have hindsight about the antibiotics given that it might has some side effects for the future. A good idea would be to really and seriously analyzed a lips sample in order to see if there is something wrong or unusual in it. To Launch into the bacterial destruction or the stopping of their reproduction during a long time may be inadvisable, 2 months should be enough to see if it is the point! Keep us informed about your treatment!

    • http://www.danielxmiller.com Daniel Miller

      Hey! I wanted to make a quick reply to your comment. I would assume that some people would get infections from this, however I can assure there is no infection in my lips. I was talking with the guy who created http://www.exfoliativecheilitis.com who has actually cured himself from doing exactly what I’m doing (and he didn’t get them wet either). I also am very against using anything unnatural, but if you do have an infection I don’t see the harm with using an antibiotic…keep me posted on how it works for you and if it helps clear it up.  The guy who created that site said liquid that I am seeing is actually the oil glands in the lips which are there to protect the lips…so this is a great sign of healing. So I guess time will tell :) but yeah as far as an infection I don’t see any signs of infection on my lips since after each peel they look great. Keep me posted though!

  • Michael

    Hi Daniel,

    I just want to say how much I appreciate and admire you for doing this. I messaged you on facebook about a day ago, but I’d also like to post here too in order to hopefully add to other people’s understanding of exfoliative cheilitis. There are also a few things I’d like to dispute on this site, but I don’t mean to seem disrespectful in any way. After all, we’re basically doing scientific research here, and it’s necessary to be as accurate as possible with information. I’m not a doctor or dermatologist, but I’m a college student who’s in a field of study that requires a lot of knowledge on cellular biology. 

    I too have exfoliative cheilitis. For me, it started when my lips were a bit dry one day about half a year ago, so I had decided it would be beneficial to nibble at the skin on my lips until all that dry skin was gone. This was a very bad decision.  In the following days, Inoticed that my lips became very dry no matter what cream, or balm, or oil I put on them, and they also had what appeared to be white dead skin on them whenever they got wet. This was rather unsightly and embarrassing, so what did I do? I would take off this dead skin by rubbing my lips with my finger everyday when I was in the shower. I thought this was the answer and it would go away eventually. This is something all of us have done, right? I did some critical thinking and I ended up coming to the same conclusion as Daniel.
     
    Chapstick isn’t exactly the cause of EC, though it can contribute. Some people have had reactions to products, or food, or medication, etc. which have caused their lips to become dry or inflamed. And as most people come to find out, EC is not caused by toxins or viruses or bacteria or a bad diet or anything like that (although these things can cause dry lips). The precursor of EC is dry lips. It’s what we do next that determines if we get EC or not. In my case, it as when I bit off the skin. For others, they may have over exfoliated their lips in some way. My point is, the real cause of exfoliative cheilitis is that then the necessary layers of skin on the lips have been removed, the skin can no longer function properly without these vital layers. Skin has 2 main layers: the dermis (lower layer) and the epidermis (upper layer). We just need to focus on the epidermis. The epidermis is composed of 4 sub-layers: the stratum basale (lowest layer), the stratum spinosa, the stratum granulosum, and most importantly the stratum corneum (highest layer, which is what we see with oureyes).  Keep in mind that these layers are extremely thin on a cellular level.

    Now, in your explanation if I understand correctly, you’re saying that EC is basically psoriasis. Psoriasis is another skin condition which isn’t fully understood, but it is known to be an autoimmune condition in which the body mistakes healthy skin cells for pathogens and starts destroying them. I’m positive that EC is not psoriasis. You are, however, correct when you say that the hard layer of skin that forms when you leave your lips alone is a protective layer. This is a mechanism of the skin that is necessary for the healing process to begin. When we started taking off layers of our skin, we took off the stratum corneum and possibly more layers of the epidermis. The function of the stratum corneum is to keep moisture in the lower layers because those layers contain living skin cells which need moisture (water) in order to properly do their own distinct function. The more layers of skin that we have taken off, the more time our lips will need to heal. The ‘scab’ that forms acts as an artificial stratum corneum in a way, and it’s there to keep moisture inside the lower layers of skin while they get repaired. (I haven’t done enough research on the cellular process of how each layer of the epidermis regenerates, but I implore everyone to try to research it. Fascinating stuff). Structure and function is a fundamental concept in human biology. Each layer of skin is a structure, and they each have a vital and necessary function. So in Daniel’s words, “What you need to do is STOP PEELING YOUR LIPS.” Nothing you put on your lips will help, so stop with the antibiotics and creams and everything and just let your lips do their thing.
    On a side note: it really upsets me that dermatologists and doctors have forgotten what they learned in college, especially when anatomy is so vital to their area of expertise. 

    Anyway, there are just a few other things I’d like to dispute, and some things I’d like to add:

    First, diet is indeed definitely important. Fruits and veggies people! Never rely on supplements to get your vitamins. They don’t work and have recently been found to be slightly detrimental. The more nutrition in your diet, the faster your lips will heal. Vitamin C is definitely great for healthy skin!  Next, I wouldn’t recommend anyone taking any skin off the lips at all. Even if you think the skin under it is sufficient. The more layers of protection, the better. It will eventually come off by itself.

    As for getting them wet, I can’t think of any scientific reason not to get them wet. My lips have improved after each time they’ve peeled and I’ve been getting them wet throughout the day when I shower and brush my teeth and such. I honestly don’t think it matters much. The lips are indeed considered a mucous membrane, but it’s not the same kind as what’s in our nose and digestive tract and other organs which produce a fluid substance. I did not experience any liquid forming under my lips, and I suspect it’s because my lips haven’t been damaged as badly. I think the reason why liquid is forming is that it’s the body’s natural healing response. It’s the same principle behind blisters. But yes, the skin gets most of the moisture from the inside of our bodies and doesn’t need it from the outside. But like I said, I don’t see a problem with them getting wet.

    And about our palms and soles of our feet, there is no barrier that is rubbed off. In fact, our hands and feet and have the thickest layer of stratum corneum than anywhere on our bodies. There’s also actually another layer of skin that is unique to our palms and soles called the stratum lucidum. As to why our palms and soles wrinkle when wet, that’s actually disputed in the scientific community. Some think it’s because of the thick layer of stratum corneum, and others think it has something to do with the nerves in those areas. Lastly, natural oils and Vaseline are not the same as chapstick. After you’re cured of EC, if you ever get dry lips, oils and vaseline are okay to apply. The reason being is that oils and Vaseline don’t moisturize the lips. Moisture=water. Is there any water in oil or vaseline? Of course not, so our lips won’t become reliant. The oil or vaseline essentially act as an extra stratum corneum and help to keep moisture locked in the skin so that it can go about repairing whatever is causing the dry skin. Just don’t exfoliate your lips. Ever. E.V.E.R.
    Well, sorry for the essay. I don’t mean to impede on your blog Daniel, I only mean to help contribute to the understanding and awareness of exfoliative cheilitis. It’s been a month since I’ve left my lips alone, and I see definite improvement. The color is going back to normal and the thickness of this ‘shell’ is getting thinner after each peel. I wish everybody out there the best of luck! Thanks

    • http://www.danielxmiller.com Daniel Miller

      Thanks for your comment! I really appreciate it :) As I am by no means any scientist myself, nor have I gotten through my AA yet, any help is appreciated, and I am always looking to update my site with current and better information. :) Yes, it is true what I meant to say in my blog is trauma to the lips is what causes EC, however for a lot of people using chapstick all of the time can be the beginning for them. As I am remembering more about the beginning of my EC, I think it largely had to do with me flossing my teeth everyday because I really stretched my lips considerably everyday to get back to my back teeth….which I have recently been remembering. That was the start of my EC.
      So what you wrote about the layer of skin being protectant so the living cells underneath can be rebuilt is pretty awesome, because what I’ve been attempting to do is keep the skin on as long as possible WITHOUT it breaking open on the edges to allow air in. It’s extremely difficult, but I personally believe that if I can leave the skin on there for 4-6 weeks without air getting inside then the healing time for EC will be MUCH faster.  I’ve been developing a chart at the moment from when I started vlogging this to document each time my lips peel. The first several weeks I hadn’t wrote anything down so that data might be different, but I can pretty much remember when, so the goal I have is make sure air cannot get inside, which is precisely what happen to each of these “scabs” the day or two before they peeled. I wonder if there is any sort of skin glue that I’d be able to use to secure the outer scab so it doesn’t have the possibility to create a hole, maybe that liquid bandaids? What are your thoughts on this?

      And the diet thing, I am totally with you! Although the section I wrote on it is relatively small, I have quit taking all of those vitams I used to take and now am getting my vitams through natural fruits and vegetables. I also like to eat a lot of salmon. Since I’ve started this, not only have I felt better, but my lips have felt much better underneath the skin…so I know something good is happening.

      About the hands and feet thing, it was something I had read a few different places throughout, so I had assumed it was correct, I just knew that we didn’t really “need” the water from the outside in order to keep the lips moist which was the main point I was trying to get across with that thought.

      Thanks again for your comment, I really appreciate it! Keep me posted on how you are doing!

      -Daniel :)

      • Michael

        It’s my pleasure to help as much as I can.

        For the ‘scabs’ and air getting inside and all that, I don’t think that it’s absolutely vital for you to go through all that trouble. As your lips heal, if they’re anything like mine, they should progressively begin to hug your lips more and more. That’s one benefit I found of letting them get wet. After I’d get out of the shower, my ‘shell/scab’ would dry and form to the shape of my lips better. Honestly, I don’t feel that minor things like that should make a huge impact on the overall rate of healing.

        • http://www.danielxmiller.com Daniel Miller

          yeah that makes sense…I was just noticing that whenver air got inside, the skin underneath almost immeditately dried out after several hours…so my thoughts were keep the air out as long as possible might cause it to heal faster :)

    • Marion Love

      Have you noticed any significant differences between cutting off the dried dead skin or leaving the dried dead skin alone yet?

      • http://www.danielxmiller.com Daniel Miller

        I’m not sure if you were asking me or him but I’ll give my input for starters…I haven’t had a peel since I have decided to leave the skin alone, if you look at the picture from earlier today on week 13 you’ll see the skin has built up considerably, but underneath things are feeling wonderful! No air has gotten in yet so I’m really happy about that. I’ll let you all know when it peels what it’s like underneath…hopefully much more healed :)

      • Michael

        I haven’t cut off any dried skin, but I don’t find much of a need to because my lips peel by themselves about once a week in random spots. The thing about cutting of any dried skin is it’s difficult to know if that skin on top will still benefit the skin underneath, even if partial separation has occurred. My logic is, the more skin on top, the better protected the lower layers are.

    • Marion Love

      Reading your comment gives me even more confidence that I can beat this. Keep us posted on your progress and any other tips you might have.

    • Marion Love

      Michael did you use oil, vaseline, or coco butter on your lips with you were going through the healing process? I just wanted to know some of the things that you did or didnt do while dealing with this.

    • cody

      great job dude thanks for this site it gives me hope!

  • Trocky2k9

    whats up Michael keep us posted on your results …, im about 75% cured from the leave it alone method …, this is GREAT let all get CURED …, 

    • http://www.danielxmiller.com Daniel Miller

      Awesome Progress! I am going to put a section at the end of this page with links to people’s websites or blogs (or just their name) of everyone who has been cured doing this method! So exciting to see so much support.

  • daglish

    how you doing daniel are you completely healed and also if you dont put water on your lips how would you brush your teeth

  • daglish

    daniel i have had peeling lips for 8 months now im going to see a dermatologist but i would like to no if i dont put anything on my lips how long will it take for my lips to heal plz reply asap

    • http://www.danielxmiller.com Daniel Miller

      Hey daglish, I’m still working on how long it will take…it will be different for each person based on how long they have been peeling them to begin with…so far I haven’t been putting anything on them and I am on week 14…

  • Dane.

     Wow, I didn’t realize anybody else was fighting this. Reading your blog and viewing these comments have given me hope! I’ll fight alongside all of you, NOT PEELING MY LIPS ;) We can do this!

    • Dane.

       Can I also just state that I am SO afraid of the social consequences this proces is going to have…

      • http://www.danielxmiller.com Daniel Miller

        That’s awesome! So glad you found this page :) If you have any questions don’t hesistate to ask :) , and as far as the social consequences…it will all be temporary, once you are completely healed everyone will forget that you even had it to begin with. But I don’t want to misguide you, this will probably be the most difficult thing you will have to go through…just because it does take so long. But it is worth it! :)

  • 123some

    Hey I was checking out your you tube channel and I noticed you eating and lips looking healthy and you stretch them around March. Then I see on this site that your lips are crusty around March. Are you pulling a trick on us are you hoaxing all of us and putting some sort of homemade skin and making videos. If you are stop it if not please explain 

    • http://www.danielxmiller.com Daniel Miller

      Why in the world would someone “pull a trick” on everyone? Why would I go through all this trouble making a site, documenting my progress, and showing pictures of each week and videos of me trying to heal myself? Thanks for your comment and skeptism, but if you really put that much effort into figuring out if I was “hoaxing” everyone you would see that I am not. If you take a close look at my youtube page, the last time I ever uploaded a video with “normal” lips was on March 5, 2012. When I had just gotten back from Puerto Rico. If you notice, I started my cure on March 3, 2012, two days before this. Obviously my lips aren’t going to build up in two days and become all crusty, so I made a video as normal. Now, if you look on my site you’ll notice That I started recording my progress on week five, WHICH IS IN APRIL, not March. I did, however upload a video…which I don’t think showed my face on March 16 from the T-Mobile party, but that video was from the Puerto Rico trip (March 1-4) I just waited a couple weeks to upload it.

      Either way, it doesn’t take much effort to see that this isn’t some “fake” thing I’m doing…I don’t think anyone in their right minds would ever do something so ridiculous or insane. Sorry for being a little offended on your comment, but I’ve spent countless hours trying to help myself and everyone get better, but I’m just going to take it that you don’t want to go the route of leaving them alone, which is totally understandable, and you’re looking for another alternative to heal yourself, which I totally wish there was. However, up until this point there hasn’t been a single successful cure for this other than what I am doing, and if you can find evidence to prove me wrong please let us all know so we can all do that instead, and I’ll change my entire site around to show that cure.

      Thanks again for reading, and I wish you the best luck with healing yourself!

  • http://www.facebook.com/people/Marion-Love/100002686346503 Marion Love

    Hey Daniel, hows it going? Ive left my lips alone for 3 weeks and I think im starting to see improvements. I hope things are improving for you also.

    • http://www.danielxmiller.com Daniel Miller

      Hey Marion! Doing great! So glad to hear that! Yes things are improving each week for me :) Keep me posted and take pictures it helps motivate you, and also shows your progress!

  • Polarlips

    Daniel, you are great and I am soooo proud of you! I can see your skins on the video are getting thinner compared to your very first video clips. So, let’s stick with it and go about the way we choose to be! 

    • http://www.danielxmiller.com Daniel Miller

      Thanks so much! Yes they are getting so much better each week! Can’t wait until we are cured for good! :)

  • Trocky2k9

    whats up Daniel, i just seen your new video and would like to add or rather confirm that my lips are also healing form the bottom up im on my 4th full week of the nothing on my lips method and I’m seeing great improvements …, i cant wait to beat EC for GOOD  my lips are 80% normal or maybe 81% I’m not sure  lol  …, thanks 

    • http://www.danielxmiller.com Daniel Miller

      Hey! Thanks for watching :) I greatly appreciate it! So glad you are seeing improvement so fast! It took my lips over five weeks before I started seeing anything. I had this for a really long time though, I would love you add you to the cured list when you are finished so please take some progress pictures along the way :) Glad we finally have the answer after years and years.

  • Stephanie R.

    I just wanted to say that I’m proud of you for staying so strong. Most people would of given up but you didn’t. You are out to help others. Thank you!

    • http://www.danielxmiller.com Daniel Miller

      Thanks Stephanie! It is hard to keep at it, but I am commited to myself, and everyone, to get through this! I just hope to be healed soon :)

  • Trocky2k9

    whats up daniel i just completed week 5 of nothing on my lips …, I’m to the point where only 1/8 of my bottom lip peels  and turns white  and gooey when it gets wet  …, i brush now with just plain water and i chew trident after , i think its making big difference on my healing process …, tooth paste seams to make my lips sore and dries them out  …., ill keep you posted ,your a inspiration to us all …, PS. the baking soda was a waste of time .., YUCK …, lol 

    • http://www.danielxmiller.com Daniel Miller

      Thank you for your comment! :) Sorry to hear about the banking soda…let me know how everything is going! Keep in mind you can post a picture in your comment on here as well if you would like to do that!

  • someone

      hey daniel have you done a celiac test?
     i have this condition too and i noticed that this came frome eating foods Containing gluten,so i stoped eating gluten and this thing went away in about 4 days, there still was like this liquid thing under part of the lower lip but as day’s past this was less severe and noticebale and there was no more skin falling(at least that i could noticed with my eyes). i didnt ate gluten for 6 months and there was no peeling,at this april i broke down and return to eat gluten stuffs and this thing came back . i did some investigation on the web(thats how i also got here) and found about this disease(celiac) .i went to see a doctor  and he told me to do the test after i will eat gluten for 3 months (after avoiding gluten for a long time the examonation will show that you dont have celiac even if you do have it so it’s vital to eat gluten regulary in order for the test to be reliable). no matter what the test will show i know that for me the solution is evoiding gluten and by evoiding i mean totally evoiding.. so no matter what the test will show i am going to evoid gluten after i will do the test.    

    i recomend you not to try and go to non gluten  diet befor you do the blood test for this celiac, the reason for that is that this is very hard not to eat gluten like i did for 6 months ,and when you return to eat gluten you will need like more 3 months back with eating gluten befor having the test. maybe after what i wrote here you will be tempt on trying not to eat gluten and see if its helping , thats is understandebale of corse, but if it will work for you after you will do the test you will be more sure that this was the problem and not having seconds taghts about this avoiding frome certains foods will be easier for you and also this will prove what is the cause of exfoliative chilitis. its in your hands to decide if you want to do the test first or not to do it and just not to eat gluten. i recommend you to do the test first as soon as possibele,and afterward even if it shows negative, try this non gluten diet.english is not my speaking language so if somthing was unclear  i am sorry. i wish you good luck and health.

    • http://www.danielxmiller.com Daniel Miller

      Hey! Thanks, yeah I’ll look into Gluten, I don’t really know what foods have that in them, but I know it’s a lot…I eat really healthy now so a lot of what I’m eating probably doesn’t contain gluten…but def keep me posted on how things turn out!

  • Hans

    hey daniel, i have ec for nearly one year now, u are a very patient person, i looked your videos on youtube, please update i cant wait to see how your lips look today

    • http://www.danielxmiller.com Daniel Miller

      Hey, thanks! Feel free to watch my latest video which was uploaded just yesterday: http://www.youtube.com/watch?v=9UlAuMY-Ozg also subscribe if you like so you can see my newest videos all the time. Let me know your thoughts!

  • May

    Hi Daniel! I don’t even know if I have this peeling lips thing- but I am getting kind of scared. The past few weeks my lips have peeled and stuff but they are not quite as white as yours. They look pretty natural- but at the tips of the skin- they are just you know kind of white. I have been putting chapstick on them 24/7 and when I finially saw this website I went- OHH NO. I even went swimming the other day :( But I am not even sure if this is just my lips that are super chapped or something or if I am getting this. I am getting really scared because I am just a 13 year old girl who does not want this to happen. Please help!!!

    • May

      Its me again. I just wanted to say that also my lips have been really dry no matter how much lip balm I put on them and ya I got a sunburn yesterday does that make it worse? They have been stinging lately and I have something really important this weekend that I do not want these lips for. Can you tell me how you get rid of them fast and easy??? Please reply it would help so much!!!

      • http://www.danielxmiller.com Daniel Miller

        Hey May! I’m so sorry to hear you’re going through this at 13. If you check my picture from week 1…my lips look very normal and I was applying chapstick to them 24/7. The link to the picture is here: http://danielcmiller.com/wp-content/uploads/2012/03/DSC01070-1024×680.jpgAlso, yes a sunburn is bad, just like any other part of the skin, it causes the other skin to peel as well as your lips. Try to ease off the lip balm slowly and only use burts bees chapstick, not the other horrible stuff. Make sure you are staying away from any lipstick and lip gloss for the time being as well. I don’t want this to turn into what I and countless others have…so hopefully it hasn’t started yet. From now on I would be really careful with touching the lips and smiling…try to live a normal life and you can take showers and get them wet. Keep me posted on your progress and what happens and I’ll do my best to help you the least embarrassing way, because I know going to school and having this will be nearly impossible.

        Best of luck! Let me know how it goes.

  • tintumon

    hii daniel
       hope all gng fine……………i am on the 3th week………………….and see some progress through…………….you mentioned about  a waterproff  tape .please upload some picture it may be helpfull

    • http://www.danielxmiller.com Daniel Miller

      Thank tintumon! I would love to see your progress…you should start a progress gallery, I designed a new forum for everyone to start one or just talk in general. Check it out, let me know what you think! http://danielcmiller.com/?page_id=2540

      • tintumon

        sure daniel i taken photos of  every week.and i like to add it here

  • Stevo

    Hello Daniel!
     I’ve been struggling with E.C. for around 10 years and it has become more severe overtime. I found your video on youtube and watched some clips. As I was watching I realized that I had gone through the exact same process of cycles of peeling, problems eating, not wetting lips, laughing and even being seen. I got very far in the process about 2 months in and I drank 1 beer from a can and it was over. I haven’t tried this process again since because it was so difficult and easier to hide that to deal with. I feel like you’ve given me a better understanding of E.C. and I’m ready for my next attempt but need preperation and a plan before I begin. I’m happy that there is other people like you offering your time and ideas to help out the world. People need to stand together on E.C. because no doctor or dermatologist can help us unfortunatly. It seems as if this is a very overlooked and concerning issue in america or elsewhere. I’m glad to see someone making an effort! Thanks, -Stephen B.

  • I hate EC

    Hello Daniel!
    I’ve been struggling with E.C. for around 10 years and it has become more severe overtime. I found your video on youtube and watched some clips. As I was watching I realized that I had gone through the exact same process of cycles of peeling, problems eating, not wetting lips, not laughing and even noy being seen. I got very far in the process about 2 months in and I drank 1 beer from a can and it was all over. I haven’t tried this process again since because it was so difficult and easier to hide that to deal with. I feel like you’ve given me a better understanding of E.C. and I’m ready for my next attempt but need preperation and a plan before I begin. I’m happy that there is other people like you offering your time and ideas to help out the world. People need to stand together on E.C. because no doctor or dermatologist can help us unfortunatly. Their should be specialists for just this. It seems as if this is a very overlooked and concerning issue in america or elsewhere. I’m glad to see someone making an effort! Thanks, -Stephen B.

    • http://www.danielxmiller.com Daniel Miller

      I’m so sorry to see you tried and weren’t able to complete it :( it reminds me of my first attempt last year where I did it for two months and gave up because I was about to go on vacation…this time I’m head strong and not giving up! Yes, I think this is the beginning of finally getting a real understanding of this thing…just gotta get cured now :)

  • Hans

    hey daniel it’s me again just want to tell you please dont give up, im wondering about your patient becouse my rekord to take my lips alone was 3weeks and in this time I went crazy. I think whoever beat this illness is mentaly the strongest person in his environment. best wishes

    • http://www.danielxmiller.com Daniel Miller

      I won’t give up :) and thank you!

  • kevin

    i would just like to know are you cured and if not how many months have you left your lips alone

  • Hans

    hey daniel, i saw your newest video on youtube.
    im not a doctor and im not sure but maybe your lips heal faster if you dont touch them because on your fingers are many bacteria. i have a little bit acne and if i dont touch them the picks heal faster, maybe its the same with the lips.

    just want to help you dont misunderstand me please

    • http://www.danielxmiller.com Daniel Miller

      Lol yeah I’m sure they probably would…but it’s really hard for me to not touch them and I kind of like doing it so I don’t think I could stop…it might take a little longer to heal but I guess just gonna have live wit it :) Thank you for your comment!

  • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

    Hey Daniel, What if i dont have EC. and i just wanted to go through life without lip products. Could i still do this

    • http://www.danielxmiller.com Daniel Miller

      Yeah this would cure that as well…. However I want you to take caution to how you approach this method because some people report that their ec spreads when they are starting out and I don’t want you to actually end up getting it…. The best way to stop using lup products in your situation would be to ease off of them very slowly and make sure you up your water intake a lot to help compensate.

      Make sure you are getting them wet in the shower like normal as it is helping I am finding out, and let me know if you run into any issues! So my best advice is to ease of slowly.

  • Anthonytk

    Hello Daniel,  i just wanted to let you know that I appreciate your effort and wish you luck for the road ahead.
    Ive left my lips alone for 2 months now and i was wondering, when this is all said and done. Will i be able to go the rest of my life without chapstick

    • http://www.danielxmiller.com Daniel Miller

      Yes when you’re done the lips should be healed perfectly :)

  • Mara Jade

    So glad I know what I have now! I haven’t been diagnosed yet, but it’s pretty clear that I have EC. I also have a suspicion of what caused it–some sort of candida overgrowth. I did the “at home” test which indicated that I had too much yeast in my system, and although it’s possible that the test isn’t 100% accurate it explains some of the symptoms I’ve experienced over the last few years. I have found some websites that links it to EC, which I’m sure needs some more case studies to be proven, but to me it makes sense. The way to get get rid of the candida is to starve them, which means not eating sugar. So I’ve changed my diet to fresh veggies, whole grains, and some other things that don’t have sugar or yeast in them. I also found a product called Kefir which is a dairy drink that has natural probiotics, which should help kill the bad yeast. I was wondering if you’ve ever been tested for candida overgrowth, or if you’ve ever tried probiotics. I know it’s not the only thing that can cause EC, but if you haven’t been tested for it then you might as well, right? The nice thing is that getting rid of candida can be done naturally through diet (but the tricky part is not eating things with sugar). One of these days I have a doctor appointment, so I’m hoping my theories can be confirmed with a diagnosis.

    • http://www.danielxmiller.com Daniel Miller

      Hey Mara! No I haven’t tested for Candida overgrowth before..however most of the foods I eat are raw fruits and fish…I don’t eat very much junk food at all. It seems to be working well for me so far so I don’t think a test is needed at this point…keep me updated on your progress though! :)

  • Trocky2k9

    whats up daniel , im on my 8th week of nothing on my lips …, i have seen lots of improvement and no longer have the urge to put any thing on them …, i have been getting my lips wet when i eat and shower …., i will be changing my diet and will start to drink home made juices …, also run at least 1 mile a day to see if this will kick EC out my life for good …., I’m so close to being cured i think that my latest hypothesis will be the ticket to my success, keep up the good work and i will post all my pictures once I’m cured i have been taking pics every week to show my progression …,  this PROBLEM HAS A CURE AND TOGETHER WE ALL WILL BEAT IT …, any one who reads my comment and  wants to contact me please feel free to email me at trocky2k9@yahoo.com its a very hard thing to deal with and if you just need some one to vent to please email me …., thanks 

    • http://www.danielxmiller.com Daniel Miller

      So excited to hear it’s getting better for you!!! Yes we have finally found a cure I am very excited about that! If you would like to post your pictures in the progress gallery that would be cool! I love seeing people’s progress! Click forum at the top of the page to set one up. :)

  • Hans

    hey daniel, saw ur newest videos on youtube chicago is a beaaautiful city, regards from germany

    • http://www.facebook.com/mario.preis Mario Preis

      Do you have EC, Hans? I’m from Germany (Göttingen) myself. :)

      • Hans

        Yes. nearly one year now. and you

        • Mario

          I’ve had it for a little over four months now. Where are you from exactly? How old? Not many germans (I think there is one on the curezone forum) I know of so far who have EC.

          • Hans

            im 22 years old and come from hannover, hm i think the country doesnt matter with this ec. the most people who have this are young thats all what i can say.

          • Mario

            Yes, it doesn’t. I was just curious where in Germany you come from, because I haven’t met anyone with EC (and you do live nearby, that’s cool). :)

    • http://www.danielxmiller.com Daniel Miller

      Yes I love Chicago! One of my favorite cities to visit :)

  • James Harden

    Daniel i see significant improvement in your top lip and parts of your bottom. I was wondering how much longer do you think this treatment will take for your lips to look healthy again? Good Luck

    • http://www.danielxmiller.com Daniel Miller

      Yes there is def a LOT of improvement! I’m HOPING to be half way done…I would really like to be healed within 3 months…although I honestly have no idea how long it might take… :)

  • Mom

    Hi Dan!! It’s your Mom just letting you know I’m so proud of you.  And it’s amazing to see how well your top lip is looking!  Lots of progress!  I think you are so strong to be going thru this, and then to also do this website where you share your progress openly, giving others the opportunity to find support.  As I was reading thru the comments, it was amazing to see how you have taken a difficult situation and turned it into a sharing and support line for others facing the same problem.  As you put it “Motivation is key to Success.”  I am so proud to see you giving motivation and support to others, and how wonderful to see them giving it back to you and others too!  How did I get so lucky to be your Mom?……don’t know how……but I’m so glad I am!!   Love you bunches!!!   Mom.

  • Evergrateful

    Hi Daniel,
    I wanted to thank you for the magnificent page you created on
    exfoliating chelitis. I’ve struggled with a minor form of it for almost a
    decade. It all started with using chapstick when I moved to the east
    coast from California., and then from the bad habit I developed once there of constantly licking my lips. Like you and many others, I tried all kinds of ointments. Dermatologists I saw could do nothing more than recommend products containing Hydrocortisone and Bacitracin Zink, which helped initially but then stopped working. One doctor even said that I should brush the dead skin off of my lips and then apply the Bacitracin Zink.

    Finally, however, I managed to get the lips under control, but I could not figure out why they kept on peeling. When I read your blog a few days ago, the lip-peeling was minor, mainly in the inner edges. The texture of the lip was rough and uneven. Thanks to your blog, I finally figured out that although I no longer licked them, I did continue to peel the bits of skin on the lip and frequently pressed my lips against one another and sometimes pulled skin off of the lip with my teeth. Yes, this is all very hard on the lip, but it really speaks to how frustrating it can be to live with this condition.

    Well, to cut a long story short, you helped me understand that by picking on what appears to be dead skin you are interrupting the healing process. Thanks to that realization I can gladly report that my lips have healed. You gave me the hope I needed to carry out the healing that was already taking place. I should note that I did not follow your treatment to the letter. Before I read your blog, I had bought a lotion made by Weleda that contains calendula and zink oxide (calendula has
    healing properties for small wounds and skin infections and zink oxide,
    which has antibacterial properties and is widely used for skin problems,
    including acne). I applied this lotion on the lips and noticed that it kicked off the drying of the lip and that shortly thereafter, scabs formed on them. I then followed your directives of leaving the scabs alone and little by little they fell off. I should say that I did not need to apply the Weleda lotion repeatedly. I used it for no more than 2 days. After that, I kept the lips dry to the extent possible (I used a straw to drink water, for example) and lightly moisturized with Shikai Borage Dry Skin Therapy (which helps to rebuild skin). Again, the key is to not pick on the lips, keeping them dry, and avoiding using products containing petrolatum and the ones mentioned in the first paragraph. Also important is not using toothpaste containing sodium lauryl sulfate or washing them with soap.

    I’m posting pictures to attest to the fact that there is indeed hope for curing this problem.

    Again, thanks Daniel!

    Stay strong. It’s definitely possible to heal.

    • Marion Love

      Were can I find the Shikai Borage Dry Skin Therapy that you talk about in your comment? Its great to read that you have delt with EC so successfully!!!

      • http://www.danielxmiller.com Daniel Miller

        I got mine at walmart its only a few dollars

  • Hans

    hi daniel its me again, just want to tell you that im going crazy sometimes becouse acne AND ec is sometimes to much for me ;D must write it. sry, i cant talk with nobody about my situation, no one would understand
    regards

    • http://www.danielxmiller.com Daniel Miller

      awee…yeah I know it’s really hard sometimes! Just keep on chuggin through :) feel free to leave a comment anytime! If you want to join a bunch of people with this on cure zone the site is: http://curezone.com/forums/f.asp?f=403&p=71 there are a lot of supportive people there :)

  • Amrita

    daniel
      tell me about that part of lips  you used tape .how is it now.how do you fell touching it.is that fully healed

  • John

    I have a case (similar to ihopethishelps), and habe been leaving the scabs on, but applying chapstic to stay more comfortable. Do you think the chapstick is harmful if I leave the scabs on? Generally speaking, one should keep a wound moist while it’s healing.

  • Mike

    Hey Daniel, it’s ihopethishelps from curezone. I sent you an email through curezone but I’m not sure if it worked. Could you give me your email address so I can correspond with you?

    • Trocky2k9

      whats up mike can you email me @ trocky2k9@yahoo.com I’m close to curing my self using the nothing on my the lips method just had a few questions …, thanks 

    • http://www.danielxmiller.com Daniel Miller

      I sent you a reply :)

  • Dom

    Hi Dan,
    Man I have had a variation of the condition since I left school 10 years ago.
     
    I have read everything and being a perfectionist and a realist, I have really thought this through and tried many different approaches. Over the time I have seen a variety of results and today I am close to normal.  I never quite let my condition get to severe crusting or serious damage as I became aware of other sufferers on CureZone.  I was always of the opinion of less is more, and I managed to stop inflicting damage in the early stages and from then on managed the condition with a lip balm which proved to be very effective in (MANAGING) it. http://www.cancervic.org.au/store/summer05_sunscreen1/pg521
     
    The condition for me came about due to a combination of factors. And as these factors played out, It was apparent that the Lip’s outer layers (especially at the boarder of wet to dry (inner to outer)) became deteriorated, making them more and more susceptible to further damage. My lips would burn and stick together abnormally. they would go from a kind of normal, to a hard plastic like outer skin, then begin to flake and peel.
     
    The combination of factors leading to the condition included: as a kid maybe from eating abrasive lollypops against the top lip in the centre, this section began drying and peeling on a daily basis. I remember vividly peeling this daily as a kid, and sometimes it would hurt. By around the age of 18 i became more aware of this and in an attempt to cure it i began using all types of lip balms. Being a fairly self-conscious person, I also would spend a lot of time attending to the condition which makes it worse. When I began to develop relationships w girls, I was unsure of going to the next step so I would focus a lot on kissing. The kissing would  be long and sustained and i recall having very sore lips after those occasions. I then began to notice the lower lip become abnormal in appearance. I already had a large bottom lip so I was very concerned about drawing any additional attention to them. So I would apply all medicated blistex etc. Also Pawpaw ointment (which is advised not to use on mucous membrane due to the enzymes which further deteriorates the already fragile damaged lips. Now that the lips were fragile and more susceptible to outside elements – one significant holiday on my favourite beach on the east coast of Australia I managed to severely sun burn my bottom lip which resulted in blisters.  The same process of blistex, pawpaw continued for a year or so. At this stage the lips are now easily affected by tooth paste and mouth wash. Mouth wash was very damaging. (it appeared as if when layers of white skin would remove from the inside and wet dry boarder of the lips, then that loss of layers would have to be balanced out by losing the external layers as well. (think of your membrane from inside and out as one later. If it is removed at either inside or outside, then the body will ensure that the area is all one later.. (peeling inside or out)))
     
    After more years of this process and managing it with lip balms I became concerned about larger salivary glands that were apparent along the inside of my bottom lip (where the lips meet when talking). I am of the opinion that this exists either by an internal change to the glands due to sun damage radiation.. or hopefully it is my theory of the ducts taking the path of least resistance to where the skin is the thinnest and most damaged.. Some days the excretion of saliva would be more apparent meaning that the lip would be more outward due to swelling – which got me thinking about the structure and dynamics of the lips in association with the lip balm use.
     
    I should also mention that I went through periods of avoiding water and mouth movement(social interaction eating drinking) and I observed crusts (calluses) forming which made the lips feel very awkward (in that you can’t feel the contact, and can feel the lack of elasticity in these areas. (a horrible feeling)). Having observed many people with dry lips of similar variations of normal.. and understanding that people generally are not aware of any issues they may have and go about life as normal. So I took this approach and showered, drank and ate carelessly. This allowed normal exfoliation and peeling to occur reducing the dry skin naturally.. The water in the shower was important to remove outer layers of dead skin, being careful not to go down to the red raw layer. – making life a lot more manageable.
     
    Over the last couple of years I have been successful in managing the condition with the Cancer Council lip balm – using less and less of the stuff up to only 3 times a day or so., but I am aware of the constant covering up of the condition. I have also become aware of the potential impact of lip balm (constant moisture on the lips) has on the natural dynamic and structure of the lip.  If you observe people with normal lips you will often observe the difference in dry and wet. It is a defined boarder where the lips are naturally different from the inside to the outside. I believe that when using the lip balm, it leaves the outside lip less stable or strong, and the tension that is usually stored in this area when smiling, talking, living is no longer there. With the constant lip balm, the area becomes unnaturally elastic further allowing the lip to protrude outwards. Like if you stay in the bath for too long your skin expands, becomes soft and is easily removed.. The lip is constantly moist and is progressively un sure of its natural structure with no definition of wet and dry and a the area which was naturally the wet area, is now protruding outwards where it is not meant to be.
     
    I believe that the continual use of lip balm and constant moistness of lips ruins the natural dynamic/structure of the lips.  The lips need to bring back their natural structure caused by the wet inside and dry outside. The constant use of lip balm also creates a thriving bacterial area.  The skin has to adapt to a constant moist environment.. They repeat the natural peeling process excessively, and lose their natural elasticity and melanin (sun protection).
     
    I have not been using lip balm and they are improving. I believe less is more and less attention is definitely going to work. Natural movement of the mouth and lips, talking drinking, swimming, running is natural.
     
    Dan, there is no point in allowing all the dead layers to remain on top of dead layers. If I were you I would continue with your plan but maybe go hit the ocean, or lake, or pool and swim 1 or 2 k’s. breathing and moving naturally. Allow the outer layers to go. The more you have attached, the more leverage there is for the whole lot to come off exposing the red raw section. If its only a couple of layers, then it will be less likely to abruptly peel off, easier to manage, it will be more elastic and allow you a more normal life.
     
    I have lived with a variation of this condition for 10 years, and I understand the way it consumes everything, life, relationship, personality, family, work, progression, development, happiness, contentness. It is a major setback and will make anything else in life petty compared to this condition. You deserve to do all you can to rid the condition.
     
    I hope a lot of this makes sense.
    Regards,
    Dominic.

    • http://www.danielxmiller.com Daniel Miller

      Hey Dominic!

      Just wanted to say awesome write up, thank you so much! Yes I totally understand what you meant about the inner lips not knowing where the line between the dry and wet areas were, so they start ‘building’ themeselves outward, as the chapstick makes them think they are still inside the mouth.  I do, however, think it was very important in my journey to let them dry for the time I did (maybe not as long, but it was definitely important) because it helped the lips to ‘figure out’ where they are supposed to be.

      I’m so sorry to hear you’ve been dealing with this practically your entire life, the past few years have seems like decades to me, so I can only imagine how long it must feel for you! But I’m glad to hear that they are improving, I would love to see some pictures you may have, if you’ve taken any! I have a progress gallery section if you would like to post a couple pictures in there, I’m interested to see how yours look.

      As far as letting the skin build up continually, I believe getting them wet a few times a day has really helped with the build up…as they are no longer building up like crazy anymore if you look at my most recent pictures…But there isn’t exactly a way to remove the skin that has already built up without removing the entire layer underneath as well since it is still attached…I unfortunately must wait until it is finished by itself and ready to come off….but it is certainly getting better!

      Thanks again for what you wrote, it gave me some ideas and other things to think about! Very impressive! Keep me posted on how you’re doing, and any other ideas you may have.

      -Daniel

  • Trocky2k9

    Daniel can you make a video on how to post a progress photo gallery on your website i tried i couldn’t figure it out  …, thanks 

    • http://www.danielxmiller.com Daniel Miller

      Sure! No problem. Did you try to follow the topic I created?

      • Trocky2k9

        yea i tried that ., with no luck …, 

        • http://www.danielxmiller.com Daniel Miller

          it’s okay, I made the video for you! Check it out, let me know if it helps! http://youtu.be/Ak3ExqmXXyk

          • Trocky2k9

            I seen the video I’ll make a gallery soon …, thanks

  • Help Wanted

    Hi Daniel,

    I have been reading your blog and following your method to cure EC. At the moment I am in a position of work where I have to show my face in public… a lot of the time.

    I don’t want to peel off the dead skin but I don’t like it showing either, so I apply E45 cream to my lips to smooth it down. The cream helps do this, but I am scared that it will interrupt with my treatment if I keep applying it. I also find that as soon as my lips begin to peel, areas which have already peeled immediately begin to grow new hard layers of skin. Is this the same for you?

    Also, should I risk not applying the cream to my lips and letting the dead skin show so that I can heal my lips properly?

    • http://www.danielxmiller.com Daniel Miller

      Hey! I don’t know about using creams on the lips…I used them for years and they only got worse…I can only recommend what I am doing, which is just using water. Hopefully they start getting better for you! Keep me posted!

  • guest

    Hi Daniel,

    When I have the time I’ll probably join the forum and share my story, but for now I just want you to know I think you are doing to this the right way. Hopefully you are eating right and drinking plenty of water throughout this process you are going through coupled with exercise. What you’re going through must be hard at times, but you are doing the right thing and are an inspiration to others so keep doing as well as you are now. Keep your diet healthy.

    Good luck and take care 

    • http://www.danielxmiller.com Daniel Miller

      Hey! Thank you so much for your support!! Really means a lot :) Yes it’s very hard at times, but I am getting through it. I couldn’t have done it without the help and support of my friends, family, and everyone on the internet. Also  my coworkers have been very kind as well. I am eating and drinking right! I’ve become so much healthier since I started this, so there are definitely some great things that have come out of this unfortunate event in my life…and yes that would be awesome if you shared your story! I love reading other people’s progress/story.

  • Hans

    hey, saw u newest vid. on youtube, dont be lazzy man :D train is the best think you can do I dont know if its helping for the lips but it definitely help to reduce your stress level.

    i dont peel my lips for a while, but today on the barbecue with some friends upper lip peel ….
    dont see much improvement on my own lips but hope is still there, I pray for us

    bye

    • http://www.danielxmiller.com Daniel Miller

      You are absolutely right about it reducing the stress level, ever since I went on the two hour bike ride I’ve felt so much better than I have in the last few weeks! It’s been great :) I’ll make sure not to be lazy again…lol Just keep going at it, if you need support feel free to come here anytime and write me, or the others!

  • Pickett_jaye

    Daniel I love this site so much! Thank you for making it. It’s so inspiring :)

    • http://www.danielxmiller.com Daniel Miller

      Awe thank you Jaye!!!!! :) :) :) Ur welcome, haha. Glad you like it! I’m uploading a video right now btw! (well still editing it…should be ready in the morning!

  • finto

    daniel,
         happy to see your lips improving…..i have some queries

                            how often you wet your lips daily(time gap)???
                            do you believe crust thickness decreasing is a sign of healing??
                             do you think applying oil over lips make ec spread to other parts or is it a part of healing??
                             any finally do you think slight inflammation  before a part start healing??                                                                     

     

    • http://www.danielxmiller.com Daniel Miller

      Hey finto! I actually only wet them a few times a day…I would like to do more, but sometimes I just don’t get around to it…yes decreasing thickness over time is definitely a sign of healing! As far as applying oil on the lips, I would have to say I did it for years, so it appears to cause it to not heal properly, thus getting worse. And as far as inflamation, I believe the lips will become a bit swollen while healing, due to the fact that they are so damaged.

      Thanks for your comment!

  • Jeancosgriff

    Hi Daniel – my son is 17 and has this – he did the leave alone for a couple of months and didnt’ see an improvement.  I told him he needs to do longer.  Your top lip looks almost healed to me!  That is great!  Is the picture the worst it gets now?

    • http://www.danielxmiller.com Daniel Miller

      Hey! Yeah pretty much, the center still builds up, but it’s about to come off, so it’ll look a little darker over the next couple days, but will peel soon…and yes a couple months unfortunately doesn’t seem to be long enough for most people…hopefully my top lip can be healed soon completely!

  • Guest

    Daniel, your information is fascinating. You are a real research scientist! You asked yourself a lot of questions that also got me to asking questions. Your attempt to think the thing through led you to the conclusion that you had to quit putting stuff on your lips to keep them moisturized. I never would have come to this conclusion myself, but you are very convincing. I have only the beginnings of this problem. I couldn’t figure out why it was taking so long to heal, but as you pointed out, you can just yank skin off your lips without injuring them. A question has occurred to me as I am a woman: should we be wearing lipstick if we have this problem? Until the lips heal, are we compounding the problem by putting on lipstick?

    Your starting-out lips looked so gross that very frankly, I could not bear to keep “watching” your long video. I just lowered my head and “listened” to you instead. But you took so long to say things that I frankly think your site would attract more people is you simply showed one still “before” picture and explain at the outset that the healing is still taking place and that visitors can watch it in progress on youtube (give name of the video). Then what you said can simply be in print on your blog. The light blue choice of the words that are on your site is difficult to read. Make it black on white, or if you are into blue sky, black on the sky background. I can read a whole lot faster than it takes to hear you go through your whole monologue. The idea of video is to see something happening. Your talking is nothing “happening.” It is very difficult to sit through the whole thing. Please redesign your site so that readers can get to the point faster. I have no doubt at all that many have left your site and few are signing up because of this.

    However, I stuck it out and found out all your valuable information. It was valuable. Let my lips heal themselves. How simple! We put creams and all kinds of gunk on our skin, but apparently the lips are a whole different environment. I would also suggest that you have different sites for your different interests. You can always put dreams, etc., onto blogspot and leave your own domain for the lips. If I am turned off by the parapsychology bit, it might steer me away from your site (I’m speaking as some surfers on the subject might think). I think it’s confusing to mix up all these topics. It’s like saying, if you like my ideas on lips, you have to like everything about me and come into my personal world. I don’t want to do that.

    • http://www.danielxmiller.com Daniel Miller

      Hey there! Thank you so much for your comment! I always love to hear feedback from my readers. I will attempt to answer your questions/concerns in the order you wrote them.

      I do not recommend lipstick if you are trying to heal your lips, Lipstick will unfortunately have relatively the same effect as chapstick, and will remove the protective layer of skin that will be building up, which will cause the process to restart over and over.

      I believe you are talking only about the introduction video that I created at the beginning of this page. Yes the video is long, and I will remake the video once I am healed so that people can actually see the results. The only reason I haven’t done so yet is because I am not healed…I only opened my site up so people like me could come here. Whether the video is gross or not will not stop people who have lips like us from coming, it will only stop people who have normal lips from coming. But yes, I already have plans to remake the video once I actually have been cured :) . You also mentioned it could be in print on my blog, the cure is on my blog, actually. You are not required to watch any videos at all.

      I will definitely look into making the text darker as I see what you are saying. I never personally had trouble reading it, and no one ever said anything, but now that you mention it it could be darker. Thanks!

      And about the parapsychology topic you mention, I have separated my sites. The only thing I did was mention maybe once or twice in my weekly vlogs (which are my experience going through this…the videos are nessessarly directed for how-to, with the exception of brushing your teeth one.) I created this site a long time ago, and wanted to create a single page dedicated to my lips…this site is still on my blog, but no links are given that actually take you away from this page to my dream site (except for the menu bar at the top). The only other page I can believe you may be referencing is the forum, which I could easily change to reflect only peeling lips part if you like. So yes, my domain danielcmiller.com is actually my blog. Peeling lips came later. This site is about me in its entirety…if you aren’t interested in parapsychology you are not required to click into the dream site, which is actually an entirely different website if you click the link at the top. If you’re suggesting I remove the link completely from my entire blog…I personally don’t want to do that.  But if you’re just referring to me talking about it in my weekly vlogs then I agree, and I had no intention of mentioning the subject again in my vlogs…but I don’t actually talk about it on my peeling lips page at all.

      Thank you for your comment, and if I missed anything or confused anything please let me know! :)

    • http://www.danielxmiller.com Daniel Miller

      Oh and I completely forgot to mention. Running three different servers would triple my costs per month, which isn’t exactly a good idea at the moment.

  • Guest

    Hi Daniel, it’s great that there are people like you who have the courage to step out into the world with such problematic lips. I too have the same problem and am sometimes so self conscious when going out into the public (unfortunately then i resort to manually peeling off my lips or apply the dreaded, horrific, evil – ‘chapstick’). It takes guts to do what you’re doing. Keep up the good work!

    • http://www.danielxmiller.com Daniel Miller

      Thank you :) that means a lot… Yes it’s difficult, but this was really my last resort as everything else made it worse and this is the only thing that has shown results :)

  • Fenerbahcestar

    Yooo how do you deal with someone ur in love with, do u have a gf or something like that ?

    • http://www.danielxmiller.com Daniel Miller

      I haven’t met anyone new since starting this…I have my closest friends, and they are very supportive. I suggest waiting to find love until you’re healed, if you already have love then they shouldn’t mind. :)

  • Sercan

    Heyyy! it seems the vermilion border of my lips goes white after a shower, nd i jus see tiny particles of white stuff on them. I assume this is just dead skin and underneath this dead skin, healthy skin is growing so itll be back to normal right? My EC is curing immensely since doing the leave it alone method for 5 weeks now….1-2 more months and this will all be over inshallah……but do u have any explanation for the vermilion border part??

    • http://www.danielxmiller.com Daniel Miller

      I hopeso! I don’t have an answer for that one, as mine do it too…But yes that is what I believe will happen…and congrats so glad they are starting to look better! I would personally give yourself a little bit longer than a couple months…just so you don’t get dissapointed :) keep me posted!

  • Sher

    hi Daniel!

    how are you? I am also suffering E.C. from a last couple of years. I’m living on opposite side of the globe, but my story is dramatic similar with yours. I’ve experimented a lot of things, along with a lot of advices from several dermatologists, but unfortunately nothing work even at a satisfactory level. They start to peel of and examine the dead skin, which is disastrous for healing the lips. Every cream/balm i ever used has its own impact but not healing. Some shows a little improvement but at maximum for a weak. So, this is not the healing.
    What i’ve observed is, the surface tissues along with their origin are hyperactive in tissue formation, and the surface tissues are so week that they can’t manage to bear the hard atmospheric conditions for them, so neither they can bear atmospheric circumstance nor can stop the cell formation cycle. At the end, the cycle never stops.
    So, what we should do, is to give time to strengthen the surface tissues so they can be rehabilitated soon.

  • Sher

    I would like to say there is about 100% similarity of my case, i’m also from same age group, my problem become severe too in 2008.

    There is very important point to note that if we have healthy natural diet, it will strengthen the immune system which will give relatively better results. Actually not to peel off the dead skin cells is a way to strengthen the inner skin sells to be strong for the time when they will become surface cells.
    Water or any non-oily fluid is very dangerous for E.C. as it reacts with surface cells and peel off surface cells more rapidly.  Though no dermatologist advised me very clearly about this point, but this is essential.
    Any cold cream to wet and soft the skin is appropriate to wet the dead tissues to not to peel off. This would also looks better then the condition of you today.
    After all, in my opinion, The cycle will be slowed down then stops and it will take a long time, (May God Help us!) for a natural way when we are not taking any sort of medical treatment.
    INSHALLAH! i will update time to time about my condition so that any acceptable solution may be thought about.
    I don’t like poor doctors as they are even not able to this apparently harmless but one of most embarrassing sicknesses.
    We should share our experience to help one another!

  • Hans

    just watched your new video, like the dramatic sound on the backround :D . your skin looks very healthy I see that you eat healthy and ur upper lip look good too. Keep at it!

    • http://www.danielxmiller.com Daniel Miller

      Thank you :) Glad you liked the music, I did too! haha. And yeah it’s getting better!

  • Sercan

    Okay thanks man im relieved im not the only one with that issue, my E.,C is hardly noticeable, theres just one crust thats not in line with the more healed parts of my lips soo this crust has been there for like 6 weeks, when it falls off id say 1/5th of my bottom lip is hard but its hardly noticeable….also i looked under my moustache and I see white skin falling off like its normal dyed skin, not E.C infected…are u sure when this comes off if i just leave it alone itll be back to normal? :D

    • http://www.danielxmiller.com Daniel Miller

      Yeah it should eventually :) that’s what mine is doing!

  • Jibbyjam

    as weird as this sounds do u think masturbation could affect the healing process of leaving ur lips alone in any way ?

    • http://www.danielxmiller.com Daniel Miller

      Absolutely Not…

  • Stripeyemu

    Daniel.

    My name is Katie. Could I have a moment of your time? I developed exfoliative cheilitis at the age of 14. I am now 23. When my EC began I did not use lip chap, lip balm, or lotion. I did not use it prior to developing this condition, and, I did not use it for two years after onset. I also did not peel my lips at all for two years after onset.

    This is a disease. Dogmatically espousing that EC is the result of a lip product addiction is insulting. It is judgmental and false conclusion that I have had to hear from ignorant strangers and acquaintances who inquired about my lips over the years.

    I know people who have regularly used lip products their entire lives, from ages 17-60, and never go on to develop this. I am someone who did not touch lip products, not even Vaseline, and developed it anyway. Ignoring these facts ostracizes people who have EC. You are denying the experiences of others and avoiding facts in order to support your philosophy.

    • http://www.danielxmiller.com Daniel Miller

      Hey, thanks so much for your comment! Since joining the forum on CureZone (not sure if you’ve heard of it before) we have discovered that there are many ways to get EC. The main cause appears to be trauma-based. I never said EC is caused soley from chapstick, I could quote many places on my site where I say this as my main example, and, at the time of writing this site, had only heard of people getting it from chapstick. Yes, there are different ways to get EC, but most people appear to get it from chapstick. The actual cause is still unknown, and there is no way to know if it truly is a disease or not. I’m sorry to hear that you have this as well, it’s definitely a horrible thing to go through! But no one TRULY knows what EC is, how it begins, or how to really cure it. That is what my site is for, to try to explain at least one form of EC. Not everyone has to have the same type of peeling lips. Just like not everyone who gets red bumps on their skin has the same type of red bumps, some are chicken pox, poison ivy, poison oak, etc, there could be several different types of EC, but they all look similar.

      I DO still believe either way that the only way to heal yourself is to figure out what is causing the peeling/inflamation, and THEN stop peeling the skin off. That is what my goal for this site is…

      Let me know how everything goes for you! I hope we all find an answer soon…Best of luck,
      Daniel

  • http://www.danielxmiller.com Daniel Miller

    Hey Dom!

    Thanks so much for your comment!

    Yes, I have figured out that it’s going to take a long time to heal from…I initially thought it would be less than six months, but I was definitely wrong about that, haha.

    I’m so sorry to hear that you’ve had it for so long! I’ve had it since 2008, and it feels like forever!

    I’m glad to see you are seeing improvements over the last two months, that is great news! And, yes, my face too is actually looking so much better without having all of those chemicals from lip balms and chapsticks on it.  I am not sure if winter has anything to do with it, as I live in Florida…but I did live in Indiana until I was 18 and didn’t have this problem (only regular chapped lips).

    You are probably right about things being more tender on my inner lips, however, I have been continually dealing with this issue since that start, but last week was definitely the worst. And, yes, I agree on the skin dying that is next to the already dead skin part.  I did want to mention that my inner lips are doing so much better this week! I’ve been off work since Sunday, and haven’t been talking and smacking my lips together all day at work…they feel a lot better! I am plnanning to get FMLA for my job and only work 3 days a week, in hopes that it will help my lips. I have to get healed.

    That is really interesting about the zinc, and please let me know your progress on it! I, however, have made a strong commitement to use no ointments on my lips…so I’ll have to stick with water and trying to keep them from touching. The plastic wrap sounds pretty cool though! I’ll have to give it a try.

    Thanks for your comment, and please keep me informed of your progress!

    -Daniel

  • Anonymous

    Hi Daniel,

    Thank you for creating this website.  I have been following you for 3 months and wait every week to see your updates.  It definitely appears as though you are making progress, congrats!  I am a 29 year old female and have had this condition for 5 years.  I have two questions. 1) I noticed that you removed IHOPETHISHELPS from your cured list.  Just out of curiosity, did the leave it alone treatment end up not really working for him?  This information would be helpful. 2) I have been leaving my lips alone for 2 1/2 months. First month I used a disinfectent just at night to keep it from getting infected but stopped after I noticed no change at all.  Now I have left my lips alone and put nothing on them at all for 6 weeks and am not getting hardened crusts like you.  Am I supposed to be getting the crusts?  When did yours develop?  How did they develop?  I am wondering if you have to have the crusts inorder to heal?  Mine just keep peeling up and flaking at a normal rate.  I am noticing little to no changes from the leave it alone treatment at this point.  At least it is not getting worse, knock on wood.

    • http://www.danielxmiller.com Daniel Miller

      Hey! I just want to say how much I appreciate your support, and continuing to check back on my updates. I am most definitely making progress, my bottom lip is doing so much better as well! I will post a picture tonight, but it APPEARS as if the line may finally be receding backwards from the outside-in…it hasn’t built up skin in a while, so we’ll see what happens! Don’t wanna get my hopes up yet though, we all know how that goes! haha.

      Also so sorry to see you’ve had it for so long, I’m at 4 years so we’re pretty close…and to answer your question, yes, unfortunately ihopethishelps’s EC came back, you can read about it here: http://curezone.com/forums/fm.asp?i=1979989#i but that doesn’t mean leaving them alone is still the wrong answer. We have recently been finding out that EC could be caused from a myrad of things going in on the inside, and it is required to fix whatever is causing the issue, and then leave them alone after that. That is my belief. I still believe if you fix the issue but continue to peel your lips, then you will not succeed at healing your EC. I do not know 100% though.  I think I will have to set the requirement to at least six months being 100% healed before we can say you are fully cured.

      For your second question…yes I don’t think using a disinfectent would be nessessary, the body knows how to kill off germs…just live normally (to the extent possible) and you should be fine. Now to answer your next question: If your lips are peeling at a rate that quickly, then you might either a) not have it very deeply and the flakes are it being almost healed, like you can see on my outer lips.  or b) something is causing the skin to peel prematurely. Pay close attention to what you are doing when they get wet, are you touching them a lot? Is your diet good, I have radically changed my diet since I started this. Let me know anything that you think might contribute to them peeling early. But, no, I don’t believe crusts are ‘required’ to heal. But I do think it will be something everyone healing them this way develops.

      And I’m glad to hear they are at least not getting worse!

  • Jibbyjam

    When doing the leave it alone method and mositurizing ur lips with practically water every 3 hours…does it matter how many times u gently splash ur lips ?

    • http://www.danielxmiller.com Daniel Miller

      I don’t believe so…I’ve personally went back to doing it just a few times a day as it was causing too much pain while at work and talking because the water dried so quickly. But I honestly am not sure what the answer to your question would be! We are all still trying to figur this out :) feel free to try it and share your experience!

  • Jibbyjam

    do u think theres any point at all of going to my 3rd dermatologist appointment!? I know its gonna be pointless because im going to continue doing the leave it alone method since my lips are improving more in the past month than theyve have in 2 years…they cant really give me any tablets for vitamins or whatever coz those test results came out really good..do u see any point in me going? P.S the last time I went the dermatologist didnt know what was causing it, was asking questions like do u use a mouthguard or allergies to toothpastes which shows shes clueless and also even pulled a whole crust of my lip just for examining…i dunno what to do but i dont feel im gonna benefit from anything the derm says especially since i threw all the steroid creams away that she gave since they were only making my issue worse!

    • http://www.danielxmiller.com Daniel Miller

      I can’t tell you not to go to your appointment, but if it were me (which has been this same scenario in the past) and my doctor wasn’t helping me, and only making things worse, then yes I would skip the appointment. Which is what I did. So far what I’ve done has only improved the feeling in my lips and look (of course minus the crusts haha) you get my point. I don’t take vitamins or any artificial supplement (that’s just me though, a lot of people do)…I also eat a lot of fish and fruits to make up for it. I think the body does a better job at recieving nutrients if they are actually from food instead of a tablet.

      Just put it like this…what is your dermatologist going to do the third time around, that they didn’t think of doing the first and second?

  • Jibbyjam

    Also another last thing..i have just one single crust on my bottom lip now, that has gone down in size immensely, only covering less than half my bottom lip…how long left do u think i have till this cures completely 

  • Jibbyjam

    Also one last thing…on my bottom lip i used to have like 5 crusts along which were seperated by gaps when i was applying steroid creams. However now ive done the leave it alone method, this size has gone down immensely and has formed just one crust covering less than half my bottom lip…how long do you think i have till this cures completely mate ?

    • http://www.danielxmiller.com Daniel Miller

      I’m not even cured myself… So I have no idea to be completely honest. Hopefully not too much longer!

  • Jibbyjam

    Im nervous for starting college with this tho man…its gonna be embaressing all my friends asking what happened to ur lips blah blah blah.. do u have any advice, thank you 

    • http://www.danielxmiller.com Daniel Miller

      I personally have taken the fall semester off…I can’t bear to go to school looking like this. I only go to work because that isn’t an option in my case, but I do find that everyone is very supportive, and it has gotten easier the more I talk about it with others. If you are going to college, then my best advise is to just keep doing it. That’s the only way it is going to get easier…

  • Jibbyjam

    do you think going to the beach tommorow and catching some sun will do me ny good, i feel soo much more comfortable at home where i can control my day and eat and drink alot easier, do u think if i go to the beach till do my lips any good ?

    • http://www.danielxmiller.com Daniel Miller

      Yes, it seems that whenever I go outside and get some sun it helps my lips…so I personally recommend going outside, especially doing activities like running or biking.

  • William

    Do you have any idea of whats better if you have single crusts along ur lip or just one single crust…sine doing the leave it alone method this is whats happened, is the fact that all the crusts have joined to form ONE crust and the fact that a cut in the middle of my top lip which used to be their until a cleared up since doing the leave it alone method a sign of things gettting better right?

    • http://www.danielxmiller.com Daniel Miller

      Yeah, if something has healed then that is great progress! It does appear during the healing stage (which you can see from my progress) the lips will form a single crust, for quite a long period of time…however as time goes on and the lips heal the crusts appear to start flaking and becoming separated…as you can see in my most recent pictures.

  • William

    BTW i was telling you about how i only have one crust on my lip now with things getting better…isit normal for this crust to have stayed on for 7 weeks? thanks :)

    • http://www.danielxmiller.com Daniel Miller

      As far as things being normal…I don’t think we can answer that one yet :) …there aren’t enough case studies for this way of healing to consider anything normal, but my personal opinion is that is perfectly fine :) Keep me posted on your progress!

  • William

    Yeah college in england is the 2 year step before we go university btw. Also ill probably just have to laugh about it with my friends coz im sure they’ll be supportive..i dunno what id do if i had to go to uni with this sooo its best to have this for the next 6 months than for many many years to come wouldn’t u agree :)

    • http://www.danielxmiller.com Daniel Miller

      Yes! I definitely agree…although I’m hoping it’s not too much longer…but I have no idea how much longer…

  • William

    Also I still get worried about this not curing tho even with the leave it alone method

    • http://www.danielxmiller.com Daniel Miller

      I personally have my worries too…I mean I’m at six months and still going at it. Only time will see. Keep checking my website as we may have some additional information into this condition in the near future.

  • William

    Btw do lots of people at work or outside look at you and ask about ur lips ?

    • http://www.danielxmiller.com Daniel Miller

      Look, yes…Ask, not very often. But I try to not look at people’s eyes, and that seems to work pretty well for me.

  • William

    whats the max amount of time a crust has stayed on ur lip mate ?

    • http://www.danielxmiller.com Daniel Miller

      A month and a half I believe.

  • Keiron

    How do u deal with with people looking at ur lips in public, what thoughts do u put in ur head to not think about them ??

    • http://www.danielxmiller.com Daniel Miller

      I try to not think about it. But I just say to myself, everyone goes through things in life, mine just happens to be on my lips. I can almost guaruntee you the person looking at you is bothered by something about themeselves as well.

  • Keiron

    Could u please further explain the tape method thing u did, how did it work and should i give it a try ?

    • http://www.danielxmiller.com Daniel Miller

      Hey there! I don’t really think it helped much to be completely honest…but if you want to try it, all I did was put top on the inside of my lips and just left it there, it was a pain to get on at first…but I don’t think it really helped…

  • JayeJaye

    You’re doing so well Daniel. Keep it up! :)

    • http://www.danielxmiller.com Daniel Miller

      Thank you Jaye :)

  • Anonymous

    How should I deal with this in the winter, do you think its gonna make my lips dry with the cold weather..will just leaving them alone be fine at this time?

    • http://www.danielxmiller.com Daniel Miller

      I think you’ll be fine, I had no problems last winter, however I do live in Florida, but it still gets cold in the evening. (I did this on my first attempt last winter)

  • Anonymous

    I still keep getting doubts about this not working man even tho its doing sooo well..a guy from the curezone website got crued after doing this for 9 months nd got it back instantly, im worrying this might happen to me :/

    • http://www.danielxmiller.com Daniel Miller

      We are currently working on alternative theories surrounding Viruses and Warts as the cause to EC. I still believe leaving them alone will treat it eventually, however we may soon have some additional information on this condition and quicker ways to heal it.

  • Anonymous

    Since doing your leave it alone treatment have ur tops crusts of ur bottom lips closer to ur teeth came off at al? like whats happened with ur bottom crusts?

    • http://www.danielxmiller.com Daniel Miller

      Not really, the crusts close to the teeth don’t really build up because my lips are touching each other a lot…so they don’t get the chance…the build up happens outside though…

  • Anonymous

    Since im about to start college in like 4 days, eating at lunch times is going to be hard for me soo do you think I should skip eating meals at lunch time and just make a big bowl for fruit like(peaches,oranges,banana,pineapple,mango etc) and eat that in addition to splashing my lips with water before my next lessons starts at the end of lunch…Do you think this is a wise thing to do since i wont be eating a normal lunch….for dinner when i come home ill eat a salad brown rice and chicken/salmon……would u suggest me doing this bro? :D

    • http://www.danielxmiller.com Daniel Miller

      That sounds like a good idea to me! Packing your luch and eating alone is a really good way to eat healthy and also not have to be around others if you are too embarrassed…keep me posted on your progress! The foods you mentioned sound just fine.

  • Dv8r19

    Hi Daniel,  I have been dealing with EC myself for a little over a year now & have gone through similiar things to try to cure it.  I went to 4 different Derms all of which kept throwing Creams and pills at me to try to fix it.  None of which worked.  They tried Anti-fungals first thinking it was candida.  I went through 3 different creams and 3 weeks of pills at the same time.  No improvement!  Then they tried steriods….creams and pills for 3 weeks……no improvement!  Then they sent me to the head of Derm @ Emory in Atlanta who did Patch testing which had No results( No Allergies) Then he tried injecting my lips with Steriods (painful) which didn’t help either.  Then he sent me to an Allergist who did Scratch test all over my back with NO results (No Allergies).  So here I am 13 months later, $5000 broker, and worse if anything.  I have thought about trying your technique many times because my lips feel the best when dried out.(no burning or swelling)  But I am way too embarresed.  I made it 2 weeks and had to get the scabs off to be able to go back to work. 
    @a598544d0fd80e382ef6df8ebaaa2f39:disqus 
    You are very brave to deal with it for 6 whole months!!  My lips look exactly like yours did in the first pic you posted.  But I wipe the skin off after I shower every morning.  When you compare all of your pics do you still feel like it is getting better?  It doesn’t appear to be much better just different stages of the same over and over!  I try to stay positive, but my self esteem has dropped majorly and I have even reached a point of suicidal thoughts.  Having a daughter has kept those thoughts away, but I can’t say I don’t still think it from time to time.  I plan on joining the facebook group, but don’t want anyone to see me.  I will also subscribe to your youtube.  Keep up the good work, you are doing great with the experiment weather it is working or not.  @ least we will know one way or the other.
    @a598544d0fd80e382ef6df8ebaaa2f39:disqus 
    Also how long do you plan to keep this going?

    • http://www.danielxmiller.com Daniel Miller

      You are correct, and sorry to hear you have this too :(

      As far as it getting better. Yes it does repeat the cycle over and over, however the crusts no longer build up AS MUCH, and they take a lot longer to actually build up. Those are the two main differencees. The top lip on the sides are nearly healed and never build up large crusts like they used to…so I know some progress has been made, not much but some…

      And yes please stay positive! Negative thoughts and emotions seem to make this worse…just try to live life and be happy and thankful for everything else! I will gladly add you to the facebook group, it’s private and invisible group so no one can see that you have it UNLESS they are ALSO in the group. It’s completely hidden from everything.

      We also may be having a break through in this so if you don’t want to start my treatment, feel free to hold off for now. I will be updating my site as we start getting more information on the new discoveries we may be finding!

  • Hans

    hey daniel, what is the first thing that you do when your lips heal :D ?

    my plan is to bite with mouth wiiide open in a apple and second to go swin

    regards

    • http://www.danielxmiller.com Daniel Miller

      haha, mine will be to kiss someone!! lol and then eat a big burger!! :)

  • Guido

    …I wonder if all us EC sufferers have it because we live in temperate climates???

    • http://www.danielxmiller.com Daniel Miller

      nah, there are a few who live in Arizona,  Australia, Tropical (me, Tampa) and a few others in the UK that I speak with on a regular basis…climate appears to have nothing to do with it…from my experience.

  • Anonymous

    Tbh i can do this for 4-7 months or however long it takes to get them fully healed again, the main problem for me is my first day at college, gradually after a week Ill be able to handle everything since everyone will not be surprised, but the first day nd the next few will be really tough, how did u find ur first day or first week at work whilst doing this? Do you have any words that could help me? :) all the best

  • Anonymous

    Also dont give up on what ur doing, its the ONLY WAY and uve done amazing so far 7 months if u count the month u didnt count on ur pics. Also I found out that guy on curezone who got better after 8 months of this said a week after the healthy pic he posted, his EC returned…im guessing he was never cured in the first place but im sure this is the way to get cured of this, all it is, is repairing several layers of the lips, no disease whatsoever since my tounge was found posotive for no yeast infection aswell as all my insie vitamin,zinc and iron levels being good :)

    • http://www.danielxmiller.com Daniel Miller

      I’m counting full months :) If I started with 1 then there wouldn’t be the first 3.9 weeks that it takes to get to 1 month. That’s why I started with zero months, because 1 day, 0 months.  But confusing stuff aside, yes he was cured for a few weeks…I’m not sure exactly what happened and why didn’t continue to leave them alone even after it returned to see what happened, but hopefully we’ll have a little mor documentation with the several people trying it at the moment :) .

      And glad to hear everything is looking good on the inside! That’s great news!

  • Anonymous

    leaving ur lips alone is sooo much more easier yanno man, instead of panicking how they look going to a mirror and putting creams on every 5 hours….this is the best method to take 

    • JayeJaye

      I agree. Leaving your lips alone means you don’t have to be worrying about applying lipbalms all day long. And also your lips don’t hurt because they’re not raw from the skin coming off so often. 

      • http://www.danielxmiller.com Daniel Miller

        And I agree with you :)

    • http://www.danielxmiller.com Daniel Miller

      haha yes it is easier! But it’s more embarrassing…I guess it’s a trade off :)

  • Anonymous

    Also my lips always feel dry after an hour of putting them horrible creams on, they feel much better now i leave them alone man! especially the inside

    • http://www.danielxmiller.com Daniel Miller

      Awesome news!

  • Anonymous

    I remember all the time last year when the skin came off my lips, the skin underneath the scabs was all raw red and sticky and a little painful lool, but now after doing this method for 2 months or something when my lips peel its nowhere near sticky or irritated whatsoever, just abit red, this is good progress right?

    • http://www.danielxmiller.com Daniel Miller

      It sounds like great progress in the right direction to me!

  • Anonymous

    Do u think not eating at lunch times will have any effect on my healing process mate ?

  • Anonymous

    Also whats this liquid that u keep talking about? Coz i dont have it but do u think that only more severe cases of exfoliative cheiltis have this liquid stuff underneath their crusts?

  • Anom

    Hey Daniel, 

                  I know you may be disappointed with not getting better results in 6 months but besides from your lips you really showed true character and bravery as a person.  There are brave and genuine people we may see on TV or wherever who happen to look nice too but you are truly an inspirational person.  I know this is not a deadly disease or some horrible tragedy but in a world where looks and image have become ridiculously important you are a truly fantastic person.  I wish you the best in your recovery and know that you will make it there even if it takes longer than any of us would hope.  Thank you for inspiring all of us and showing that what is on the inside matters a lot more.  Best of luck.

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much, that really means a lot to me! Yes, I was a little disappointed after six months and still not being healed…but I’m counting on the next six months to be a lot better! :) Even if I’m not healed I’m just hoping that the huge crusts don’t still build up so I can at least go back to my other job…and thank you so much for the compliment, I’m so glad to be able to share my experience with everyone, and have them share their experience with me as well.

      And the best of luck to you as well, friend :)

  • Tarik

    I just saw ur videos thank you for ur answers man, helped alot! Btw why are people on the curezone website still using creams, cant they understand that all its doing is making things worse, they should all just quit htme creams, leave it alone for a year and have a good life for the rest ! 

    P.S ur an inspiration man, i dunno what id be going through and the hell through college right now if i didnt see ur page and stopped all my cream treatment…coudlnt have done this without ur help and advice thanks alot man!  One day id actually like to meet u when where both cured coz i really wanna go america one day! thanks alot man, inshallah u get cured ASAP!

    • http://www.danielxmiller.com Daniel Miller

      I think a lot of it has to do with uncertainty. There isn’t 100% proof that it works for everyone. There was a person who left them alone just like me and his lips never got better…he stopped the treatment a couple weeks ago…but for most people it seems to help. There must have been something else that was keeping his from healing. But I still believe this method is required after you figure out what is causing the peeling issue.

      And thank you! So glad I could help you out a little bit! That means a lot :) And yeah that sounds great! Whenever you get to the states let me know maybe we can have a meetup! Hoping everything goes well for you! Keep me posted!

  • Trocky2k9

    whats up Dan the Man …, its been a while but i wanted to give you a quick up date, i have been on the put nothing on my lips since May …, i have seen a dramatic deference in my lips they actually stopped peeling,,,,, yes yes i said STOP PEELING .(for like a MONTH)..,  I’m very very excited about that …, Thank GOD …, now the only thing that happens is a white gooey substance appears once a day  ., i just leave it alone and then when i shower it just de solves right off,  NOT PEEL De solves …, the one guy that cured him self in your cured section talked about that  white gooey stuff happening right before he got CURED ., Hay BTW why did you remove his Success STORY ??? …, I’m SO SO EXCITED MAN …, i cant wait to be 100% cured,  I’m not even self cautious about my lips any more .., thanks to your method I’m 95% healed …., just wanted to DROP every one here on the BLOG a positive NOTE…, any one can reach me at TROCKY2K9@YAHOO.COM …., this situation is Hard do deal with  so if you need some one to talk to HMU via Email I’m always down to here you vent or you can hear me vent …., lol  …, together with the help from this blog we will FIND A CURE  …,  for all the skeptics plz scroll down and read threw all the comments i have made on this blog starting in May  …, I’m not pulling any fast ones on any one ., i have been dealing with EC for 9 months …, my progress is NO JOKING MATTER …., im almost there …., thanks 

    • http://www.danielxmiller.com Daniel Miller

      Hey Trocky! So glad to see you’re having a great recovery! If you would like to post a picture in the gallery I would love to see, if you are comfortable with it :) Just be careful with the gooey stuff and make sure the water pressure isn’t forcing it off :) …I don’t want your lips to start peeling again, haha…but I think you’re definitely down the road to recovery! And yes I removed his success story because his EC unfortunately came back. So that’s why I caution to be careful still. :)

      After you are healed 100% for a few months make sure you let me know so I can put your story on my site! That would be a great inspiration to a lot of people. Keep going, I’m rooting for you! :)

  • Selena

    What happened to the success story guy that took 7 months to heal? He was in that category on your site before.

    • Selena

      Sorry Daniel just saw the answer to my question in the comments below

      • http://www.danielxmiller.com Daniel Miller

        No problem :) Yeah I decided that the time frame to be cured needs to be at least 4-6 months to make sure…

  • Tarik

    Hey man I went to my dermatology appointment today at the hospital and the man said that we wanted to take off my crust to examine it and have a lip biopsy or something…i said no ofcourse coz it would disrupt my healing process and will be having this lip biopsy on the 11th of october only if these crusts come off, coz im having amazing results in the last 2 months doing ur method and its going really well….first day at college went well aswell, everyone was supportive, but it was ur words in ur video that helped me the most, thank you alot!! What do u think i should do, should i have this lip biopsy? all my tounge and vitamin levels came back great sooo they dont know whats going on, im sure my insides are fit and healthy and i have no disease, what should i do? :)

    • http://www.danielxmiller.com Daniel Miller

      I personally would wait on the biopsy. Unless you for some reason stop getting results doing the method you’re doing right now, there honestly isn’t any reason to get it. It will just injure your lips, and even if they find anything would you be willing to use the product they tell you to use? That’s how I would (and do) look at it. And I’m glad the first day went well! That’s awesome to hear! So happy that I could give you some advice to make it a little easier :) You seem perfectly healthy according to the other tests, it’s not likely they’ll find anything in the biopsy at this point anyways :)

      Keep me posted on your progress! And feel free to post weekly/monthly pictures in the gallery!

  • Tarik

    Since i havent done any exercise for a long period of time, im really enjoying college with all my friends being supportive and giving advice lool but tommorow is enrichment and i want to do badminton if i do any exercise tommorow, do you  think itll be bad for my lips??

    • http://www.danielxmiller.com Daniel Miller

      No, I think it’ll be great for them! Exercise is so food for you…when I am able to I like to go on 20 mile bike rides and go in my canoe for a couple hours. My lips always feel so much better afterwards. Go have fun! Just don’t fall on your face :P that might not be good, haha.

  • Tarik

    Seeing ur lips progressing massively aswell is making me happy, im glad everything is working out for you man!! :) and thanks for the advice on the lip biopsy i totally agree with you….also at the hospital the derm told me that there was one other person who had a siilar case to me but MUCH WORSE and they had to give her surgical treatment to remove this crust that was bigger than her lip in total! 

    • http://www.danielxmiller.com Daniel Miller

      That’s crazy! And I’m glad to see you’re happy :) Happy is always good!

  • Tarik

    you look really well in yourself and be careful not to fall in the lake next time looool! :)

    • http://www.danielxmiller.com Daniel Miller

      haha, I’ll try not to :) and thank you

  • Dpp

    I have had a variation of this condition for the past 10 years. I live in Australia QLD and have gone through the ups and downs as long as I can remember since leaving school. I’m 28.For me, I believe the condition has come about due to physical damage to the lip layers from a number of different causes. However behind all these causes, the main cause that has enabled the condition to become what it is and for this long, is the almost obsessive compulsive attention that the condition has created. Causing the mind to always revert to thinking of the lips, their condition, the cause, the solutions.. Then the negativity and stress associated.For me the cause was a combination of the following causes – in this order: Braces and associated lip stretching, highschool kissing w gf for extended periods, severe sun damage to already damaged layers over 2 seperate summer holiday periods, more kissing, realising there is a problem then compulsively using all types of lip balms medicated/non medicated, picking of lips to fix unknown problem, impact of Colgate(SLS) tooth paste on damaged membrane, use of Listerine mouth wash which noticably stripped layers from inside the lips after use, extensive hard drinking from age 18 – 27. All these things caused the layers to break down and become more susceptable to damage.This whole process causes the lip healing process to be rapidly increased also causing inflammation and swelling. The lip balm or ointments on lips also hinders the process by masking the real condition of the skin. Therefore the lips are in a continual repair process with no reference point to being healed or progressing, or damage.I believe that the problem is not any type of virus or infection. (an infection may be secondary to the exposed raw skin). And because the condition is not just a small section (usually the entire area where the 2 lips touch when closed and inside/outside of this) it is unable to heal like a small cut on your arm. The damage is all over therefore the healing process is initially focussed on the mucous membrane layers at the lip touching/inside area. As that heals or is repaired, or as it becomes the new external layer, all other laters that extend outwards to edge of the outer lips must also be shed. In the process the lips have to adjust these new layers to the external environment, whilst also enabling them to take on the structural integrity of binding and holding all the lips together with elasticity and strength.A normal persons lips may become dry and damaged very rarely and the remaining lower layers are already prepped and able to take on the new role of external skin. Our lips just do this a lot faster and common sense would indicate that the process will initially be very repetitive and regular, but if left to its own devices, and open to the natural environment (no masking ballms or ointments) eventually the healing, regenerative process will slow over time.I think that based on these thoughts, the problem is on a cellular level and could be further understood by considering the way in which Programmed Cell Death occurs, as well as Apoptosis which both help explain the rapid process of hardening, cracking, then peeling as if it all happens as a direct result of a preceeding event. http://en.wikipedia.org/wiki/Programmed_cell_deathhttp://en.wikipedia.org/wiki/ApoptosisI believe that the healing process is very lengthy one which would be aidedd by acknowledging the problem, letting people know you are dealing with it, and its extensive impact on your life, then trying to remove all thought associated with the lips and live like a native person would back at the beginning of time without mirrors or concern for what people think. allowing nature to take its course.Its such a hard problem to deal with. It has definitely changed me and my confidence and stress. Good luck everyone.

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much dpp for reposting this! I really thought the “reference point” part of your post was invaluable information! Thank you for contributing to our efforts to find the real cure! :)

      • Dpp

        All good Dan, I am absolutely dedicated to sorting my situation out. I am seeing awesome improvement now withuot my reliance on lip balm. and with my dedication to not assessing the lips, or removing moist soft areas along the top and bottom lip where they meet throughout the day.
        My opinion is that this is not any bug or virus – It is peeling associated with the inflammation caused by the initial or continual damage done to the layers of skin either inside/middle/outer lips. The reason i think that the condition accelerates so quickly is because once the layers are reduced and become inflamed they stick to one another beginning the vicious cycle. Also the fact that a normal person would never ever really think of their lips, not even once on a daily basis, when someone who begins to notce an issue, will then think and attend to their lips hundreds of times a day.
        You also make mention of liquid coming out of scabs – In my condition i have had enlarged mucous openings just on the insides of my lips, where the layers are most reduced. one cause of your liquid in the scabs could possibly be the enlarged openings that may be at the location of your lip meeting point, where the scabs begin on the inside, with the discharge then seeping through the laters of the scab to the outside.. There are photos of a persons lips on the curezone site where he has these enlarged mucous openings. (I think these are a result of the reduced layers/inflamation and eversion of the normal lips position).
        You are doing the right thing and I think that you should continue as long as you feel necessary. I would avoid putting anything on them other than zinc and water. I would also avoid the saliva.
        If you get to a point where you think you have really made considerable improvement and you want to have more  normal looking lips, I would begin just swimming and exercising as much a possible and allowing the dead outer laters to naturally remove from water, but making sure you do not remove the layers immediately attached to the lips being careful not to ever expose any raw areas. That way the lips will begin to be more elastic, less visable but stil healing through their own devices. I do think you are on the right track and you owe it to yourself to see it out – even tho it is likely to take some years.
        One thing a TCM doctor initially noted when i had my first couple of treatments – he definitely thinks there is a lack of circulation in my lips, which could explain the excess mucous/watery discharge which should otherwise be flowing through the system like he says is normal. Then I think why the lack of circulation.. maybe because of trying so hard not to disturb the lips (with them sitting there not doing any proper movement otheer than just opening and shutting with the mouth with as little stretching or actual movement) As part of the diognosis, the doc said my internal stress levels are so high, but my ability to cope with it is very strong. He notices a lot of worry in my system. So I have had 2 accupuncture sessions to help minimise the stress and increase the internal CHI… I do not put this down as a proper solution to the problem because I do believe that the problem is mainly physical trauma based, the secondary factor could be internal stress, worry and negativeity.
        Seeing my current improvement, in association with the accupuncture treatment, pretty much no alcohol consumption, and heavy training and fitness is making life better in so many ways!

  • Tarik

    Do u think i should stop my adapele acne treatment, coz its completely cured it all up and when i wash my face with it, i wash it off with cotton wool, dry my face then splash my face with ater making sure none of it goes on my lips, do u think i should stop this wash tho ?

    • http://www.danielxmiller.com Daniel Miller

      I personally would, every acne treatment I tried when I was younger made it worse to be honest, it cleared it up in the beginning, but it always came back worse…once I quit using them they got better on their own :) so yes I personally would! I only use natural/organic products in the shower…

  • jd

    Hi have you tried calendula cream – there is a study that says it is effective for this condition – might be worth a try http://www.biomedcentral.com/content/pdf/1757-1626-2-9077.pdf

    • Tarik

      yhhh i read about that aswell but the guys case of EC wasnt that severe more like badly chapped lips tbh…theres no point in giving up now on the leave it alone treatment tbh after weve done this for 2-6 months. When that cream only COULD give u better results, but the leave it alone method, is guaranteed to work imo if ur blood levels are all good and healthy and ur tounge isnt infected with yeast

    • http://www.danielxmiller.com Daniel Miller

      I haven’t tried it! But thanks for the link, my personal theory that I am trying is just leaving them alone with water only…so I won’t be able to try it, but perhaps it will help anothe person on here who isn’t able to do the theory at the moment :) Which I have been thinking about making a section to help those people as well!

    • Marion Love

      I read the case study. Very interesting. Have you been able to try Calendula Officinalis Ointment?

  • Selena

    Hi Daniel not sure if you remember me from Facebook or not before I deleted it lol, I always asked you a lot of questions! :p but I’m now happy to share I will be starting my cure January 2013 with the support of my beautiful Fiancée:)! I will share my progress with you and everyone here once I start showing visual progress. I want to prove that this is curable even if accutane caused it! Anyway I’ve massively improved my diet for about 2 months now, and will continue to do so, so I’m already paving the way for optimal healing conditions:)! Wishing everyone a speedy recovery from this !!
    ~Love
    ~Selena
    And thank you for all you’ve done. I’d still be walking around with no hope if it wasn’t for you!! Your work is invaluable !!!

    • http://www.danielxmiller.com Daniel Miller

      Yes I remember you :) And I’m so happy you have the support of your Fiancee! That is great news! Yes, diet is really important, I have done a complete 180 on my diet and I feel so much better these days! It’s incredible. EC has given me a much better perspective on life and health, so in some ways I’m happy I got it so i could learn about it, however I would have much rather learned these without it :) but you know what I mean. haha. And thank you for the compliment, glad to have been some help! Feel free to put your progress in the “progress gallery” section, just scroll up a little bit of this page to get there!

      • Selena

        I totally agree. It REALLY makes you appreciate life and your health !!!! Most people don’t even know!!! So even though this is a tough lesson I believe in the end it was worth it. I know it
        Will be for me:)
        And thank you!!! Yes I am soo glad to have his support! It’s gonna suck not being able to kiss him tho for a long time lol! Oh well.
        Yes come January ill be in touch ! :)
        Can’t wait til we all can celebrate being cured.

  • Tarik

    what organic face wash would u say i should get to wash my face with in the morning? can u suggest something that dosent come out soapy or anything coz in the mornings i apply it and just wash it off with cotton wool, preferable something thats clear when applyed to the face? :)

    • http://www.danielxmiller.com Daniel Miller

      To be honest I don’t ever wash my face I just use water and it works wonders :) but I’ll let you know what I’m using for an occasional use when I get home to look at it.

      • Imranansari Ia786

        i’m really amazed that u had find a solution to ur problem and i’m still suferring from it. well done. no one can do your daring acts but i will try my best to do some  ur tips and tricks.

    • Selena

      My face actually didn’t become acne free and clear until I started just washing my face with water

      • http://www.danielxmiller.com Daniel Miller

        Same here Selena!

        • Selena

          Amazing all the stuff that’s marketed to us like we NEED it !! I think all the washing your face with soaps and then moisturizing messes up your skins natural balance. My face used to be sooo oily too, but since I stopped moisturizing my face and washing it my skin has learned to balance itself and I’m NEVER oily anymore. So funny that used to be so embarrassing for me but it was me
          Causing it to begin with lol. I also stopped using foundation, had to since I didn’t want to wash with soap anymore, and I think the makeup was part of the problem too. Granted it was tough for the first month or two til my skin stabilized (i had been using products for like 8 years!) but it was soooon worth it after that bit of time my skin took to work itself
          Out!:-)))

  • Tarik

    But do u think the acne facewash could be bad for my EC even tho it never touches my lips ?

    • http://www.danielxmiller.com Daniel Miller

      That’s very subjective and depends on who you ask :) I am a very natural person so I don’t believe in using many chemicals at all… But whether it’s actually hindering you healing your lips I don’t have any idea. I don’t believe it’s making it better though if that helps. :)

  • Tarik

    hmmm okay thanks :) but do u think it could stop my lips getting better or slow down the process

  • Tarik

    Surely this method is bound to work man¬? i mean in the past 2 months ec affected areas of my lips have turned into completely healthy parts, just that note thing u put about the virus is making me worried because that guy said nothings working for him and he also mentioned something about the indian mans lips not healing, this is going to work right?

    • http://www.danielxmiller.com Daniel Miller

      I wouldn’t be doing it if I didn’t have full confidence in it working. And the people he was referring to weren’t doing what we’re doing. His results actually make this method seem more likely to work since they were able to find anything related to a virus or fungal infection. So it’s good news if you ask me.

  • april

    I’ve had this problem for as long as I can remember and it wasn’t til after I gave birth that I too found a cure.. did stop putting stuff on my lips cuz like many of us, I thought that was right…but after having my post labor follow up..my doc said I needed to drink more water cuz my lips were dry…low and behold!..once I started intaking the minimum water amount…my lips since then have stopped EVERYTHING! MY lips have never been this healthy!! Water, ladies and gents is the secret!!!

    • http://www.danielxmiller.com Daniel Miller

      That’s so awesome! So glad it helped you so much :) I drink water almost constantly at work, and a lot at home, so it unfortunately didn’t cure me…but no doubt water intake is a key factor in this, thank you for sharing!

  • Tarik

    Relieved! lool but it theyve had this for sooo sooo long why dont they just leave their lips alone since theyve tried every single ointment or steroid cream out there! Everybody should be taking this method since doctors are more clueless than us on how to cure this!

    • http://www.danielxmiller.com Daniel Miller

      Some creams haven’t been tried, and this method is actually very difficult to do…even if you know it’s the answer…

  • Tarik

    ohhh yhh one last important question, do u think that when my crust comes lose that cutting it off gently with sum small nail cutting scissors is bad, like i could catch some virus with them on my lips, coz of them not being sterile, should i stop this?

    • http://www.danielxmiller.com Daniel Miller

      I don’t think you have anything to worry about, I do the same thing :) As long as you are forcing it off you should be fine.

  • Tarik

    I look at some peoples lips on the curezone sitewhen there crusts come off, and they have these long cuts along their lip, i used to have this but sine doing the leave it alone method, there isnt a single one…wat does this mean

    • http://www.danielxmiller.com Daniel Miller

      Sounds like your lips are healing! :) Keep goin bud!

  • Tarik

    How do u mean its difficult to do? most of the ppl who have this seem to have finished school and education and are working, all they have to do really is take 1 year of work at the worst, u did it well for 6 months and urs was alot worse than many others, yet u passed through it :D

  • Tarik

    Honestly cant wait for my lips to get better, that feeling when i cant just get up in the morning have a shower, bite into a peice of fruit or drink a nice hot cup of black coffee without worrying about my lips loool <3

    • Selena

      Tell me about it. Talk about peace, never having to think about our lips ever like normal people.

      • http://www.danielxmiller.com Daniel Miller

        When that day comes I will seriously be in heaven :)

  • Tarik

    When u gonna make ur next pic and vid man? :)

    • http://www.danielxmiller.com Daniel Miller

      Already made it :) I’ll upload it here in a few!

  • Tarik

    and dont worry man that day will come, it just takes patience for about 1/2 to 3/4 of a year :L
    Amazing how people can just simply wake up and not have this trouble and hassle every morning…yet they still find something to complain about, when this cures there will honestly be nothing to ever complain about my life again !!!

    • Selena

      I so agree!!

      • http://www.danielxmiller.com Daniel Miller

        haha, I agree as well :) can’t wait to be freeeeeeeeeeeee!

    • Kal

      The fact that there are very few old people with this condition in the literature makes me optimistic. It seems to be something that generally affects the young. Which means over time most people probably get better some way or another.

    • Kal

      I miss the old way the comments were ordered… putting them by order of votes means that no new comments get posted :-(

  • Tarik

    what week was it again that u posted pics of ur last attempt on last december or suttin mate? :)

    • http://www.danielxmiller.com Daniel Miller

      hey buddy been on vacation so haven’t been online much, just uploading pics and vids from my phone. I’ll be back Thursday :) but it was week 16 here is the link: http://danielcmiller.com/?page_id=2478 scroll down a ways to see it :)

  • Tarik

    what product do u think i should use on my face, i got something called tea tree face wash or suttin and its all natural apparently but the acne was is easier to use in the morning as its not soapy and i think when i wash this tea tree face wash off some of it goes on my lips when i splash my face with water, what should i do!??!

    • MOHAMMED

       tarik . where you from ?

      • Tarik

        i am from turkey brother

    • http://www.danielxmiller.com Daniel Miller

      Just be careful :) Try to ease off of the facewash (my opinion) and get some sun, the sun clears up your face so much better than anything else… :)

  • Tarik

    11 weeks of doing this and im honestly sooo excited, theyve got sooo much better its unbelievable! this all may end for me by december, i never thought that my lips will be better before 2013….justr keep praying guys and knowing we canbeat this!!!

    • Selena

      Have you thought about posting progress pics?

      • http://www.danielxmiller.com Daniel Miller

        I would love to see some progress pictures as well! :)

  • Selena

    It’s weird tht it SEEMS, from my research so far that almost everyone who has this has full lips. Interesting

    • http://www.danielxmiller.com Daniel Miller

      Our lips probably dry out easier than people with smaller lips…my guess. :)

  • Selena

    Are your lips even better since week 30 daniel? Hope you had fun on vaca :)

    • http://www.danielxmiller.com Daniel Miller

      They look pretty good :) they are slowly starting to build up so my free week of not being embarrassed will probably end soon but I think the sun and swimming seriously helped my lips!

      • Selena

        Great to hear!
        I so hope you’re cured or almost cured by January since that’s when I’m starting this, so I have proof it cures!

        • http://www.danielxmiller.com Daniel Miller

          Wouldn’t that be really awesome!! :)

  • Tarik

    Tbh i dont really have time to do progresss pics with college study and all….but selena i think u should start ASAP! believe me this is the only method that will cure you, no creams will do the trick, daniels site pretty much scientifically explains it all, and i do biology and chemistry A-Level so it all makes sense :) The first 2 and abit months are really hard, but after that its sooo easy to do because it hardly builds up for me…by the time i reach 6 months ill probably have just simply chapped lips which will get better in 1-2 weeks :)

    • http://www.danielxmiller.com Daniel Miller

      Have you taken any pictures so far?

  • Tarik

    its a shame ur crusts came off the man, 7 months u was doing so well…that means u have to start again right?

    • http://www.danielxmiller.com Daniel Miller

      Lol no them coming off is completely normal :) they have come off many times. Just this time they all came off at once so I got lucky. I am well on my way to being healed :)

      • Tarik

        ohhh okay good good, coz i thought it was kind of a bad thing :) at this rate id give it another 5 months and our lips will be back to normal 

        • http://www.danielxmiller.com Daniel Miller

          I’m really hoping so!

  • Tarik

    Btw anybody whos gonna start the leave it alone method, i should warn you that the skin around your mouth, under and above ur lips are gonna start to get dry and skins gonna fall off, grow back and fall off untl after 2 months itll stop, dont peel it as its just normal flaking skin on EC infected, similar to getting suburn

    • http://www.danielxmiller.com Daniel Miller

      Great advice!

  • Tarik

    what do you personally use on ur face in the morning to wash? :)

    • http://www.danielxmiller.com Daniel Miller

      I don’t use anything! Just water!

  • Tarik

    so excited today tho, getting fifa 13…i dont think american gets soo hyped about football games as england does innit :P

    • http://www.danielxmiller.com Daniel Miller

      haha is it bad that I don’t know what fifa is? :D lol

  • Selena

    Hi Daniel when are you going to post the most recent weeks:)

    • http://www.danielxmiller.com Daniel Miller

      I just put one up a couple days ago on Monday :) I just realized I put the wrong day on it though haha. It is actually supposed to say Monday of 8th! =)

      • Selena

        Oh hmm.. The latest one thats been showing up for me has been week 30 from sep. 23rd

        • http://www.danielxmiller.com Daniel Miller

          Weird. Try refreshing your page again. I’ve got week 32 on there. But here is the link for the pic :) http://danielcmiller.com/wp-content/uploads/2012/10/DSC01464.jpg

          • Selena

            Shit i always use the mobile site and forever I’ve been checking to see an update yet! Went to your regular site and I see now lol. I was getting so anxious to see recent progress ! Wow they r looking so good !! Omg! I give you 2 more months, maybe 3 together back to perfectly normal lips! I am so happy about this !! I can’t wait to start

          • http://www.danielxmiller.com Daniel Miller

            Oh haha yeah sorry I haven’t updated that page in a whole since I’ve been on vacation and I forgot when I got back =) I’ll make sure to update it soon! But yeah hopefully only a few months left I am really really hoping…… And yes make sure you take pics too when you start!

          • Selena

            Noooo problem :) )))))
            Yes I’m certain it’s gonna b 3 months or less :) )))

          • http://www.danielxmiller.com Daniel Miller

            Hope so!

  • Tarik

    L-M-F-A-O! 
    its a football game, smh americans hahah, oh yh soccer for u lot :P

  • Trocky2k9

    dan whats up man …, email me, i think I’m healed …,  trocky2k9@yahoo.com …, 

  • cf97

    Hey daniel, I was wondering what your diet consists of on a typical day? I know you said you eat lots of fruits and vegetables but i was wondering like what your usually routine is like what exactly you eat for breakfast, lunch, dinner and anything between, or if you follow “food combination rules” like not eating fruits and veg at the same time or fruits with protein etc.. I have been eating extremely healthy for months now but just wondering what you do since you seem to be having a lot of success. 

    • http://www.danielxmiller.com Daniel Miller

      Well I work 4 days a week, on usually at least 2-4 of the days on my lunch I’ll get raw salmon from the grocery store about 1.5 pounds on my lunch and eat that. I also get bananas, kiwi, peaches, avacados, lemons, grapes, etc and snack on them all throughout my work day. When I don’t get Salmon, I usually get some kind of cooked food at a regular restaraunt like Boston Market or Chinese, etc. However I feel much much better when I get Salmon, so I don’t think I’ll be going to anywhere else very often anymore.

      That would consist of my breakfast, lunch, and dinner since I’m at work for about 12 hours. I don’t usually eat anything before or after unless I feel like cooking something.

      On my off days I like to get organic pasta from whole foods and throw in raw green peppers, onions, tomatoes, garlic, spinach, bell peppers, zuchini, squash, and anything else I feel might taste good in it. Once I cook the pasta I heat up the sauce and don’t cook any of the ingrediants.

      Occaisionally of course I go to fast food and other bad places, but I have found after eating really healthy for the last 6 months or so my body really hates anything else, it’ll often try to flush the food I get from fast food out of my system in a hurry, if you know what I mean :) so I stay away from that stuff as much as I can.

  • Tarik

    do you think eating a roast dinner will be bad for my lips?

    • http://www.danielxmiller.com Daniel Miller

      I think that would be fine :)

  • Hans

    hey daniel, are you still using the nail-clipper?

  • Glamorousmoose

    Your lips are looking fantastic. Keep it up! Your giving me hope.

  • Glamorousmoose

    My feeling about this condition (I have it) is that it would take three years of not peeling to get 100% better. You seem to be past the worst of it. You look 1/3 healed to me. Thank you so much for making this site.

  • Hans

    hey daniel, there is a girl on my college we flirt everytime with each other, but im scared to go on a relationship with her becouse of my ec she wouldnt understand it, what do you think :D ?

    • Tarik

      Dont bother with relationships until ur EC has cured tbh…just wait 6 months and leave ur lips alone and then u can start dating again

    • http://www.danielxmiller.com Daniel Miller

      Your comment and answer is in my newest video :) http://www.youtube.com/watch?v=YO5IVK9RUi0 check it out!

  • GM

    Hey Daniel,

    I’ve been dealing with a mild form of this condition for around 6 years now. I know your anxieties and stresses associated with it all too well. In the last year or so I’ve struggled less with this problem. I too initially went to a dermatologist and found no help there. This led me to look for answers elsewhere. I went and saw a homeopath, who looked at what was going on in the whole body. I took his advice, changed my diet, took these homeopathic medicines and found a little relief. I was a little bummed that it really didn’t improve greatly my problem, but what it did is plant the seed of thought that this peeling lips condition really is not an issue concerned only with our lips. Everything is related to everything. I studied psychology in university and learned how seriously stress can negatively affect our health. Constantly looking at yourself in a mirror to see how your lips are looking, feeling concerned about what others might think about your lips- this stress is also contributing to the problem. I know it’s not easy to suddenly stop being concerned about how your lips look, when they are constantly peeling. Personally, the changes I’ve made in my life which seem to have made an improvement on my condition are a total change of diet. Everything I eat is organic, mainly vegetables, and meat maybe once or twice a week. I stopped using chapstick about 5 months ago. I avoid anything with GMOs in it, which is pretty much any processed food. Avoid food packages with ingredients you don’t understand or at least 8 or more long. I’m also in a loving relationship. I exercise more. I practice yoga breathing exercises. I also saw an ayurvedic doctor. Ayurvedic medicine is a very old Indian medical system that deals with patients on an individual level, looking at all aspects of which make us human- physical, intellectual, spiritual- to determine the cause of the problem and then structure a healing program from there. By going to this doctor I found out I had a lot of gas built up in my intestine. Inflammation in your body makes it more susceptible to disease and effects the way we eliminate toxins from our body. This got me thinking about how well I eliminate the food. Just as important as what we put into our body is how eleminate from our body. How good are your poops? Runny? Is it a healthy brown? Consistent? Ask yourself these questions because they are clues to what is happening within your body.

    And smile. Laugh. Holding that shit back wont’ help your condition. Laughing is very healthy for you.

    Also, consider that when something bad happens to us as in this case of peeling lips, our bodies are trying to send us a message that something is out of wack. Don’t focus only on your lips, look at all those other things I talked about.

    I wish you the best.

  • Marion Love04

    Decided to bring the dermatologist back into the loop. I was given LOCOID LIPOCREAM, PROTOPIC, and NEOSALUS. Has anybody had any experience using these products? Good or bad.

  • MRM775

    Hi Daniel I have been dealing with EC for over  two years. I like so many others have tried everything to get rid of my ec, I went to numerous dematologists and had 2 biopsoys done, used protopic, steriod creams, antifungal creams, antiobiotic cream, coconut oil, every chapstick I could find and went on numerous diets and cleanses to help my body to heal from EC. Before I found your blog I decided I was so tired of dealing with my lips that I was just going to leave them alone, I have been doing this for the past 6 months. This is the only thing that has helped with my lips. The healing is VERY slow but I am confident that this is what it takes for the lips to heal. I was just wondering if you have fordyce spots on your lips? I have them on mine and I was wondering if the lips could still heal even with fordyce spots? I would rather have fordyce spots than have peeling lips so they do not really bother me. Please let me know what you think.

    • MRM775

      I read my comment and I obviously cannot spell…dermatologists and biopsies lol

  • A Virnig

    Ok that yellow puss is a sign of infection. Your lips are telling you that they are infected??

  • Tarik

    Ive doing this treatment of leaving them alone for 3 months now…i would say 4 more months and ill hopefully be healed but the main problem is that, theres this girl that ive fell in love with and weve been friends for yearsss now. She dosent know i have been going through this healing process and my lips are in this condition. I really want to go out with her, but not with this condition…as every day goes past i miss her more and i just wanna to see her and hold her tight…im worried that if i keep waiting, not letting her know how i feel she might be asked out by another guy by the time im healed. What do u think i should do man, i dont know what to do…i want to tell her how i feel but not with my lips in this condition, shall i wait for my ec to cure? what should i do :( (((

    • http://www.danielxmiller.com Daniel Miller

      Absolutely not! If you like someone you need to tell them. I have gone out with a few people with this and none of them were bothered by it much at all. If she really likes you she won’t care. You have a medical condition that will heal, it’s not like it’s something you chose to have. Trust me if she really likes you it won’t matter to her, in fact shell most likely be supportive and wish you would have told her sooner.

  • Tarik

    Hmmm thank you man, its means alot, ur the only person i could talk to about this! Im really tied up with my exams atm soo i may have to wait anyway but it just scares me having to tell her in this condition you know, i dont want her to see me like this if it makes sense…thank you alot for the advice tho man! :)
    Another thing is if we do go out now when i have this condition its just gonna be awkward in restaurants, we cant kiss etc dont u think?

    • http://www.danielxmiller.com Daniel Miller

      Yeah I understand, but you can’t let this condition hold back your life. I still do a lot of things, but I also still don’t do a lot of things and I’m very disappointed that I’ve had to miss out on several things, but I’ve also done some really great things. Make sure you are at least doing things and staying happy! As far as being awkward in restaraunts, it’s only as awkward as you make it, it’s the exact same feeling someone without an arm or a leg would have I can assure you, but they still go out and live life. As far as kissing, that’s entirely up to you two, but I have been holding off on that for obvious reasons…lol

  • Cameron

    Hey Daniel, I also suffer from this condition and have been leaving my lips alone for a couple weeks now. For me i feel like the main cause was the nervous habit of constantly biting and licking my lips. Whenever the old skin started to build up on the surface i would bite or peel it off, and i was constantly licking my lips to keep them from drying out. I realized that doing this all the time was actually possibly drying them out because of the lips always being exposed to saliva. Do you think this has ever contributed to your case at all, or could be a factor for other people?

    • http://www.danielxmiller.com Daniel Miller

      It’s not related to my case, however quite a few people have gotten this condition from doing that. I don’t personally believe the salid did much harm to your lips (contrary to popular belief), however the biting and peeling was definitely the main cause. I never bit mine, but I peeled them.

  • Tarik

    i rewatched some of ur old vids nd woahhh man! look how far uve come lool!
    Its amazing whats uve achieved these past 8 months!! :)

    Just a quick update on my lips btw, im currently starting my 16th week doing this treatment and the scabs are no long lumpy at all when their about to come off..on my bottom lip, theres just one scab now thats flat and dosent soo bad haah :) my top lip is 100% healed now aswell, no more scabbing!!!!!!!!!!!! :D DDDD

    • http://www.danielxmiller.com Daniel Miller

      haha, yeah I’ve come pretty far! It’s taken a very long time, but still very far nonetheless! That is so exciting to hear about your progress! I’m so happy for you, and I would love to see a picture if you ever would like to post one in the gallery, and I’m sure of the hundreds of visitors this page gets a day, others would be very interested as well. :)

    • Bob

      Hey Tarik please keep us posted and congratulations on your progress so far (:
      I recently started to leave my lips alone, coming up to 3 weeks now, and I have these big ugly scabs and parts of my lips are starting to get dry and come off. D:
      Did that ever happen to you?
      Also like Daniel said, it would be nice if we could see some of your pics (:

  • Tarik

    Also the dead skin on my bottom lip has got so small that when i touch my lips together, i can feel the soft normal skin touching now! great progress ehh!! :)

    • http://www.danielxmiller.com Daniel Miller

      Yay! That’s so awesome! Hopefully you will be healed within a couple months or so! How cool would that be :)

  • Will

    Every once in a while, you encounter people who go through something so difficult that the only way their actions can be described is as heroic. For what you have gone through, and the positive way you have dealt with it, all I can say is that you are a true hero, to me and to a lot of people who are suffering from chronic conditions. I have nothing but the utmost respect for you. Please, stay strong, and don’t give up hope. I pray that you are able to recover completely from this condition. I appear to be suffering from this as well, and to be honest mine is not nearly as bad as yours, but I have gotten extremely depressed about it. To the point where I’ve thought that if I can’t cure this I might as well commit suicide. But I keep thinking that if you are able to deal with your EC, then I can deal with mine as well. Stay strong my friend.

    I am currently going with the “expensive doctors and medication route” to deal with this. If I find something that cures or improves my condition I will let you know. Currently I’m using steroid cream (Desonide 0.05%). I am keeping a picture log as well, though it’s not online yet. I’ve been researching who the leading researches and doctors are on this condition, in case there is some way to solve this by throwing money at it haha (I do have money… though compared to health, money is nothing). Anyway, I’ll let you know what I find out.

    Peace my friend.

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much Will, that really means a lot to me. I’m so glad I can, at the very least, give a little light on the condition and a hopeful future for people who have this. I’m so sorry to hear you may have this as well, and if you do I’ll be here with you every step of the way if you need any help or advice :) the best way to deal with any condition is to know you are not alone. I know how difficult it is when you become depressed about it, as I once was really depressed (not to the point of suicide thoughts, but I was pretty down), however I realized that even with this condition I still have all of my limbs, and I am very healthy in every other regard. I have a lot to be thankful for, so I just got back into life and started rolling again. Granted I don’t go out nearly as much as I used to, I have become more in-tune with nature and my personal well-being.

      Keep me posted on your progress with your doctors route, and if all else fails at least you still know there is another option to turn to. :)

      Thanks again,Daniel

  • Will

    Update: My condition has been getting a lot worse. I am literally scared out of my mind. I don’t know how it’s going to be possible to live with this. I’m pretty sure my career is going to be over soon. :-(

    • http://www.danielxmiller.com Daniel Miller

      What do you mean by a lot worse? What is happening. And I don’t believe you’re really allowed to get let go for a medical condition…that wouldn’t be legal. However if it’s because you talk in front of customers all day long that could be a different story, but still it would be something you have to get through, no matter how difficult it is. I personally believe that becoming healed is much more important than having a job/career. Once I am healed I will venture further, but until then my health is my key focus. Let me know what’s going on, maybe post some pictures if you want in the progress gallery so we can see and try to help as best we can :) it’s very easy to get down when you have this condition, but keeping positive is the best way to not get caught in depression.

      • Will

        Hey, sorry I kind of freaked out lol. I am bipolar and sometimes my anxiety gets a little nuts, especially when I’m dealing with a problem that I can’t control. I’ve had a lot of medical and mental health problems this year and this lips thing is the latest but most visible one (though I’ve done a decent job of not letting anyone find out). 

        Like I said, my condition is not nearly as bad as yours cosmetically, it was just getting worse and worse every day. What freaked me out the most was wen my lips started turning white when exposed to water and the edges of the affected area would separate and then dry like white flakes. Essentially, they got to the point where I couldn’t hide the condition anymore. 

        I realized that part of the problem was that I was trying to keep it a secret from everyone and I kept trying to peel and grease up my lips with chap-stick to make sure NOBODY knew about it. Finally I caved and told my parents (they are both doctors and it was a while before they considered that it might be more serious than chapped lips, they weren’t aware of Exfoliative Cheilitis). Then I told my business partner about it, and was amazed that she wasn’t bothered by it. Once everyone knew what I was worried about it was a huge load off my shoulders, also, I’ve stopped peeling and trying to hide it since the secret is out now.

        My first doctor suggested that I use steroids cream but it didn’t seem to fix the problem (it made them look better, almost normal, but the skin was still hard and felt like I had plastic lips, also the affected area would become white in water). I had some trouble getting appointments with him, so I switched to a second doctor who was recommended by my parents.

        My latest doctor thinks it might be an allergy to toothpaste. I showed him my photo log that I’ve been keeping since october to chart how the condition is progressing (unfortunately the condition really started much earlier, I became aware of it in July). He asked me to change from Colgate to Sensodine and get tested for allergies to a certain chemical in Colgate to see if it made a difference. He said if it is allergy to toothpaste, then it might take 2-3 weeks to clear up. he didn’t think “exfoliative cheilitis” was a medical condition when I tried to ask him about it, though he did agree that I had a “cheilitis” because there was something affecting my lips. He thinks that if I don’t have a toothpaste allergy, I have an allergy to something else. He doesn’t think it’s my diet (which I told him had been pretty bad, especially after being diagnosed as bipolar), or that I have anything internally wrong. He thinks it’s just a surface problem in the skin itself. He also wants me to apply Vaseline lip balm to them, but I actually feel like that might damage them.

        What I’m thinking is that if it turns out this isn’t an allergy to toothpaste or anything else, my best guess based on the current condition of my lips, is that they have become calloused from my constant picking and attempts to hide the problem. If they are calloused, that still doesn’t quite explain why they felt weird a long time ago (why they got to the point where I felt like I had to pick them in the first place) had they felt normal, I would have left them alone. Also if it is a callous, that means I’m looking at around 8-12 weeks of leaving them alone for the callous to go away on its own. I’m worried that if I start using lip balm like my doctor wants, I’ll just damage the callous and just extend the process further.

        This is doable now that the important people in my life know about it, as long as they don’t keep forcing me to go to social events. Really all I want is to be alone for a few months, but it’s like I’m asking them for something completely inconceivable. They just can’t understand that it’s really weird to talk to people when your lips look and feel strange.

        I’m having some trouble adding the images I wanted to, but here is one of how they looked when they got wet a few days ago. 

        • Will

          Man my dad just made me feel horrible. I tried to explain that I didn’t want to go to dinner with them because I don’t like to go out in public with my lips like this and he said he thought I was being completely unreasonable. He said I needed to go back on medication. :-(  

          All I want is some time for my lips to get better. It’s not that I don’t want to spend time with my family, it’s just that I don’t want to be in front of a ton of strangers with my lips looking like crap. My mom freaks out if there’s like one piece of clothing on the floor or one dirty dish when someone comes to visit her house, but I have to be super accepting about my lips looking like this in front of everyone I meet just so my family feels happy…

          Being alone all the time makes sense anyway since I’m supposed to be studying for a big license exam. It takes months to study for that monster. It’s the perfect cover for not going out so much. (Granted, I’ve been way more focused on my lips than on studying…).

          Is it that crazy for me to think that the long term goal of having healthy lips is more important than the short term goal of not missing a few social events? We could always spend time at home as a family if that is what really matters to them (movies, dinner at home, etc.).

          • http://www.danielxmiller.com Daniel Miller

            I’m sorry that happened :( give them time to adjust to this, and explain exactly how you feel again to them. It might help. And I feel the same way most of the time, however I do make myself go out and enjoy life as much as I can even if I am embarrassed. I find that most people don’t say anything, they are just concerned because they haven’t seen this condition before. And no it’s not crazy for you to think of healing yourself. I promised I would never inflict intention pain on myself ever again after starting this treatment. I would rather look like this forever than continually hurt my lips but rubbing the skin off and applying chemicals to them all of the time.

            In time they will understand :)

          • Will

            Thanks Daniel, I don’t know how I’m going to get them to understand. It’s very frustrating because whenever I try to explain they say “it’s nothing” or “I’m exaggerating” or “overreacting”. I think it’s because I hid it so well for so many months. My dad just makes a lot of jokes about it whenever I try to talk to him about it. It’s so difficult.

            It’s even worse because they’re doctors and they’d never really heard of this condition. They don’t know a name for it, they don’t know the causes, they don’t know any real treatment, they don’t know anyone whose dealt with it, they don’t know how long it will last, if I can recover, and they don’t know the effects it can have on people. They do “know” that a person spending too much time alone isn’t “good”. But I mean, so is a person spending a lot of awkward time around other people feeling terrible.

            I told my dad about it months ago and he said it was “benign” and to just use chap-stick and drink water. But if it’s so benign, how come it keeps getting worse? And why hasn’t it gone away? I know it’s not going to kill me. But it’s still doing harm.

          • http://www.danielxmiller.com Daniel Miller

            Some people believe that covering up things is the same as healing them. Unfortunately it seems that they believe this way. You may just have to tell them that you aren’t going out, and if they get mad then they get mad…your health is more important than how someone feels at a certain time. Once you are healed they will forget this even existed. Stay strong, we’ll all get through this together :)

          • Will

            Hey Dan, thanks. So I had a talk with my dad and we argued about it for a while (I had to make kind of a big scene) but he eventually got that I was seriously worried about it and that it was a big deal for me. He made a good case for why I should probably talk to a psychiatrist as well however, since it has become a bit of an obsession and I am bipolar and thus prone to get pretty intensely emotional about certain things (I was speaking at a pretty loud tone of voice… lol… although in my defense talking to dad can be like talking to a brick wall sometimes and you have to reach a certain level of intensity to get heard). But I kept taking him back to the point that whether or not I might have an emotional problem with this, there is still something wrong with them physically that I am not imagining. But I think after the scene I made today if I say I don’t want to go do something they won’t fight me about it.

            He made a good case for doing what the doctor says and putting Vaseline on them… since it will allow the doctor to make a better diagnosis. I think it’s a terrible idea since it will soften the callus, potentially causing the skin to fall off. I think hardness might be the best thing your callus can have since it means it can have the strength to stay on (this last round it’s been the strongest ever, with its edges actually staying on (probably cuz I stopped trying to hide it)). Vaseline lip balm also seems to be a treatment for chapped or dehydrated lips, not callused lips (I really don’t think dehydration is the problem here, I think it’s mostly damage that I’ve done to them trying to cover up the damage that was visible before). 

            Although some people do use Vaseline for feet calluses, but supposedly the treatment for those seems to be to exfoliate the skin with a pumice stone… which I think would be the opposite of what you would want to do with your lips (I’ve been “exfoliating my lips” for months now… with my nails…). I was also growing somewhat fond of that turtle shell feeling the last couple of days… it was kind of like the skin was protected and it’s “meant” to be that way for a bit. So yeah… I have a horrible feeling about Vaseline.

            However, if I do what the doctors say and it doesn’t work, perhaps it will convince them that leaving them alone and letting them look bad for a bit might be the best option. I kind of wish I could just leave them as they are and stop putting crap on them but… well that’s the “medically wise” thing to do I guess.

            My dad also suggested I talk to a female dermatologist who might be more understanding of the fact that I feel my lips look bad… basically he said all the macho male doctors I talked to can’t see anything really wrong but a girl might know.

            Thanks a lot for reading my posts and helping so much. I hope you get better soon. You are an awesome human being. I wish you the best.

            Hopefully I’ll have some good news in the future. (Sorry for the long posts…).

        • http://www.danielxmiller.com Daniel Miller

          Yeah your lips look a lot better than mine, which is good news! Some people have reported a lot of progress with switching toothpaste (not me, however). Although I do use a completely natural/organic toothpaste now. I don’t really recommend sensodine, because they have chemicals in their toothpaste. If you have a local Whole Foods store go by there toothpaste section and get a product that doesn’t have SLS (Sodium Lauryl Sulfate) in it. Try using that. I also avoided all toothpaste/mouthwash for 3 months with no difference in my lip condition.

          And your doctor was right, Exfoliative Cheilitis is not a medical term, it is a medical description of a visual perception. It basically means the skin continually exfoliates itself, but it does not diagnose a reason or cure, unlike a proper medical condition. It is simply a term for the symptoms one experiences.

          About the Callous part, yes that is what I believe it is as well. However it’s going to take MUCH longer than 8-12 weeks to cure a callous on the lips. Reason being is because they are a mucous membrane. There are so many factors that go into healing the lips that with this condition it just takes seemingly forever. I had originally thought I would be healed by the end of this summer, but here I am still today healing. It is slowly getting better, but putting a time frame on it will only cause disappointment. Be prepared for it to take a year at least is my suggestion.

          Yes it is difficult to understand this condition if you don’t have it, and I was lucky to have a supportive family and friends that understood my frustration. Maybe showing them my site will help ease the understand of this condition and the mental toll it can take on a person who has it.

          If you are having trouble adding images you can always post them in the forum (link is the last section of this page before the comments, or just click the big cloud picture in the beginning) and paste a link here to that picture if you need to :)

  • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

    Hmmm. What do you think of the method of using saliva. & also i wanna hear your thoughts on using Vaseline ONCE at night

    • http://www.danielxmiller.com Daniel Miller

      I believe the method could work for some! If I would have known about it I would have done that first before attempting the method I am doing now. I essentially am doing it as well as I let saliva touch my lips a lot throughout the day. The key to this one is applying the cocoa butter (or whatever product it was they used) directly after getting the lips salivated. As far as Vaseline, I do not recommend it at all, from my experience it has been horrible and immediately causes the new skin (which is protecting the skin underneath) to separate and come off. I would stick with something a little less obtrusive.

      • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

         Oh. I see. Also i get i have tryed your method. And my lips would give me this soothing feeling but look like crap. Which i am cool with that and all. My only concern is that it always crack in the middle like the next day. Is that suppose to happen.
        Being in High School, i always get the occasional “Do you use chapstick?”

        • http://www.danielxmiller.com Daniel Miller

          Yeah it will probably happen since they are dryer than normal…you have to just not smile as much as you used to, that will help a lot, but mainly time is what it takes…

      • Pearlpowder

        Hi daniel,
        Is wetting the lips from the shower really good? Because, mine shedsoff when its wet… Could that delay the healing process?

        • http://www.danielxmiller.com Daniel Miller

          If it comes off in the shower, then try not letting the pressure touch them too much. They should come off when they are ready and shouldn’t feel tingly or anything. Try letting the water hit your head and run down your face onto your lips. :)

    • Teng Phoebe

      Hi im phoebe,
      Started having EC 2 months ago, im trying coconut oil on the mid part of my lip.. Will let you guys know if it works.. I learned a lot of tips from you..Great job Daniel !

      • http://www.danielxmiller.com Daniel Miller

        Let me know how it works for you!

    • Pearlpowder

      Drink coconut juice to detox… And eat the meat of the coconut.. If its available in your country.. Im from the philippines.. This is pearl. I have EC for 2 months now.. Mine was triggered by accutane..

  • The ascendant

    Hey there my fellow friends. First of all, thank you Daniel for this site.
    Thanks to Daniel I decided to try the approach of not applying anything to the lips. My story is the same as mosts. several years of peeling lips, 6 doctors, numerous creams and no improvement.
     
    For about 10 days now Im leaving my lips alone and they have improved already. At the beginning I wetted them with calendula tea mixed with propolis drops one to four times a day. Calendula and propolis are said to be anti-inflamatory and anti-fungal… Im not sure if it helped but it didn’t do any harm because its no ointment (no fat, oil, vaseline etc.)
     
    Not smiling is nearly impossible. I go to school 5 days a week and a lot of funny things happen… Smiling hasnt been a problem for me. Allthough sometimes when it does hurt, I pull my lips together with my hands to stop laughing. The cracks that do occur, grow back together during the night.
     
    Its true that the dry skin needs to stay on your lips for as long as possible.
     
    Socially, its really no big deal, allthough my lips do not look as bad as Daniels did in the first weeks. If people ask me or if they tell me how discusting it looks or if they make jokes, i just explain this condition in a relaxed and formal manner.

    I posted two pictures. The first was taken a few days ago and the second was taken today. Ill post some pics every now and then.

    Good luck everybody and see you soon.
     
     

    • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

      Wow, i like your approach to the whole situation. KUDOS!. I’m one to chicken out and peel the dead skin off whenever i feel people notice or cover my mouth the whole day

      • The ascendant

        Dude, I dont know how bad yours looks. But If you hide it and your overall appearance is really insecure people will notice you as an insecure and awkward guy with a fucked up lip. If you stand in front of them with pride and honor, and with respect for yourself and you tell them why your lip look the way it looks, they will see you as a confident man who has the guts to go out with a wounded lip… Its just a wound really… See yourself as a hero, wounded by society, peeling and biting his lips off due to low self esteem, stress etc. who takes his destiny in his own hands and goes out there to face anything that comes at him.. In this case, peeling lips :)

        • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

           Hmmm… now that i have taken a picure of it, i guess its not as bad as i made it out to be. I’ll take your advice to hard. The cold morning ir makes it all the more worst, but i will get through it.

          • http://www.danielxmiller.com Daniel Miller

            He is right on that, which was one of the hardest things for me to learn. It is still difficult to this day, but I have found it’s a lot easier the more you do it, so keep going! And your lips look pretty good compared to most people with this condition!

        • http://www.danielxmiller.com Daniel Miller

          Glad you are taking it so well!  Your lips aren’t as bad as mine were in the beginning, so that is good news. :) Keep me posted on your progress!

  • Michael

    Hi Daniel,

    First of all I want to thank you for creating this amazing guide for fellow sufferers of this condition. It literally is one of the hardest things to try and overcome (cosmetically). In my case I believe this stemmed from when I was on Accutane seven years ago. Even though I would moisturize my lips, the side effects were just too harsh and my lips were constantly dry and chapped. This is when I would start biting or picking off the skin, but as we both know now – oh how we should have just let it be. So every time new skin would try to form, I would just pick it off. I just recently realized that this was a serious problem and decided to try and do something about it. This was about a month ago once I finished my job hunt and the interviews that came with it. I’m not sure if this was a great time to start since I was meeting new people at my new job and wanting to show my true personality. Unfortunately, when dealing with this – it’s kind of hard to.

    I think my EC is a little different in that my lips have never bled and the scabs have never been that dark red/blackish colour. So maybe (and I’m hoping) that my wounds are not as deep as yours. But who knows, I could be wrong. This wouldn’t be EC though without the many other problems. First off, I have a lot of smaller wounds, especially on the outer edges of my lips and on my top lip that just can never stay on (wondering if you have a solution for this or have run into this problem). I’m also lucky in that the wounds only cover about half of my lip (the inner portion) so that when my mouth is closed you can’t really notice anything (except maybe a few pieces of skin sticking out). I think this is because in the past month or so, a lot of it has healed. But I do get extremely embarrassed when I’m talking because it’s almost obvious that people can see the flaps of skin moving up and down as I speak. Anyways, some of my close friends who don’t really understand this have been constantly telling me to moisturize my lips because it would make it look a little nicer and would help. For anyone who is reading this – if you’re dealing with lip wounds – do not moisturize. This will just cause the scabs to fall off and the healing process to begin again. I found this out the hard way a week ago. Even though I was set in wanting to leave them alone and just wait for the healing process to take over, I listened to everyone around me and put some vaseline on the scabs before bed. This not only ripped off the skin, but also ripped off ALL of the scabby skin on the top lip as well, which means I had to start all over again. So now I’m becoming self conscious all over again, knowing that it’s going to build up all over again. Thankfully, it doesn’t look as built up as some of the other pictures I’ve seen.

    What we have to realize is that yes, when looking in a mirror 2 cm away, it’s going to look bad. But when talking to people or walking past them at a normal distance, all they will notice (if, anything), is that we’ve got some chapped lips, which as we know is a very common thing. So this is what I tell myself every second of the day. Maybe I should also be working on not thinking about it at all. Oh well.

    I’m also going to a walk-in clinic tomorrow to get some tests done to see if there is anything else wrong with me, as I have also been having digestion and fatigue issues. So we’ll see if there is something lacking in my system.

    So that’s my story. I’m still trying to figure out how I’m going to brush my teeth. This isn’t healthy at all, but some days I’ve just been using mouth wash, which I’ve got to stop. I’ll have to take another look at your video.

    Anyways, thanks again Daniel for showing us your progress and giving us all some hope.

    All the best,

    Michael

    • http://www.danielxmiller.com Daniel Miller

      Hey Michael, sorry you have this too, but together we will all become healed :)

      I have heard of many many people getting this condition from Accutane. The two theories I have are that a) it dries out the skin so much that it causes you to pick at it, eventually becoming EC. and/or b) the drug messes up your digestive system, which a lot of people believe is directly linked to the lips. Once the digestive system has issues, the lips will inflame/swell causing the peeling/dryness to begin, which eventually becomes EC.

      I’m not sure if I’ve seen a picture of your lips, if you have posted one please point me in the right direction. My lips looked almost completely normal all of the time when I was covering it up, so the scabs never built up until I started leaving them alone. This could be the reason. And yes Vaseline is bad :( sorry it hurt your lips!

      Let me know how the clinic went, and what they recommend. One thing you must stop doing now is using mouth wash, that stuff is horrible for you. Toothpaste is the only thing you should be using, and make sure it is a completely natural toothpaste. I recommend fluoride free and SLS free. You can get these kinds at a local Whole Foods store, or online. I would also recommend getting an electronic toothbrush, like Phillips Sonicare Flexcare. That’s the kind I use and it’s amazing. If you need a cheap one for now, you can get a Crest Spinbrush. But get something that spins or vibrates so you don’t have to cause too much trauma to your lips when brushing. And do your best to make sure you don’t get toothpaste on your lips when spitting it out. Use small amounts at a time.

      Keep us posted :)

  • The ascendant

    Hey there, its me again. Today a big scab fell off. It kind of looks worse than before… the skin looks really red and it kind of hurts. Have you had the same experience Daniel? Maybe the skin is growing back including nerve cells. The area where the skin had been off for years was not sensitive at all. I hope its a good sign. One pic for everyone to see…

    • Bob

      I think the scab might’ve fallen off a bit too early. You have to let them fall off by themselves, I have scabs on my lips that have been on for 3 weeks! D:

      • http://www.danielxmiller.com Daniel Miller

        Let me know what they look like when they do come off and how they feel!

    • http://www.danielxmiller.com Daniel Miller

      The skin is definitely growing back, however when it is sensitive that means that it came off a bit too early. It’s difficult to keep it on for as long as possible to avoid this, but I assure you it is the fastest way for them to heal. I too did not have the sensitive feeling for the years that I peeled the skin off, so it takes some getting used to. But do you best and keep us posted! One thing is when you are in the shower to not let the water hit your lips, have it hit your head and run down your face onto your lips that way it doesn’t put a lot of pressure on them.

  • The ascendant

    Hey Daniel, I just noticed that you dont have pics for weeks 1 – 4. How did your lips develop during that time? Did they only start looking so bad in week 5 or already before that? Cause my lips in week 2 look like yours in week 35-37…

    • http://www.danielxmiller.com Daniel Miller

      They progressively got worse, I didn’t plan on doing this site when I had originally started my second attempt, so that is why I don’t have any pictures. However they looked relatively similar to yours. One thing I should not have done was leave them completely dry the whole time, which caused them to get worse.

  • Pearlpowder

    Hi daniel,
    How are your lips? Thank you for making this site. Its really helpful.. Want to share my story,.. Mine started when i tookaccutane on March to July of 2012. The effects (lip peeling) started june. But it would go away and last for 3 days. I got peeling lips every month since then.. But it would heal itself.. But on September, the effects of the medicine got so strong that no amount of petroleum jelly or organic balm can hold it.. I have been using petroleum jelly on it since july2012. I thought it was an infection, so i applied, bactroban, dequadin, hydrocortisone, zovirax, rowagel, fusicort, solcoseryl, daktakort… Name it i tried evrything…
    So my lips would heal everytime, but the dryness and peeling would come back.. The skin of my lips turned crusty and olive green. I went to a dermatologist and told me to stop everything.. So my lips would detoxify.. She told me to compress my lips with sodium chloride, which was a mistake.. It made my lips bleed.
    So now im just doing what you aredoing, just leaving them alone. And letting them fall off on its own. I dont wet it, coz it gets dry and it stings. I put coconut oil once, sometime twice a day with a cottun bud. Applying jus a very thin coat. Coz the coco oil, would sting a bit. Donfresh

    • http://www.danielxmiller.com Daniel Miller

      Many people have reported Accutane causing this, and I’m sorry it happened to you as well. Yes, Vaseline appears to be a problem for most people, so that is the first thing I tell people not to use.

      Keep us posted on your progress, and let me know how it goes over the next few weeks!

      • Pearlpowder

        Hi daniel,
        How many times do you wet your lips? And does this make it drier and slows down healing? I just wet the corners of my mouth.. Also do you apply anything on your lips now? Your top lip looked amazing on nov14..
        Last thing, do you let food touch your lip?

        Applying coco oil on the mid part of my lip,(as an experiment) once a day helped. It has not shed off for a week now..
        Also drink enough water…not too much though as if could cause overactive bladder. Im also taking vitamin c,e and d3 (from fish liver oil).

        • http://www.danielxmiller.com Daniel Miller

          I wet them a couple times throughout the day, sometimes only once like when I take a shower, but I make it a point to do it at least once a day. And it appears to make it dryer than normal, however that feel goes away after a short time. The main thing that matters is that the skin protecting the lips stays on and doesn’t peel off early. And an overactive bladder doesn’t really correlate with drinking too much water, sure you’ll have to pee more if you drink a lot of water, but that is normal. If have an overactive bladder then you are peeling multiple times when a normal person (consuming the same amount of liquid) should have to. :) feel free to drink as much water as you want, it is very good for you.

          • Pearlpowder

            Hi Thanks Daniel for the advice… See you soon…

  • the ascendant

    Whats your theory about why its helpful to get your lips wet under the shower and why do you think saliva is good? I tried both yesterday and one scab might have come off because of it, and that was after I let it dry for 15 min… Also my lips started burning…

    Why is it not good to keep them dry?

    You said, that your lips looked similar to mine in the first 2 weeks… You think mine can become worse?

    • Pearlpowder

      Hi from my experience, do not wet your lips. You can wet the sides of your mouth by using a cotton bud or your finger tips (just a tiny drop of water 3x a day) or do this after you brush your teeth. So that the sides of your mouth will not dry up. Then leave them to dry on its own. Wetting the scabs , just dries up the lips more. But the fresh ones, you may wet them but just a (1x a day)dab of water. Dont wet them when they just shed off, wait until it forms a barrier.
      When you feel that in between your inner lip and outer lip is building up. Use saliva to keep them from forming. Hope this helps.

    • http://www.danielxmiller.com Daniel Miller

      A lot of people have different views, but if you go solely on my attempt and look at the beginning, for several months I did not get them wet at all and this caused my ec to spread to nearly my entire lip. Once I started wetting them multiple times a day did they really start healing. So I am just going off that.

      As far as the scab coming off, if you are just starting this, the scabs will actually come off relatively easily. Only after several peel cycles will the skin start to build strength and cause it to not peel off easily when they get wet.  Just give them time :)

      I don’t know if they will become worse or not to be honest, we’ll just have to see, the only thing I can suggest is just try to be as gentle as possible with your lips. Keep me posted on what happens.

  • Bob

    Hey Daniel, what’s the longest a scab has stayed on your lips?

    • http://www.danielxmiller.com Daniel Miller

      A few weeks, maybe a month perhaps…

      • Will

        So ideally, you would say the target time for trying to keep the skin on is 3-4 weeks?

        • http://www.danielxmiller.com Daniel Miller

          Yes, which correlates to the cell cycle lifetime (birth to death) of just over a month. As more layers heal however and the flakes get smaller, the time that it stays on will shorten.

          • Bob

            What do you mean by cell cycle lifetime? Are you saying it takes the lips a whole month for new cells to grow?

          • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

            In the human/mammal body, it can take up to 24 hours for ONE cell to divide. So I guess it can be possible

          • Will

            Alright, well my goal now is to hit 3 weeks without the skin falling off (somehow…). This Christmas is going to suck… :-P At least I got to enjoy Thanksgiving without the callus.

  • Tarik

    Dude i just did some intense cardo…and theres white stuff under my moustache, is this because of the exercise?

    • Pearlpowder

      White stuff is just skin from your lips.. That got wet from perspiration ..

  • Will

    Tried Vaseline like the doctor said. It made the hard skin soft, but the doctor didn’t say how often to use it, so I used it once a day at night. By the third day I made a mistake and let tooth-brushing water touch the heavily callused area of my lips, which made them really wet for the first time in a while. Then I wasn’t sure if I should use Vaseline  I waited a while for them to dry, but I thought I might as well. Big mistake, it kept the lips wet and gross. The next day the thick layer of callus skin that had been hard was oily, detached and moving around, I tried to keep it where it was supposed to go, but it got so gross and loose I removed it (it just slid off with little effort). Underneath the skin was very smooth and appeared hypersensitive, in a few hours it started getting wrinkled and “damaged” even though I hadn’t touched it and had barely moved my mouth (it’s likely building up the new layer of “dead skin” out of the new surface skin). This was also surprising because that callus had been the thickest yet, so this was definitely skin that had never been touched.

    I would def say that Vaseline is very dangerous, I guess you could only use it if your lips got REALLY dry (only use it once and then let it rest a few days). If you overuse it, it will damage the callus and cause it to fall off prematurely (not that there seems to be a set time for when the callus should fall off so far… no matter the length of time, the next layer always seems to be worse than the last). 

    I would also say the doctor’s theory that I have a Colgate allergy is pretty much shot… Since I haven’t used it in a week and the skin continues to form a dry layer.

    This time my callus lasted one week.

    • http://www.danielxmiller.com Daniel Miller

      I had the exact same experience with Vaseline…. :( At that point I was determined to find an answer, and thus started this method that I came up with in March :)

      • Will

        Well, it seems at least that leaving the scab/callus layer on for so long (well, a week) was a good thing. The skin underneath has remained much smoother than the layer that fell off. It’s still drying up and sensitive, and I still think it’s going to form a callus again, but it’s taking its time. Also, it seems like most of the “damage marks” from peeling and biting seem to have not shown up in this layer :-) (before each new layer always looked worse than the last). The only marks on it seem to be fold marks so far (it has more wrinkles than I would like). Although it’s still only a couple of days since it fell off. Hopefully I’ll be able to keep this layer on for 3-4 weeks and have a similar improvement next time my scab falls off. 

        Also my top lip is not scabbing or drying at all so far! It’s looking pretty darn normal. And the top fell off 4 days ago I think.I’ve really gotten to enjoy two and a half days of normal looking lips (Though I’m afraid to ruin it by smiling or talking too much haha).

  • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

    About the water thing, when and how many times a day would you recommend wetting your lips.
    & if you do, should you not move your lips until it dry?

    • http://www.danielxmiller.com Daniel Miller

      Once or twice…I usually do it once while I am in the shower…Just let the water hit my head and run down my face over my lips. And you can talk and stuff, just don’t rub your lips or make the crusts move…you should be fine that way.

      • http://profile.yahoo.com/RV73BS7ET2YY4BWLEHJ3UOKV3Q iDominant

         Oh. and one more thing. I’m under the impression that the bottom lip is suppose to be 1-2 giant scab(s). How do you keep it that way without it splitting or etc.
        Mine keep randomly forming holes in them.

        • http://www.danielxmiller.com Daniel Miller

          Just let the skin do what it needs to do. Try to avoid smiling because that will stretch the skin and cause trauma. Yawning was also a huge problem for me…but just leave them alone, they will look like what they need to look like. Your body is healing them. It knows what it is doing :)

  • Will

    Brushing teeth is def going to be the biggest challenge for me… I wonder if I could use some kind of device or tool to shield the lips from water when I have to spit it out… (I wish I’d taken that plastic product design course back in college…).

    • Will

      Actually I had an idea and it kind of worked. I used a plastic cup to get water into my mouth to rinse out the toothpaste after brushing, then I spit the water out back into the cup (rather than over my lips). I used the cup itself to cover all of the lower lip as water went in and out. It shielded the lower lip (my main damage area) from 99% of the water & toothpaste and I was able to brush my teeth no problem, I think once I get good at it, I could shield the lower lip from all of the water. I also used a sheet of bounty to dry the outside of the cup (you could also dry any water that might touch your top lip with the bounty sheet before you close your mouth). This might work out really well for the long term for people who need to brush their teeth while they heal, especially for people with mainly lower lip damage (I have to test it when my callus builds up again to see how white it gets, but so far so good).

      • http://www.danielxmiller.com Daniel Miller

        It’s pretty easy to not get toothpaste on your lips. The key is to use small amounts of toothpaste at a time. Start with the bottom front teeth, apply a very tiny amount, and brush that part of your teeth. Place your head horizontally over the sink and just let everything ROLL off of your tongue. If it doesn’t all come off, just use your brush to wipe your tongue off. This will keep everything from hitting your lips. :) Then start with the bottom back, repeat, then the tops. Hope that helps!

        • Bob

          Thank you Will for the cup idea lol I actually used it today and it worked and covered most of my bottom lip from the water & toothpaste. A little toothpaste got on my scabs but I just have to be a little more careful when i’m brushing (x

          • Will

            Hey Bob, no prob. It was kind of a game changer for me cuz i can’t really live without brushing my teeth and with the cup I can use as much water as I want without damaging the lip.

  • Cameron

    Hey Daniel, whats your opinion on using an all natural lip balm? As long as I’m leaving my lips alone and not peeling them, do you think this would be okay, or would it stop the lips from healing properly? It’s been about a month of leaving them alone and I’m sick of feeling like i can’t go out.

    • Bob

      I’m right here with you man, tomorrow will be exactly 4 weeks that I’ve left my lips alone & I still have the same scabs on that I had at the start of this -_____-
      This was one of the hardest months of my life! These scabs literally make living my life so hard! But seeing Daniel’s progress and how his lips continue to improve every week, gives me the motivation I need to beat this. Daniel I’d just like to say thank you for making this site, you truly are an inspiration to me and without you I probably would’ve just continued to apply lip balms & stuff on my lips but I will never apply anything to them at all until they’re fully healed again. Also thank you to everyone that’s doing this method & updating us, hearing about your progress really gives me the motivation I need when i’m feeling a little depressed. It just sucks that I’m going to be spending the holidays with these horrible lips & also my birthday is on your new year’s eve and that just makes it suck even more. Oh well, not much I can do about it. I really hope we can all get healed soon tho, good luck (:

      • http://www.danielxmiller.com Daniel Miller

        It does get better. The first few months were so hard for me, but telling the people I was around all of the time made it so much easier for me. It was like a huge relief off of my chest, and I recommend involving everyone close to you.

        And you’re welcome :) I’m very glad I made this site, I didn’t think it would turn into such a popular page (unfortunately for our sake…hah), but I’m so happy to be able to share my experience with others and to give them hope when it seems there is none everywhere you look. Plus you don’t have that “I’m all alone” feeling, as you finally know you aren’t the only one with this condition.

        I’ll be spending the holidays with horrible lips with you :) but I hope you have a happy Birthday, mine is in February….so I’m guessing I’ll still have somewhat unattractive lips during that time.

        Keep Chuggin :)

      • Will

        Yeah telling your friends and family makes a huge difference (they were the people I kept trying to hide this from, thus the main reason I kept peeling my lips… once they were in on it I had no reason to peel them anymore). In fact the more I talked with my family the easier it got. We’re all on the same page now about what I have to do to get better.

        I would also say it’s a good idea to have a side project to focus on while you heal, studying is a great idea since it gives you an excuse not to socialize (so you can give your lips a break). I’m studying for a bar exam right now, but depending on your age you could take on an LSAT, MCAT, GMAT, GRE, SAT etc.

        • Bob

          Yeah I’ve already told my friends & family about it and even showed them a couple of pics & they understand and everything but they just don’t know how truly hard it is or know exactly what I’m going through or how I’m feeling. I feel like they think that I’m over exaggerating the situation & it sucks cause I can’t hangout with them & do all that ‘normal’ stuff without worrying about my lips & there’s really nothing I can do besides just wait & try to get better. I hate waiting lol especially when it’s going to take a couple of months to get fully healed but yeah I agree you have to find a way to past the time so that you don’t think about your lips all the time.

    • http://www.danielxmiller.com Daniel Miller

      I know how frustrating it is…but all I can say is I wouldn’t use anything. However you are more than welcome to try and see what happens. I’m afraid that most likely using the lips balms will just cause the skin to build up looking moist, however at some point you won’t have an option but to not use lip balm otherwise it will tear the scabs off… =/

      • Cameron

        Allright, thanks for the help man, I think i am probably going to use the all natural balm for a week or so as an experiment and see how it progresses, if no luck i guess im back to leaving it alone :/

        • http://www.danielxmiller.com Daniel Miller

          Let me know what happens!

  • Tarik

    4 months and still going loooool, tbh the first 2 and a hlaf months was like a marathon of the cycle, from now its like im getting closer and closer to the finishing line! I can seriously start living life proper again in a few months inshallah!
    Ive already started my insanity workout and next summer, me nd sume friends will be starting taekwando lessons, gonna be partying and having fun after exams aswell!
    All of this is thanks to u for making me see the light and making this site, uve given me back my life in some ways lool cant thank you enough man! ur an inspiration to everyone!

    • Bob

      Man I can’t wait til see what my lips will look like after leaving them alone for 4 months…only 3 more months to go lol
      So Tarik you no longer get huge scabs on your lips? Are they just thin?

      • Tarik

        they are very thin now! just a bit smaller than daniels top lip ones! and it forms just one scab along my bottom lip….after 3 weeks it splits into two and peels of from the side…the skin underneath is never stingy or raw anymore, it feels soft like its normal….after 3 more months it should all be better! the scabs cover only like less than a half of my bottom lip and the top lip has no more scabs just kind of dry skin which falls of and the skin underneath is normal like a normal persons! :)

    • http://www.danielxmiller.com Daniel Miller

      That’s awesome buddy! So happy to hear you are doing so well :) After you are cure for two months I would love to add you to the list, so keep us posted :) . Keep on chugging, lol. Glad I was able to help you.

  • Tarik

    My derm who also made fun of me when i said that im gonna leave them alone and she said that it will never get better withou medication….in 3-4 months time im gonna go back there to my derm and make her look like an idiot when im cured :P

    • http://www.danielxmiller.com Daniel Miller

      haha, yeah doctors for some reason believe only medicine can cure anything…but that just is not true :)

  • Tarik

    Its actually hilarious tho how much effort i put into making my lips look good on a daily basis for the entire year of 20111 to summer of 2012 LOL. I used to wash my face deeply, brush my teeth fully with skin coming off most times, shower every morning, pull of any skin that needed to be, then put steroid cream loool. Now all i do is shower once at night time gently, and in the morning splash my face with water and brush my teeth….so much easier!

    • http://www.danielxmiller.com Daniel Miller

      haha yeah I was thinking the exact same thing :) I never have to look in the mirror and worry if my lips are changing :)

  • Pearlpowder

    Hi daniel,
    i read in a blog about a guy who had EC, he got healed by taking omega3 fish oil 1000mgsupplement… I will give it a try tomorrow.. Will keep you posted…

    • http://www.danielxmiller.com Daniel Miller

      I eat raw fish a few times a week, so I get more than that supplement in the natural form. It most definitely helps!

  • Will

    Daniel, I noticed that your first progress photo is for week 5. Does that mean that your callus didn’t look so bad until you tried leaving it alone for 5 weeks? Would you say the callus accumulates damage the longer it’s left on, leaving it looking strange after a while?Also, it’s hard to keep them on man, haha. Been 6 days since my last peel and it feels like an eternity, my no peeling record is still one week. No wonder my lips got so bad, I must’ve been peeling them like they’re a crop to be harvested every 2-3 days.

    • Tarik

      looool u think keeping them on for 6 days is long, try keeping them on for 7 weeks straight! Im on my 4th month of doing this now btw and have seen my lips completely turn around from pretty much fully covered in scabs, to see my entire top lip cure and my bottom lip is now only infected with one scab along my bottom lip covering less than a half. Also the scab is very thin sooo my friend the longer you keep doing this the thinner the scabs will get! :D

      • Nick

        Hey tarik,
        After reading some of your posts it seems like you’ve had a lot of success with the leave alone method. Do you also splash water on to your lips about once a day? Does it work?

        • Tarik

          I do that yh. It makes them feel better and good for after meals aswell just to cleam them and freshen off abit. Cells heal better under those conditions instead of dry ones aswell. I suggest you do that but how long have u applied the leave it alone method mate

          • Nick

            Almost 3  weeks now, i’ve noticed that the scabs have gotten smaller in surface area and are less thick after just one peel! My top lip was a little better than daniel’s after week 30. I’m currently going to school and working so I often have to talk and i think that might be slowing down the healing process. I really want the top lip to be healed for xmas :D (also, its mostly the underside of my top lip that peels)

          • Tarik

            how about your bottom lip? is that affected and how much if so?

          • Nick

            My bottom lip is way worse but i feel treating both at the same time would be too embarassing so im going to do the top lip now and then when my spring term is over ill become a hermit and cure the bottom lip : )

          • Tarik

            nooo man trust me healing the bottom lip is going to take alonger time, probably a year to be back to fully new fresh lips! Start now and get it over and done with to get ur life back on track! Just take it like a man and explain it all to ur friends! You can get through it! If Daniel can do it so can you!!!

          • Bob

            I’m almost to week 5 and my lips look like shtt lol
            Tarik how many weeks or months did it take for your top lip to get cured? And how is your bottom lip doing?

          • Tarik

            Honestly mine were worst then jaye’s when i started 4 months ago, really bad loool! after 3 months my top lip prettyy much healed. 

          • Tarik

            Because mainly i didnt pick it and i lived life like it! I explained to my friends my problem and continued my daily lifestyle like i did when itook the ksin off! I go gym do insanity workouts, go cinema go out alot with my condition! Hang around with girls and everyone is supportive. When ur comfortable with it around people months fly by and u dont imainge u have it anymore

          • http://www.danielxmiller.com Daniel Miller

            I agree with Tarik, do them both at the same time, you are just prolonging the heal time if you wait…just do it and get it over with :)

      • Kostinos1 2

        Hi! How long have you been suffering from EC? Because we do not have all the same duration so I quess if you have EC only for a few months it will be easier for you to heal.

    • http://www.danielxmiller.com Daniel Miller

      haha yeah so was I, every single day and multiple times throughout I would rub the dead skin off…=/ now I have to heal them…and no they looked bad after a couple weeks, but I was applying chapstick during that time, so they didn’t get too dry. I didn’t plan on doing this website or weekly pictures when I first started, so that is the reason why there are no pictures during the first few weeks.

      • Will

        So I went to a third doctor, my dad convinced me. Said this guy is the best skin pathologist around (where I live)… steroids again for five days (slightly stronger than before, and a different type), then aquaphor, I really doubt it’s going to work any better than last time I tried steroids. I don’t know what aquaphor does, but it’s probably not going to help too much, or look pretty. But it’s so hard to keep the skin on that I figure it’s worth a shot before I fully commit to just leaving the skin on. Also it’s frustrating to see crust forming beneath crust every time there is a crack… you just end up having multiple layers of crust. 

        • http://www.danielxmiller.com Daniel Miller

          Yeah
          well you’re welcome to try whatever you need to before this approach as its
          easy to give up if you have hope that something else might work. But for the
          record I used aquaphor for about 2.5 years with no luck and it only got worse :(

          • Will

            Well the doctor said to try it for two weeks. I don’t have my hopes up, but who knows maybe the doctor is right. I think it will be easy to tell if it’s not working so I can at least cross something off the list. The doctor only asked for a couple of weeks to see if steroids+aquaphor worked. So far, I don’t think it’s working, the underskin looks to be forming wrinkles again, though it’s still soft. I think the doctors get too hung up on fixing the dryness problem without realizing that the slimy/humid/white problem is much worse. But it’s hard to have them slimy/white when you walk into the office. At least this time I have pics.

          • http://www.danielxmiller.com Daniel Miller

            Let me know how it goes, as I do recommend trying everything you are able to before resorting to this method…it’s not an easy one for sure. Just try to keep the lips as moist as possible all of the time WITHOUT peeling or rubbing any skin off at all. See how that goes for you. Some people report good progress with that method.

          • Will

            Well, steroids don’t seem to have worked, again. I had another meeting with my doctor where he finally said “you might have exfoliative chelitis” (he recognized it as a medical term, and in fact, I have a copy of one of the best books on dermatology of the lips, and it shows up as an actual condition, so at least one of my other doctors was wrong).

            I’m going to get tested for allergies using the IgE test and the patch test to rule out Atopic Cheilitis and Contact Cheilitis. I’m pretty sure it’s not any of the others from what I saw in the book and discussed with the doctor.

            Diagnosing EC is a process of elimination. I feel like the first thing a doctor should tell a person with possible EC is:

            Make sure any medication you are taking is not on the list for drug-induced cheilitis,Make sure it’s not candida or another fungus (for fungal infection),
            Make sure there is no redness and/or fissures outside the lips (angular cheilitis and many other conditions),
            Try steroids (ointment form) for 5-14 days (for ordinary cheilitis),
            Try petroleum jelly based product like aquaphor for 2-3 weeks (for ordinary cheilitis and chapped lips),
            Get the IgE test (atopic cheilitis),
            Get the patch allergy test (contact cheilitis),
            Get the biopsy.

            It should be pretty clear within about 2-3 weeks that what you have is EC since a negative on all those tests rules everything else out (doctors won’t prescribe every test at once though… they’ll do it one by one and make you come back like 5 times… also they like to play hide the ball for some reason and won’t tell you everything they could… :-/). However I think that approach is wrong, all of those tests should be done as soon as possible to prevent undiagnosed EC being treated incorrectly (and to save time, money and stress for the patient). Every type of cheilitis has slightly different treatment regiments, so you really have to rule them all out as soon as possible since steroids and topical ointments can make EC worse.

            I’m thinking of expanding the wikipedia article on EC to include this process for diagnosis. This information is all from “Dermatology of the Lips” by Christopher Scully, Roy S. Rogers and several others. An excellent book by the way. I’m also thinking of just making my own website for this condition just so I can put all the information I’ve found in one place.

            If all my tests are negative I’m upgrading my efforts to world class doctors (already hunting around in NY, NJ and MA). Although my expectation is pretty negative that anyone will know how to properly treat EC :-( .

            I feel like the biggest problem with this condition is a lack of reliable information available to the public and a lot of unreliable “cures”.

          • Will

            At least this time I know how to keep water from hitting them, and I know not to pick them off if they turn white again. The steroids approach might have worked a few weeks ago if I had known that.

          • http://www.danielxmiller.com Daniel Miller

            It’s good to get water on them. Just don’t let the pressure hit them. :)

  • Nick

    Hi Daniel,

    Is the underside of your top lip completely healed now? I’m currently healing the top lip and it’s been 2 weeks of leaving it alone and the skin is a lot thinner than after it’s first peel. My EC on the top lip was about the same as yours in week 30. I have two questions. My center of my top lip peels about every 7 days and the sides peel about every 3-4, did this happen to you as well? Also, during this healing process, did you keep your mouth close and breathed through your nose or breathed through your mouth because I’ve noticed that breathing through my mouth keeps the lips dry and I’m not sure if this slows the healing or not : S

    • http://www.danielxmiller.com Daniel Miller

      No it’s not completely healed, but the skin no longer builds up much at all, which is great news! Now..just waiting on the bottom to start doing that lol…I’d say that it probably peels around every week or so, it changes a lot actually…as far as breathing through my mouth, I breath normally…most of the time through my nose, but if I need to breath through my mouth then I do. Doesn’t cause too much of an issue. :)

  • http://www.danielxmiller.com Daniel Miller

    If anyone would like to send me letters or cards, I just got a PO Box :)

    My address is:

    Daniel Miller
    PO Box 21982
    Tampa, FL 33622

    • Abdo

      Is coconut oil should i use?

      • http://www.danielxmiller.com Daniel Miller

        If you are wanting to keep them moisturized then yes that should be fine, however the treatment on this site is about leaving them alone using nothing :)

      • Pearlpowder

        I used coconut oil (of course its a different reaction for evrybody) a portion of my upper lip shed after a week and it stings a little.. So i decided to leave them alone.. And its still up there, for 12 days now… Hope this helps

  • Abdo

    Wish best of luck,,,i have the same problem,,, 20 days ago, i went to the doctor, he said u have bacteriial fungus on lips,,,gave me vitmains capsules,, asnd same course,,,and also gave me kenacomb ointment…….have u tried this ointment?…….it jst help me very. Lesss……my lips become dry…when i dont put this ointment,…and the layers becomes white when i take shower…do u have the same problem?…..and also….it peels every three to 4 dayss…..what u say what ahould i do?…..plz tell mee

    • http://www.danielxmiller.com Daniel Miller

      I haven’t tried that exact ointment, but it sounds like it’s doing what most of the other one’s do, which is nothing…the only thing I can suggest you do is exactly what I am doing, and that is nothing and let the lips heal on their own. Let them get wet in the shower without water hitting them (let the water run down your face onto them) and just live life until they the body heals them itself.

    • Mido

       where you from

  • JC

    Daniel whats worse in tooth paste for your lips the SLS or fluoride?

    • http://www.danielxmiller.com Daniel Miller

      They are both horrible, I don’t know which one is worse, however. I avoid any kind of unnatural chemicals… :) You can get completely natural toothpaste online or at a whole foods store. Just be sure to check the active and inactive ingredients.

  • Tarik

    Ahhh man u should try the insanity workout, its the best thing in the world loool, in the next 6 months, ill have abs, new lips and no acne looool triple threat :P

    • http://www.danielxmiller.com Daniel Miller

      I’ll have to look it up! I love doing power yoga :) have you tried that? It’s pretty awesome as well!

  • Adele

    Hi Daniel,

    What your doing is brilliant! I also have peeling lips (surprise, surprise!!) it started for me in 2010, I got run down, got a cold sore and really dried out my lips whilst trying to dry out the cold sore :( started putting Chapstick on, but it was making it worse?!? Went to Drs, “they’re just dry” put on more Chapstick! Next dermatologist “they’re just dry, put on even more Chapstick” I replied, it just makes them worse, his reply “impossible!”
    Anyway to cut a long story short, I decided to do……. Nothing and they eventually healed in about 6 months, I had 5 months with perfect lips again and BAM coldsore! What did I do? Dried my lips out again and tried to fix them with Chapstick!!! Stoopid or what! So now I’m back with peeling lips again but I am doing nothing and the slip on my bottom lip has healed but the skin is sooo tight and dry :(
    Just a quick question to you all, do you let your lips get wet? And does anyone get a slight burning sensation on your lip line?

    I’m with you all the way on this one Daniel, nothing on them is the best option!

    Thanks for the site x

    • http://www.danielxmiller.com Daniel Miller

      Thanks for the support :) and so sorry you got EC again! Hopefully it can heal within the same time period for you again. To answer your question I get them wet once or twice a day usually in the shower. And I don’t get any burning sensation, I used to if I used products like Vaseline at times, but since I started using nothing, I haven’t had any burning feelings.

      Let me know how everything goes for you!

  • Cameron

    Hey Daniel, so I tried the all natural lip balm for about a week and it didnt work. I was pretty much expecting this lol, but its easy to get your hopes up on these different products when in reality they all seem to work the same. I found that the consistency of the lip balm was way too thick so when i would rub it on my lips it just rubbed off more skin, so it really defeated the purpose. Even though I didnt have any thick hard crusts I could tell that the skin underneath would resume the same process when i stopped using the lip balm, and since i stopped thats what it did. This got me thinking though that maybe if i can use something that I can just dab onto the skin then it would still be able to protect the skin underneath without rubbing it off, while still letting it heal. So, I’ve been using polysporin ointment with vitamin E for a few days now. It’s light enough that I can just dab it onto the skin without rubbing off any layers, and it also stays on for a few hours. I think you’re method is working for you but I’m leaving it as a last resort because I don’t have much more time that I can let my lips heal on their own. Anyway maybe this is just another way of me getting my hopes up over nothing lol, but I’ll let you know how it turns out.

    • http://www.danielxmiller.com Daniel Miller

      Yes that is a good idea to use my method as a last resort, as it is by far the most difficult and the longest treatment plan…however I firmly believe it will work if all else fails. I think the main thing is to not peel the skin off, if you are putting something on them that doesn’t cause that then I believe it very well may heal…however it will probably build up a lot just like mine, and eventually the product won’t be able to do anything…but let me know how it goes :)

  • Will

    Did you ever try Tacrolimus? I’ve seen multiple mentions of that working. It’s got some crazy looking side effects though.

    • http://www.danielxmiller.com Daniel Miller

      I haven’t heard of it before…I’ll have to look it up

      • Will

        One of the guys in your forum mentioned it (the guy from India who was cured).

        • Alesb

          Will, he’s not heal, you can believe me, protopic (tacrolimus) hide the symptom like corticoide ! If the indian guy stop use tacrolimus, his cheility come back ! I hope i’m wrong but…

          • Will

            He’s not the only person who claims success with tacrolimus though, there is also this medical website from New Zealand that lists some success with tacrolimus as well: http://dermnetnz.org/site-age-specific/exfoliative-cheilitis.html. And there was a 2004 study that reported a case where a person was cured with tacrolimus.

    • Alesb

      Daniel tacrolimus is protopic ;)

  • Will

    Diet questions. Can I eat these using your diet: corn, potatoes, butter, margarine, rice (white/brown?), bread (multigrain), cheese, milk, pasta?

    Ate some white garlic bread today… I know it’s bad but it was sooooo good.

    • http://www.danielxmiller.com Daniel Miller

      I don’t recommend the butter/margarine, nor white rice (brown is great!) no bread, and I only drink raw milk personally. Some people believe we shouldn’t drink dairy at all so that is up to you…I haven’t experienced anything negative drinking it or not drinking it. But get rid of the WHEAT (Gluten) in your food, that’s the most important thing :)

      • Will

        Not even whole grain or multi-grain bread?

        Also what about potatoes and corn?

  • Tarik

    dude every time i do my insanity workout and sweat goes on my lips, tinny whites stuff appear after my shower under my moustache and below my lips. what is this and do u get the same thing, its constant now, do uthink i should stop my exercising??

    • Will

      My peeling lip skin turns white when it’s wet (from water, steroids, petroleum jelly, etc.). Do you meen the skin itself is turning white?

      • Tarik

        noooo only when i exercise and insanity one stuff apears under my moustache. The actual crusts have got sooo tiny on my lips now that their less than half-way and dont really turn white…thats not the problem for me anymore

        • Will

          Not sure what that might be. What is the “white stuff” like? Is it a liquid? Does “under my mustache” mean that it’s coming out in the area of skin above the lip and between your nose where your mustache hair follicles are? Or do you mean the sharp edge of the top lip between the mustache and the red part of the lip? What is it coming out of, the pores? It might help if you take a picture of it.

          • http://www.danielxmiller.com Daniel Miller

            Yes I get that. I believe it is caused from your EC spreading to the outer areas of the lips, and since that is regular skin and not a mucous membrane, it behaves differently…the main thing is to treat this like the lips and DON’T rub it off. It has REALLY helped me with healing that area….but it’s still not healed yet. I’m 99% sure we are both talking about the same thing.

          • Alesb

            Daniel, Tarik

            I think i’ve the same thing ! It’s on regular skin and not mucous membrane.. It’s like small square white, i don’t touch it i hope i’ll disapear with time…

    • Nick

      Tarik, 
      If it’s dry skin appearing under the nose, you’re probably taking showers that are too hot. That used to happen to me.

  • Lisa

    Hi! Just came across this as I have, once again, been searching for other people’s stories and hopeful cures. I’ve been suffering a few  years now, and a friend helped me realise a year or so back that I needed to stop using stuff on my lips and to just let them be. It was excruciating and wasn’t working, so I went to a health shop and was recommended a cold sore ointment, a barrier cream basically. This really began to help, and bit by bit the peeling slowed down, until I was only using the ointment every 3-4 days. Then… I had a baby. It was a rather traumatic time and I had no energy or strength to keep going with my lips, even though I was very conscious of what was going to happen to them. And with my days and then weeks of lack of sleep, my poor diet where I ate what I could when I could, and the stress of trying to heal from the birth… I am now back to the beginning :( I am once again trying to cure them (I had nothing on my lips this entire time, btw, but no barrier cream either), but it seems no matter what I do the skin just comes away. Wet, dry, barrier… The skin just comes off, without me even touching it. I need to sort my sleeping and diet out again (I can’t eat gluten anyway, but probably have far too much cheese and sat. fats and nowhere near enough protein and veg any more), and I miss exercise SO much. Basically, I agree with you – what you put in to your body shows on the outside as well. I am determined to beat this, it’s just SO frustrating to be back to where I started after a year of trying to heal. Ugh! 

    So anyway, sorry for the wall of text. Good luck with your healing, and to everyone else on here. Stay healthy and positive! 

    • Adele

      Hi Lisa,

      I had exactly the same as you, the first time this started for me was after I had my daughter, got down, wasn’t eating or sleeping properly, got a cold sore and my lips dried out an EC started.

      I tried everything! And a fee times things seemed to be working if I did them all the time, when I stopped within a week the skin would be really dry and hard, so really it didn’t work, it was a plaster effect, just hiding the problem.

      How long did you try doing nothing for? I took me about 9 months and at tImes it was AWFUL!! But it gOt better and better and went for 7 months completely without a single thing being applied! Unfortunately it’s back now but it was totally my own fault and I know what to do this time to make it go….. NOTHING! Maybe give leaving them alone another try?
      I really hope they’re all better soon for you :)

  • Alesb

    Hi ! I’m french so excuse me for my english..

    I’ve a cheilitis too, for the same reason as you Daniel, i used lip balm, vaseline..too much, and after the shower i removed dead skin..

    I saw many dermatologist who gave me corticoide, protopic…

    I heal by myself, nothing on my lip, and it’s great, for the moment i don’t eat gluten, neither milk-products..

    I will upload photos ! Thank you, i’m confient :) )))

    • Pearlpowder

      Hi, how long did it take for you to heal? Also please share what is your diet/meal ?

    • Alesb

      I’m not healed, but i’m healing ! If you know what i mean !

      My diet/meal is compose of base ingredient (rice, meat, fish…) but i don’t eat gluten, milk product.

      I upload two photos of today, i will upload a photo of 2 december and 28 november, so you can see before/after.
      I’m not healed now ! But the leave alone method is great, the only probleme is the time, you must be patient and this is hard ^^

      Photos of today (9 december) 

      http://www.noelshack.com/2012-49-1355070660-9-12-12-2.png

      http://www.noelshack.com/2012-49-1355070782-9-12-12.png

  • Alesb

    Leave alone method, i started 3 weeks ago 

    november, 27
    http://www.noelshack.com/2012-49-1355073035-27-11-12.png

    november, 30
    http://www.noelshack.com/2012-49-1355072983-30-11-12.png

    http://www.noelshack.com/2012-49-1355072817-30-11-12-2.png

    december, 2

    http://www.noelshack.com/2012-49-1355072689-2-12-12.pngdecember, 9 todayhttp://www.noelshack.com/2012-49-1355070660-9-12-12-2.pnghttp://www.noelshack.com/2012-49-1355070782-9-12-12.pngSo, my observations : the dead skins are finner than previously, my lips  was inflated and there’s not inflate today(i’m french)

  • Alesb

    Leave alone method, i started 3 weeks ago 
    november, 27http://www.noelshack.com/2012-…
    november, 30http://www.noelshack.com/2012-…
    http://www.noelshack.com/2012-
    december, 2
    http://www.noelshack.com/2012-49-1355072689-2-12-12.pngdecember, 9 todayhttp://www.noelshack.com/2012-49-1355070660-9-12-12-2.png

    http://www.noelshack.com/2012-49-1355070782-9-12-12.pngEXCUSE ME FOR THE DOUBLE MESSAGE BUT THERE WAS A BUG

  • Alesb

    OKAY EXCUSE ME FOR THE 3 USELESS MESSAGE I’VE MADE A PROGRESS GALELRY ON THE FORUM

    http://www.danielcmiller.com/forum/viewtopic.php?f=7&t=29

    • Pearlpowder

      You are definitely making progress! Thank you for sharing your photos and diet…

      • Alesb

        Hum…. i don’t know when my cheilitis started, but i know why i’ve know ! 2 years ago, i used vaseline to my lips because they was too dry, i don’t remember, but i used each day vaseline, lip balm…and i rub off dead skin each time…
        So this is the reason why i’ve it today, i’m sure.
        But in the photos my lips look “good” but after a shower, it’s HORRIBLE, it’s crap..

        • http://www.danielxmiller.com Daniel Miller

          Can’t wait to see your progress! :)

          • Alesb

            I’ll upload few photo each week ;) I HOPE it will be totally heal one day :)

    • Pearlpowder

      By the way, when did you start having EC?

  • iDominant

    If you can easily peel back part of your scab with no discomfort from your lips can you clip it?

    • http://www.danielxmiller.com Daniel Miller

      it should be separated on it’s own, don’t peel it even if it doesn’t cause any discomfort :) , but after it’s separated by itself then yes you can clip it

  • Pearlpowder

    Hi daniel, hope to see more of your videos… And your updated photos as well… :)

  • Adele

    Does anyone have any theories as why the bottom lip builds up so much?

    Mine doesn’t even split in the middle anymore but still builds up dry skin and eventually starts detaching from the inside lip line…….

    Is anybody else taking fish oils/supplements that they think have helped?

    • Alesb

      I eat oils of omega 3 each morning and i eat fish 2-3 times a week, i think it help to heal faster, the diet is important.

    • Pearlpowder

      Im taking omega 3 solgar fish oil 950mg, sometimes 2000mg a day… Just started on nov28,2012… And have been drinking coconut juice 2 weeks ago as well… Before the shedding of my lips took a week, now its 2 weeks…
      Will keep you posted..

      • Adele

        I’m taking between 550mg-1100mg daily so think I’m gonna up that…
        I’m also taking biotin and selenium.
        I haven’t actually started on the coconut water, only because I don’t like the sugar levels in it, I know it’s natural sugar but sugars sugar and creates inflammation which I’m sure my lips could do without, also some people think this is due to bacteria/fungus and sugar would def increase that(I’m not entirely sure that I agree with that theory though, my was defiantly caused by lip trauma
        At the moment my problem area is the middle of the top lip and that probably comes away every 4-5days but that is usually due to me laughing or smiling! I’m sure if I stopped doing either of those it would be healed do much quicker but I’m finding not smiling almost impossible with two beautiful kiddies who constantly make me laugh!!!

        • Pearlpowder

          Its just dead skin, layers upon layers of dead skin… Theres no bacteria or fungus… :)

          • Adele

            Same as mine, but sometimes it can be caused by fungus, people with HIV are prone to EC due to oral thrush, there’s quite a bit on info on it online, but yes I totally agree 99% of the time it is just trauma causing dead skin to build up. Let’s hope the build up makes an exit VERY,VERY SOON! :)

          • http://www.danielxmiller.com Daniel Miller

            I agree, the sooner the better, haha!

  • Jacob Pavone

    I can’t even think of going out in public once my lips START to peel.
    How do you do it with months of buildup? What do people say to you? Any weird looks?

    • http://www.danielxmiller.com Daniel Miller

      You just gotta do it! Yes it’s difficult, but no most people don’t say anything, from time to time they do…but it’s only because they are concerned and interested. It’s not like people “make fun” of you like you’re wearing your hair stupid or have some hideous clothes on. :)

    • Will

      I have to agree, people’s reactions tend to be worse in our minds than in reality. For many people, a condition like EC is seen as a small problem compared to say someone who burned their entire face off or a cleft palete. That being said… It’s super hard man, I can barely stand to go out when my callus is built up and I get super anxious when I eat in public or have to attend a party (i hate bright lights!). I had to quit this method the first time I tried it because it was too hard. But I think I can get used to it. It’s kind of like if you were drafted to go to the Vietnam war but you knew you’d be coming back ok in about a year (maybe less). It’s going to suck while you’re there, but if everything works out ok and you come out of it with lips that don’t peel it will be worth it. You’ll get 60 years of normal lips after that, and you’ll be a stronger person in the end for learning to not care about what people think and just do the right thing for yourself. 1 bad year is not a bad trade for 60 good ones. I’m starting this method again after wednesday (hopefully I’ll last longer than a week this time haha).

  • Will

    Your top lip has made remarkable improvement. I’m really interested to see if you can get rid of that last bit of peeling because if that goes away completely then this method will have worked all the way. Also, my top lip is similar to yours (actually kind of worse now :/). Thanks for being a ray of hope and please keep adding pics.

    • http://www.danielxmiller.com Daniel Miller

      Hopefully soon! Sorry about taking so long to add pictures, I will try to be more organized with it! haha, I take them, I just don’t upload them very quickly!

  • Will

    Talked to my psychiatrist, going to be taking some meds to help me obsess a little less over my lips. Hopefully it will help me cope with this better, maybe it will even help with healing. I’m definitely putting way too much thought into my lips right now (every waking second), so I don’t think it can hurt.

    • http://www.danielxmiller.com Daniel Miller

      I can’t give medical advice, but what I PERSONALLY would do is just focus on other things before taking a medical approach…like go for a run, watch some movies, TALK to your friends and family about it. As hard as it may seem, it’s pretty easy…and once you get it of your chest, being around them you don’t even think about it very much! But either way let me know how it goes!

      • Will

        Well part of it is I already know I have other mental problems that have been very difficult in the past (like bipolar disorder type 1). So I don’t have a problem turning to psychiatry, it helped me before (the stigma is gone for me). Psychiatry and psychotherapy are the branches that deal with emotional pain and despair, and that’s a huge component of my struggle with this. I obsess constantly about certain things, right now it’s my lips. It’s like my mind is a machine set to “think about your lips 24/7.” If they can find something to distract my brain from going on overdrive over that it would be great.

  • Debd1980

    hi im just wondering if kissing with cheilitis does any harm, i think i to have this. i have tried numerous lip balms n creams and found vasaline to be the worst ever, it has made my lips worse. for the past 2 weeks ive left them alone and they have peeled a few times, the bottom lip as a slight burning to it now, the whole thing is getting me really down dont know what 2 do

    • http://www.danielxmiller.com Daniel Miller

      I haven’t read any reports of it being spread by kissing someone. So no I don’t think it would do any harm :) and yes Vaseline was the worst for me as well!  Just take it slow, and start healing yourself…the road to recovery IS a long and slow one, but it does seem to be working very well.

  • danny

    Can you help me get started? 

    • http://www.danielxmiller.com Daniel Miller

      What would you like help with? Give me something to go with :) My main topic on this site is to just “leave them alone” so you could start by doing absolutely nothing…and that would be a great place to begin :)

      • danny

        So how do you eat and drink without damaging them?

  • Pearlpowder

    Hi daniel,
    Whats your typical meal…. Say..lunch? :)

    • http://www.danielxmiller.com Daniel Miller

      Right now I am making Organic Gluten free pasta, which is 100% Brown Rice, Tomato Sauce, Organic Tomatoes/onions/lemons.  And I also get RAW FRESH (never before frozen) WILD caught Salmon, RAW GRASS fed Beef, and eat that as well :) I also have fruits as well throughout the day :)

      • Pearlpowder

        Thanks D.. Also. Do you think that diet is related to EC ?

      • Pearlpowder

        Thanks D… Would you sat that EC is related to diet?

  • Exfch2006

    AMAZING IMPROVEMENT!!!!! Your lips look less swollen. 

    • http://www.danielxmiller.com Daniel Miller

      Thank you :)

  • Adele

    Hi all!
    I’ve seen quite a few people say that they are putting water on their lips a few times a day and have seen good improvement; are you getting the lips wet and letting them dry on their own, OR getting them wet and gently dabbing them dry with a towel?
    Thanks :)

    • http://www.danielxmiller.com Daniel Miller

      Usually just let them dry on their own :)

  • the ascendant

    Here in Europe it is very common for people with chronic skin problems to go on vocation at the Dead Sea. There are dermatological clinics next to the sea where people bathe in mud and in water and many people see great improvements. Here in Germany you can buy Dead Sea Salt in Supermarkets and Pharmacies so that you can put it in the water when you take a bath in a bathtub. The healing effect is said to come from the salt and its many minerals.

    Any comments and thoughts appreciated..

    • Adele

      I tried this once with sea salt just dabbing a little diluted in water onto my lips twice a day and they dried out worse than ever!!! :(

  • danny

    So do you guarantee this is solution is the cure to this? and once you’re cured do you think you do whatever like brush and floss and eat what ever you want?

  • Adele

    Does anyone get little infections (like a spot) under the dry skin?
    I got one today and had to remove that bit of skin to clean and remove the infection (gross I know!) didn’t want to leave it, was worried it would get really big!
    So now I have a very raw patch on my top lip, so annoyed but don’t think I had any other option?

    • jayejaye

      I was getting water ‘blisters’ which can be caused by bacteria and also ulcers. They have stopped now. The ulcers stopped when the scabs became thinner. The blisters stopped when I started coconut oil. 

  • Debd1980

    thanx 4 ur reply but im very depressed with it, im on day 15 now of not peeling my lips but im finding that they r drying out and peeling on their own every few days and they look horrible, i work in a shop which doesnt help, the last few days i have just been dabbing a little carmex on them which seems 2 b keeping the skin on a bit longer 4 me and makes thm look not so horrible which is a little bit bearable 4 me, my top lip looks alot better but its my bottom lip which is the worst, i really admire ur courage 2 do ur healing process like u have been doing, i dont have ur courage im always paranoid about how i look, but would u say the main thing is not 2 peel thm, i mean i cant see the carmex making thm worse like the vaseline did, its a nightmare just wish it would go away, very sad at the moment :(

  • Debd1980

    and about the kissing while you r not peeling ur lips, will it make the skin come off my lips do u think and wreck my healing process, just cant imagine not being able 2 kiss or do things sexually while being like this, as my life got 2 come 2 a stand still? can i have no fun nomore because the thought of that makes me very sad and on the other hand i dont want 2 wreck my healing process but then i think life is too short not 2 have fun, how r ur lips now daniel, would u b able 2 add me on facebook so can keep intouch, and i am just brushing my teeth as normal and at the end i have toothpaste on my lips i jus gently dab cold water on lips 2 get rid of the toothpaste and then gently dab thm with a towel being careful not 2 remove any of the white horrible dead skin and let thm dry on their own

    • jayejaye

      Every now and then reward yourself and kiss. It might put your progress back a bit but you’ll feel happier inside. 

  • Debd1980

    i would just like 2 add that i am only dabbing a little carmex on once a day on morning and it lasts pretty well throughout the day depending on what i eat, i have only done this last couple ov days but have done it a couple of times aswell prior

    • Tarik

      I used carmex for a whole year and mae matters much worse, after 5 months of leaving it alone, half of my lip has completely cured with whole top lip completely better! Do the method properly man just leave it completely alone and exercise alot, by the time my lips are better in hopefully 5 more months ill have a six pack and big muscles since i go gym alot and do insanity workouts! Dont let this ruin ur life or keep u from doing things u love like basketball,football,gym,hanging with friends of the opposite sex….YOLO u just gotta firm it keep going until ur better :D

      • Bob

        Tarik you think it’s going to take 5 more months for your lips to fully heal?
        How is your bottom lip doing btw? Didnt you say you just had a thin scab on your bottom lip?

        • Tarik

          im guessing so, because when you look at Jaye’s hers took roughly that period of time and mine were at the same starting point. The sacbs are really thin now. You can kinda see through them to the original lip colour. But 5 months for them to be fresh without any dry skin forming im guessing.

          • Tarik

            If it takes 5 months for half of my lip to heal, the other half should take another 5 months right? but i think the second time will be quicker because its not building up anymore. Just one signle flat scab on my bottom lip taking up less than 1 half of my lip. When i scrunch my lip together i can feel the healthy ends if u get what im saying

          • Debd1980

            i dont think it would take another 5 months 4 ur other alf of ur lip 2 heal, if u av already been doing it 5 months, let me know how u get on :)

      • Debd1980

        hi thanx 4 ur reply i was jus wondering how long had u suffered frm peeling lips b4 u started leaving thm alone

      • Debd1980

        also i do exercise on a daily basis always have doesnt seem 2 make any difference

  • the ascendant

    Hello everybody, Im in the 4th week of leaving my lips alone and am seeing great improvement. I saw the seventh dermatologist yesterday. She and her colleague said that leaving the lips alone is a very good “therapy” because of the habituation effect that develops after using vaseline and other creams for a long time. The more creams you use, the less moisture the skin produces itself… But they said that healing should not take longer than 2 or 3 months… They also said it could be beneficial to try a low dose of oral cortisone.

    • Tarik

      Completely and unlikely wrong man. Depending on ur case it should take a minimum of 7 months to get cured. 

      • danny

         Hey how do i eat, shower, and brush my teeth without getting my lips damaged and prematurely falling off.

    • jayejaye

      They have no idea. 

  • danny

    Hi tarik can you tell me how to get rid of this. im having very difficulty preventing the skin from prematurely falling because of the way i eat and brush my teeth.

  • danny

    Hey everyone who has this this condition is very depressing. and it seems like there is no cure for it. my mindset is like “damn i shouldn’t have peeled and picked on my lips then i would have normal lips. and the cure according to dan is very depressing because i have to change the way i talk eat and shower just to cure it:(

    • http://www.danielxmiller.com Daniel Miller

      I know it’s difficult…and I didn’t want to change either…but for me it was the only way to actually be able to talk and eat normally again, as I was constantly worrying what my lips were doing when I was eating in front of others…

    • jayejaye

      Don’t feel bad.. Just think about what you can do rather than what you can’t do. I read a daily positive affirmation to stay happy and don’t feel bad about what you may have done to cause this. Also be happy that there are others out there with this and you are not alone. 

  • Debd1980

    does anybody think that the longer u have suffered with this the longer it takes 2 heal once u start the leaving it alone method??

  • Exfch2006

      Are you sure you want to put something on your lips after everything you have been through?…

    • http://www.danielxmiller.com Daniel Miller

      She has been doing the same method for the same amount of time that I have an has only seen improvement, I was thinking about just trying it on a small part of my lip to see what happens. I really think the main thing is that you don’t peel the skin off early

  • Exfch2006

    Keep your diet clean, exercise, no quick fix.

  • Debd1980

    how long does it take 2 develop cheilitis does anybody know???

    • http://www.danielxmiller.com Daniel Miller

      Some people get it within a few weeks, other it develops over years, but the cheilitis is always present at least in a small amount during those years while it spreads…

      • Debd1980

        r u sure this is the right way 2 heal by leaving it alone and not use anything on them, r all of ur lips still developing hard skin and still peeling off :)

  • the ascendant

    Hey daniel, I really think you should continue not to apply anything… I think the problem is really the habituation effect your lips develop to certain creams… If you start applying something again, maybe the 42 weeks will have been for nothing…

    • http://www.danielxmiller.com Daniel Miller

      That’s definitely possible, I was thinking of just trying it on a small part of my lip to see what the effect was…it’s not like I would be using it non stop throughout the day like before, just like once or something…not sure yet, just coming up with some ideas.

      • Pearlpowder

        Hi daniel,
        I was wondering if jaye ever changed her diet in the last 11 months…?

        • jayejaye

          I have been experimenting with my diet for a long time since having this. I have trialled foods for 2-4 weeks to see how my body feels and reacts. Now I eat what feels best for me. I think everyone needs to do this because we all have unique needs and our bodies react differently to different diets. 

      • jayejaye

        I would ingest it first before applying it to your lips. See how you feel over a few weeks. Does your skin feel good? Are you noticing a difference? Then if it doesn’t react badly apply to your lips. It’s anti-inflammatory which is what made me try it after my ‘bad peel’.

  • Exfch2006

     so you want to experiment with a small portion. Okay. Then it is the next day, and you see improvement. and so the 2nd, and so on until the 5th day. Is that how you will handle it? Or will you lather your entire lip after a few observations of small area for few days? Don’t for get, that what you apply is directly absorbed by your blood stream beneath the tissue, and once what ever the heck is being mediated within the tissue that has built your protective layer gets a wiff of the stuff you apply to one part of your lip, I wonder how it will take the interruption?

    • Jaredford509

       Hi are you completely healded

      • Exfch2006

         I wish.

        • http://www.danielxmiller.com Daniel Miller

          I’m not sure, still contemplating! However seeing Jaye’s progress, who has been doing the exact same method as I have for just as long, is inspiring either way!

          • jayejaye

            :)

  • Exfch2006

    that is, I think coconut oil is anti inflammatory, and what if the tissue below needs an inflamatory response to completely heal? I don’t know man. It’s a concern. http://www.recoveryourlife.com/forum/showpost.php?p=2088517&postcount=2 What if the “scafolding” needs the natural response and applying the coconutoil stunts the process and interrupts (or even breaks down) the integrity of the “scafolding” and what you are left with is a “superficial” (weakend) replacement tissue that is not durable to withstand normal conditions due to improper healing and future repeat healing as a response?

    • jayejaye

      I had these thoughts as well. I’m doing a one month experiment and will discontinue use to see if the improvement is permanent. 

      • Exfch2006

        keeping my fingers crossed for you.

  • Exfch2006

    I am not trying to take anything away from what you want to do or how far you have come, but bee happy you have scabs : ) you’re lucky you have any kind of cycle at all than a permanent growth potentially malignant. 

    • http://www.danielxmiller.com Daniel Miller

      yes, I agree…just trying to find the quickest solution :)

  • Debd1980

    does anybody think it would b ok 2 use carmex on them or some kind of lubricant as long as you dont pick n peel at them cause just thinking if they r drying out is this what is making them peel

    • jayejaye

      Try coconut oil. It’s working wonders for me. You will notice it’s shiny at the start but this will absorb and give your lips some moisture/flexibility. But definitely resist the urge to pick or peel the lips. I think we will all be feeling this way over Christmas. 

      • Exfch2006

         That’s for sure!

      • Debd1980

        hi where do you get coconut oil from , is it super market or health shop and do you rinse your mouth with this 2

  • Exfch2006

    Hi Deb, I do not think the lip tissue is drying out. Tissue will continue to peel regardless of what moisturizer we apply. This white line of dead tissue slowly builds up while the lip is moistened, and might I add this layer of moisture is acting as a protective layer in my opinion. In that case, something other than a lack of protective layer and drying out effect is causing the the skin at the opening of the mouth to die and slowly peel off in its layers. But if you want to try using carmex then I wish you luck. It is not a horrible idea for managing for Christmas Day. I have used it in the past, and in my experience it slows the process and few days later it seems to worsen the condition as deeper layers begin to peel that were not peeling before. I’d use it for 2 days max, and minimally at that.

    • Debd1980

      thanx 4 the reply its ju s ruining my life and i mean that, this time last year my lips were fine, never ad no trouble with lips until this year in about may they started 2 feel different n gradually this has happened, if i put carmex on it tends 2 last most of the day 1 application on morning, the last time i used it was monday once and tuesday once i havent used none since i thought id try nothing at all,wednesday and thursday my lips wasnt peeling and i was so happy n then it started again n they r horrible now looks like scabs on my lips, i was reading something about laser treatment have u tried it, just cant c no improvement, it will b 3 weeks 2moro since ive stopped peeling them and its getting me really dwn, u would think this day n age surely the doctors could do something, i think im jus going 2 start putting carmex on n jus stick 2 not peeling them, what r ur lips like n would do u recomend, really lost would like some help plz :(

      • Exfch2006

        I have had this condition since 2006. Remain calm and breath, focus on eating well, and exercise. One day at a time and your mind will clear up.  It takes time for anyone to go through this kinda change. You may want to read up on stress, and if I had the money I’d see a psychologist because they could help me work through the change. In my experience anxiety made the issue worse because of the little things I was doing to cover up my problem and obsessing in an unhealthy way (panic, crying, fighting reality). So I will tell you what I would do if I were you. I’d back off on licking my lips, I’d use a very small amount of vaseline over the peeling area (not the entire lip) after I got out the shower and trimmed the wet skin that was no longer attached. I’D ONLY TRIM THE SKIN THAT IS NOT ATTACHED. If I were to rip off scabs that are firmly attached, I would cause more damage to that area. Yes, like I said, I’d do this when got out the shower. The vaseline seems to help moisturize and protect the fresh skin underneath ( I’d use small amount every 4hrs or so). I would try coconut oil like Jaye than using carmex if I did not want to use vaseline. I’d drink from a water bottle so the water did not reach the scab parts and avoid making them white. Then, after Christmas I’d see a doctor and question them about the laser treatments. I have never received laser treatment. I did have cryotherapy done, but it came back 3 days after my lip freshly healed. Since I am not a doctor my opinion does not hold any merit for medical treatments or any particular therapy you may choose to do on your own and I believe because we grow up releying on the body’s ability to heal we take what we are doing to our lips for granted. It is a mistake to try any treatment or therapy without really understanding what we’re doing and may be the reason for why those of us (who have had this and tried everything under the sun) may still have the problem. I am interested in questioning my dermatologist if successive cryotherapy treatments one after the other, 3 treatments, over a period of 2-3 months, is safe or dangerous. You should see a medical expert and make sure they agree with what I post before you you attempt taking my experience as something that will work with the chemistry of your body. I completely understand what you are going through and I know you will work through it. One day at a time, okay.

        • Exfch2006

          btw: I do not use tooth paste. I have two tooth brushes, one firm, one soft, and a tongue scraper. I use a medicine bottle to hold alcohol and sit brushes and tongue scraper in for sanitizing few minutes. I use the hard brush to loosen debris of of teeth, and I put a little baking soda on the soft brush and gently brush. I use floss as well. It works. If you wanna try this method it may decrease the peeling because tooth past will dry the unprotected lip tissue that peels. Make sure your dentist says this method is okay before you try it.
            

        • Debd1980

          i do drink water from bottle but i allow my lips 2 get wet from it, im tired of using a straw, i believe you shud b able 2 get your lips wet, also i drink tea from a cup aswell, and i cant help food from touching my lips when eating, i find worse foods are roast dinners and stuff with gravy makes your lips look horrible after but what can you do, you must eat, wettin your lips with water afterwards helps a bit

          • Exfch2006

            we should all have a phone conference on Wednesdays, lol.

            I meant water bottle for when around people so it does not look like you are yeast ridden. Ya’know, just looking out for ya. Yea I get my lips wet other than when I am surrounded by other people. I have not been leaving my lips alone for very long at all. Maybe four months. But you will see once I post pictures that my lip resemble Jaye’s. Not as bad from the begining, but very close. I should also make it clear even though I think you understand this that I am applying denavir right now, and today I coupled it with the cocoa butter stick moisturizer. Also I am eating lays chips and it is burning the corners of my lips. Wonder if that is a contact dermatitis in addition if not the cause to the problem I am having. I would never post her unless there were distinct similiarities of what I have to EC because my experience to heal this condition would be null and frustrate a lot of people. I have dead skin that cycles between where my lips meet peeling every three to four days depending on what I eat. If I eat like shit then the cycle extends to 5-7 days. I need to gather all my information and join the forum.

          • Debd1980

            well i went 2 the doctor 2day and he perscribed me hydrocortisone ointment 0.5% apply thinly twice a day and in between he told me 2 use vaseline and not 2 peel or pick it so im going 2 try and see if any improvement, i couldent go about with scabs hanging off my lips anymore, spoilt my xmas completly and embarrasing at work really bad. how are you getting on???

        • Debd1980

          also if you have had this condition since 2006, how long have you been leaving it alone 4

  • Pearlpowder

    Hi daniel,
    Did jayejaye change her diet during those 11months? I tried applying extra virgin coconut oil on my lip for a week 2x day. I only applied it on my mid lip portion, It stinged and my skin fell off after a week… But at that time, my lips was really aggrevated… And when i left it alone, it shed after two weeks.. of course, the effect is different from person to person..

    Give it a shot… :)

    • http://www.danielxmiller.com Daniel Miller

      Go here and look for posts by Jaye, I think she goes over her diet/changes http://www.danielcmiller.com/forum/viewforum.php?f=7 I'll let her know and ask her to reply :)

    • jayejaye

      Hello,
      I have experimented with my diet over the last 11 months. What I eat now seems to be helping the most. This is a typical day for me:

      7am: oats, chia seeds, blended almonds and other nuts, almond milk and 2 cut up dried apricots. 
      8am: For this month only (since using coconut oil) I have a small skim coffee.

      10:30am: banana or small tub of natural unsweetened yogurt with honey.

      12:20pm: avocado with rye crackers or vegetables with meat or pasta & veg.

      4pm: vegetable juice or an apple.

      7pm: a dish that has vegetables or salad and meat. 

      9pm: 1 tablespoon of coconut oil. Also put on lips before bed. 

      1.5 Litres of water during the day + 200ml of coconut water.

      Btw it has been hard to eat this healthy on some occasions recently due to the festive season. But I’m not too strict on myself because I believe our lives are for enjoying, even with this condition :)

      • Pearlpowder

        Thank you for your post jayejaye… Thanks daniel.. :)
        Cold press Coconut oil detoxifies our system..

        lets all continue to think positively…

  • Abdi

    very brave man!!!
    I have had this for 15 years, this is a killer condition

    • http://www.danielxmiller.com Daniel Miller

      Thank you…hopefully we will get the answer soon! :)

  • ANNY

    Guys do you think this is to do with the weather?

    • http://www.danielxmiller.com Daniel Miller

      it doesn’t appear so, as people in all different climates, whether tropical or cold, can develop this condition…

      • Pearlpowder

        Hi anny,

        I live in a tropical country since i was a child and i have it… It was triggered by something… Mine was roaccutane.. Started 3 months ago..

  • Dizzywright001

    Hello all,
    I recently began the leave alone method last month. I kept them completely dry and minimized all movement and the ec spread to most of my upper lip. The leave alone method will only work if you use some kind of product to seal in moisture. My theory behind this is that the dry scabs actually can cause trauma to the surrounding healthy skin. After one week of leaving them completely dry, i began dipping them in water four times a day. I started seeing actual improvement but it was way too slow…there must be a faster way. So… Thought to myself: why did my lips get worse get i left them alone? I finally concluded it was cause the scabs cause further trauma to the surroung skin. I began applying the oil from ‘vitamin e capsules’ and can say i have only felt improvement.

    • Nick

      Skin that would peel in a weeks time, remains on and actually feels softer to the touch. The vitamin e capsule’s oil stays on for a couple hours an actually protects the skin underneath. Before, when i talked, the skin nearing the underside of my lip would touch the bottom lip and cause it to stick and peel off but this oil stops that. I can actually close my mouth now without the lips sticking together and potentially ripping skin off.

      LEAVE ALONE METHOD should be accompanyed with some natural oil to preven further trauma.

    • http://www.danielxmiller.com Daniel Miller

      Thank you for your post, Dizzy! There is a member on curezone currently undergoing this theory at the moment as well: http://www.youtube.com/watch?v=qsE_2_oxPiU you can read about his progress. And you are correct in that it appears to spread without getting anything on them, as in my case during the first couple months. As I got them wet that is when the healing really started.

      It is very possible that applying a natural moisturizer while not peeling them at all could be faster than the method I am doing, which we have been investigating. Once more results come in we will know. The main thing is to stop causing trauma to the lips I believe.

      But keeps us posted on your progress, and if you want to include some pictures and your story in the progress gallery for everyone to have a future reference on that would be great!

  • William

    Would adding Olive Oil to my lips be a good idea to help out Exfoliative Cheilitis? Because my lips are Starting to slowly heal up; They’re Crusty and Flaky, but they’ve been far worse in the past.

  • Adele

    I have been doing the leave alone method for the last 4 months and can only say that it’s got worse :( I did this method last time and it was totally cured for 9months, so I was wondering what on earth I’ve been doing wrong this time, until I spoke to my husband and he reminded me that when my lips was really bad I was pop something natural on them to help the skin not tear away from the scabs…… Hadn’t been doing that this time!!

    • jayejaye

      What natural did you put on them?

      • Adele

        It was burts bees balm (the one in the little tin) it has coconut oil ect it in, I used only a tiny amount thought!

  • Adele

    Ps, what are you thinking of trying on your lips Daniel?

    • http://www.danielxmiller.com Daniel Miller

      Organic coconut oil would be the only thing I am considering.

      • Adele

        When you get your lips wet do you let them dry naturally or dab them with a towel?
        How many times a day do you wet them?
        Good luck if you dO try the coconut oil…

        • http://www.danielxmiller.com Daniel Miller

          I let them dry naturally, and once or twice, usually just when I take a shower…

      • jayejaye

        Wait till I’ve finished my experiment Daniel! It’s helping with so many things but what if it stops my progress? We’ve both seen how things that work can also stop working or even make the condition worse (Andreas treatment for me was an epic fail but seemed to work well at the start). I’m going to do till the end of the month and then stop and see what happens.

        • http://www.danielxmiller.com Daniel Miller

          I’m going to start taking it as a supplement! I just ordered it online from TropicalTraditions.com where they make it by hand! I’ll wait for your progress over the next month before deciding to put it on my lips :)

  • Exfch2006

    Hi everybody! Do any of you think this is cause by the herpes virus or hpv virus? If you do not think so then can you explain why.

    • Exfch2006
    • Pearlpowder

      Nope, if it were a herpes virus.. It will not only be on the lip… It would spread outside the lip as well… Its just dead skin piling up..

      • Exfch2006

         dead skin is the same as dead tissue is the same as dead cells. What causes cell death. . .
        “death by injury and death by suicide.” http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/A/Apoptosis.html
        Look at the examples for #2. Programmed cell death is needed to destroy cells that represent a threat to the integrity of the organism.
        I applied denavir, a treatment for herpes, beginning three days ago every two hours except for when I am sleeping, and guess what… today my lips are looking really good with no build up. I’ll eventually post before/after images and my diet, but want to see what happens within 1 month so I am confident with what I put out here.
        As far as I am concerned, I think this is caused by a herpes strain virus, or a autoimmune disease. My family has a history of irritable bowl and Crohn’s. But I just think it is very coincidental that the same diet people who have herpes remain on is the same diet people who, over time, have cured them self of EC. Also, it seems the medication I am taking (denavir cream) is helping my lip more than any other cream every did. We’ll see. 

        • Exfch2006

           but you know what would be really interesting. If you tried denavir as well because I think you said EC showed up for you 3 months after accutane. I took accutane as well. But I had EC 3 years before accutane when I was dating someone who was kissing up on someone else who we discovered later had herpes.

        • Debd1980

          and if this is herpes surely it would spread 2 some1 if you kissed them or performed oral sex on them as herpes does, i plus it would of healed itself a long time ago, and it isnt sores like herpes is so i cant believe it is herpes, ive used different things on my lips and they seem 2 work 4 a couple of days then it just comes back, i was using vaseline 4 a week b4 i went 2 bed and through the day and things were great then after a week my lips peeled really bad and was horrible

          • Exfch2006

            Yes, I understand all of you and where you are coming from. Been there and felt the same. I have nearly 7 years experience which I should have explained from the beginning. Sorry about that. I will create a blog or something, even post in the forum here soon. Life is complicated at the moment or else I’d give you more info.

            I love this place and am so glad it exist so we can share thoughts, ideas, experience.

            Deb, that is interesting what happened to you with the vaseline. Similar happened to me but that was long term.

        • Pearlpowder

          Its not herpes, i thought it was, i tried herpes cream for 2 weeks… Yes it will look ok at first and better, because its drying up and shedding the lips more… Be careful, its a very strong cream…

          • Exfch2006

             thank you

        • Will

          Well I hope you manage to cure yours, but one day is too little time to tell. A month of being symptom free would be better. You could put almost any liquid on your lips, let the dead skin fall off and they would look normal for a day. The trick is preventing skin buildup, and making sure it lasts.

          Also, there are 4-5 other conditions that produce symptoms similar to exfoliative cheilitis but are not exfoliative cheilitis (actinic cheilitis, lupus, atopic cheilitis, contact cheilitis, chapped lips, etc.). All of the other conditions have treatments. EC does not (other than isolated cases of people using protopic, calendula or lamprene). It’s possible you don’t have EC.

          • Exfch2006

            Hi Will. Thank you for wishing me well and the same to you. I am going to respond in order to clarify and ask you a question.

            1) Today is “day 4″ of denavir treatment as-I-stated-yesterday was “day 3,” so I am unsure why you refer to “one day as too little time to tell” when I explained I would report back in one month because “I want to be confident with what I put out here.” Maybe you read my post really fast and looked over the part where I explained my time schedule.

            2) When you say there are 4-5 other conditions aside from exfoliative cheilitis, am I correct to assume you are referring to the confusion of EC with other cheilitis such as GLANDULAR  (condition of malfunction glands consistent inflammation), ACTINIC (precancerous stationary formation as a result from repeated sun exposure potentially malignant in I think it is 10% of the population who have AC), CLOWN LIPS OR ANGULAR CHEILITIS, both which are probably caused by staph infection or yeast. Honestly I wish it were one of the above so I would not have suffered with the issue for seven years. But you could be right. It is possible that what I have could be something other than exfoliative cheilitis even though what I have is a cycle of top layer dead skin between the lips that turn white when moisture hits it.

            Like I said below. I should have explained my history better so anyone who reads this does not have to question my authenticity or comprehension for the condition I am living with. 

          • Will

            4 days is very little. It takes 6 days for my lips to show any serious signs of peeling. Let’s talk about this in a month. If you’ve found the cure, your lips are back to normal and it cures me, I’ll write you a check for $1000. All you have to do is tell me where to mail it. I can also pay you by pay pal. However you like.

          • Exfch2006

            You should read slower, it will help you comprehend what is written more easily.

          • Exfch2006

             proof that EC doesn’t discriminate between . . . : )

          • Will

            I know you are upset that I won’t acknowledge your treatment as the one after just a few days. I don’t mean to upset you and I really wish it works for you. But A chronic condition requires treatment that works for a long time. 4-5 days of nice looking lips could be an anomaly. Let’s talk in a month.

          • Exfch2006

            lol,  I do not think it is the cure. Why are you assuming I want you to acknowledge what I am doing as the cure silly? No, what I want you to acknowledge is that I was only notifying that I began something that I planned to report back in one month with pictures, history, and progress. Something well documented so I would be confident with what I put out there. For you to ignore that I said that and continue of with deaf ears is quite condescending. So back yourself up and realize I do not need you to tell me what I already reported here for everyone to read. Mr. Assumption. lol

          • Malcom123

            Yes, the “edit” feature is very useful. ;-)

          • Exfch2006

             why edit? it’s not like anything I said is untrue. So what, you wanna make fun of me for that. Go ahead.

          • Will

            I sue for peace.

          • Exfch2006

             Will, do you really think it is LOGICAL to assume that some suffering with this condition for 7 years will jump the gun and say what they are doing is the cure due to improvement after 4 days of treatment. It does not make sense for you to assume I want acknowledgement that what iiiiiiiii am doing MUST BE THE CURE!! Der der, get ahold of yourself. You are self absorbed to assume quite a thing.

          • Exfch2006

             Will, I do not think you are getting enough vegetables. Eating foods rich in vitamin B should help you clear up your mental fog.

    • Debd1980

      i have never had a cold sore in my life and cold sores heal in a week or 2 not like this which just keeps skinning off like how a snake sheds its skin and then the process just starts over again, i hate it, i think its something 2 do with the inside rather than the actual lips, looking back my problems didnt start untill i was perscribed a few lots of different antibiotics over a period of a few months taking in 2 account i had never took antibiotics in my life up until then, i think the problem comes from the inside, may b we need 2 detox ourselves from the inside

  • Rdrdr

    You are a hero.

    Merry Xmas.

    • http://www.danielxmiller.com Daniel Miller

      Thank you :) Merry Christmas to you too!

  • Cameron

    So.. I stopped using the polysporin because i realized that it has petroleum.. I’m using pure vitamin E gel now just to be sure that whatever I’m using to protect my lips isnt going to make it worse long term. Also, I was wondering if leaving the lips alone can make EC spread, because before leaving them alone the only areas affected were a middle patch on my upper lip where it originally began, and the whole bottom lip, but now I’m seeing the buildup on the sides of my upper lip as well? It never built up there before.

    • Debd1980

      where do you get the vitamin e gel from

      • Cameron

        Its actually the gel from vitamin E capsules. I just bought a bottle of that and break them open and put the gel inside the capsule on my lips a few times a day.

    • Will

      I have noticed EC spreading to areas of my upper lip that I never touched, and to the corners of my mouth. Some people report EC spreading to areas slightly outside the lip as well (I have noticed some weird skin behavior outside the lip, but nothing severe). It may be that whatever chemical signal the cells are giving each other to form the dead cell layer can affect nearby cells (almost like being in a room near someone smoking pot, you’re not smoking it but you could get a slight high just for being there). Leaving them alone looks like the best treatment so far for me though. Nothing else has worked. I would also say that keeping the crusts on as long as possible has given me much better results than peeling the crust prematurely.

      • Cameron

        Yea.. it also makes me feel like maybe something internal is contributing to EC.

        • Will

          Most of the doctors I have spoken to (7 so far) do not think there is an internal cause for this, they disagree as to whether you should or should not put something on them though. The dermatologists/pathologists I spoke to suggested steroids followed by petroleum jelly, none of which worked. No dermatologist has suggested leaving them alone as a good idea, but most of them do not seem aware of what happens when petroleum jelly peels off the top layer of skin. It’s difficult to explain to them the cyclical nature of the condition, even with photo evidence. I think part of the problem is the rarity of the condition. Doctors can treat the conditions they know about, not the ones that occur to less like 1,000 people worldwide.

          All of my “medical” research so far indicates no internal factors have been discovered. However, several sites (including this one) do claim that altering your diet can improve or even cure the condition. The diet alone has not improved my condition so far. I think leaving them alone is probably more important than strictly following the diet. However, I am going to try to keep the diet because it has other health benefits (I actually have a flat stomach for the first time in years haha). Also, because it’s possible that prolonged use of the diet may actually be beneficial.

          One brilliant and super expensive psychiatrist I spoke to (to rule out this being factitious on my part) said to just try leaving them alone and letting them heal (he also prescribed some medication to control my obsession a bit, it was getting out of hand), the other one suggested looking for better doctors in big diagnostic centers in the US. I would definitely recommend at least talking to a psychiatrist, especially if your mood or mental peace is being severely affected by this. The damage we do to ourselves trying to “deal” with this, even after the condition is discovered, is suspected to be the major contributing factor. The condition has been reported to improve with psychiatric counseling and medication in several medical books and articles. It’s definitely helped me with letting time flow a bit faster, before it seemed like every day with this was a crisis, now it’s kind of a severe annoyance most of the time, and only occasionally a crisis. I even went to a party last night (it was a pretty awful experience, but I went).

          I’m still obsessed, just not as much lol.

          I wish you guys the best of luck, if you do happen to find a cure, please post it :-) .

          • Cameron

            It’s funny that you mention the whole mental aspect, because I’ve been wondering about that myself as a possible cause. I’ve had a long history of problems like depression, general anxiety, and OCD that i have seen many doctors for, and i believe that stress could be the main problem. Also, since I’ve stopped taking antidepressants, EC has been at it’s worst, while it was very mild while being on them. I wish it was as simple as going back on them, but they are not for everyone. I know that stress can manifest physically in many ways, and I am currently dealing with many other stress related problems. If it is stress, it would explain why no known topical medication or direct treatment has ever been known to completely cure it. 

          • Will

            I hope it isn’t stress as in “the stress is causing my cells to harden” and more like “the stress caused me to pick at my lips more than i normally would, and that was causing the damage.”

            If it’s a behavior I can control then that’s easy to solve. But if it’s an internal reaction, what can I do about that? Life is stressful, work is stressful… I don’t know how to live without some level of stress.

            The only big positive about taking Seroquel (my mental med) is that I can live with the “don’t touch the lips” healing process better. It’s like “alright my lips look dry, but I can deal with it”. Went to a second party last night. Also today I broke my all time “don’t touch the lips” record lol.

          • Cameron

            When i say stress, i mean the chemicals linked to it like cortisol. There is thought to be a link between cortisol and EC. 

          • Will

            I really hope it’s not that. :-/ What am I going to do then? I’m a lawyer lol.

          • Exfch2006

            you could always contact a therapist to help you with therapeutic techniques for stress or/and a psychiatrist for medication that calms the edge without making you sleepy. Exercise does wonders for stress also, and just eating health foods that reduce inflammatory response have quite an affect on the body’s chemistry. good luck

          • Will

            Yep been seeing a psychiatrist. Seroquel 200mg definitely lower the stress. Been eating pretty healthy. I think the peeling has been slower this week since I started Seroquel, but now I’ve left them alone for longer than ever so the crust has gotten nice and fat. But I lead a stressful life in general, I run a small business and I’m studying for a very tricky exam, and I have to attend a ton of family parties this time of year.

    • Nick

      Hello Cameron,

      Leaving the lips completely alone and dry is NOT THE WAY TO CURE THIS. The lips must be moist for them to heal. My lips also began with just a small portion of the top and the whole bottom and the upper lip area SPREAD to the entire top lip. I currently believe the only way to heal EC is to use some sort of ointment which locks in moisture. The LEAVE ALONE METHOD WILL NOT WORK BY ITSELF. I am currently seeing a doctor about this.

      DO NOT TRUST EVERYTHING ON THE INTERNET. The worst thing to ever happen to medicine was the internet. I gave up on the leave alone method because it simply made it worst. Many people said it got better but mine only got worse. Even Daniel’s blog says to leave it completely dry yet in the comments it says to get it wet a few times a day. Some people on curezone and other websites do not fully commit to healing their lips and spread false information about different methods working and not working. DO NOT TRUST EVERYTHING ON THE INTERNET.
      I applied vitamin e oil capsules for a few days and it looked better but i needed something stronger that could penetrate the skin and keep it moisturized. I’m currently on day 3 of using an ointment called Protopic by my doctor. I searched curezone and everyone has negative things to say about it. But i believe they did not commit fully to healing their lips while using protopic. For instance, in one thread someone claimed it didn’t work for them as the skin rubbed off while they were in the shower. WELL GUESS WHAT.. Maybe it was the guy rubbing the skin off in the shower not the protopic not working. 

      There is a scientific journal article about ec being cured by protopic. Why would doctors around the world prescribe it if it wouldn’t help it? People need to commit to healing their lips fully which means making lifestyle changes. I’m currently eating all foods with knives and forks, not smiling, and holding my cheeks when i giggle. PLEASE, see your doctor. I’m very confident in what mine has been telling me.

      • Dizzywright001

        Please see your doctor. I began the leave alone method on the advice of this blog and it only made it worse. I believed what I read on the internet and it ruined my life. ec was manageable before but not now that it’s spread :( …I will keep everyone updated on my progress with protopic.

        • http://www.danielxmiller.com Daniel Miller

          I am on my phone and didn’t get a chance to read the whole comment, but where on my blog does it say to leave them completely dry to heal them? I thought I edited that out months ago. Leaving them alone does not equal leaving dry, and we are currently testing methods involving liquids/oils.

          I made this blog to share what I have found to be the cure and what is working for me. And I even say in the beginning to talk to your doctor first. My lips have healed considerably using my method and several other people as well. The key very well may be to avoid peeling them and putting stuff on them is okay, we are working on that answer. I am sorry to hear your lips got worse, but hopefully with your new plan it will heal them and I can put your success story on here for others to read!

        • Will

          The porblem with using oils and products like petroleum jelly is that they tend to pull the skin off. The ideal product would be something that moisturized the skin but didn’t cause it to fall off. When the skin is moist, it’s also very easy for it rub off. Also, if a product turns your skin white… then its probably not that great.

        • Will

          Also, I saw 7 doctors (dermatologists, pathologists, psychiatrists… etc.). The last doctor I saw actually told me to try this method.

      • Truth

        That “scientific journal” about Protopic you’re referring to that healed 1 case of EC is largely thought to have been faked given that the before and after photo they used were faked and proven to be photoshops. They were actually the both the exact same photo, and one was airbrushed. I have heard of Protopic helping manage some cases of EC with longterm use, but not outright healing them. The same with steroids, which are actually said to be more effective by most.

        I agree with you that a lot of times on the internet you will hear a lot of negative stories about meds from the people who did not respond to it, but with EC there is no known cure at this point, and people will just have to find what works best for them.

      • Cameron

        I would just say be careful exactly what you put on them, because i have seen some things make it worse, vaseline being one of them. I was prescribed Protopic by a dermatologist a while ago and haven’t tried it yet but I may try it if I need to try another option, although i don’t really know if anything topical will heal this or simply manage it. The problem with EC is that doctors really know nothing about it, in fact i dont think they believe that i don’t have very chapped lips most of the time i see them for this problem. EC is rare, so we all need to try and figure out what works best since nothing definitive is known about it.

      • Will

        Check out Jaye’s progress galleries in the forum though. And Daniel’s photos. There does seem to be some improvement with this method. Though if you manage to find something that cures you for an extended period please let us know. 3 days is too little time though, tell us in a month if it’s still working and if you still need to apply stuff or if you’re just leaving them alone.

  • http://www.danielxmiller.com Daniel Miller

    Merry Christmas Everyone! :)

    • Pearlpowder

      Merry Christmas!:)

    • Will

      Merry Christmas, and may the new year bring you victory over this. It’s past due.

  • Truth

    I just wanted to comment on those blaming the leave it alone method for their EC spreading… EC generally spreads regardless of what you do. In my experience it spread much faster when I picked at the crusts.

    No matter what you decide to put on your lips, whether it be medication, vitamins, or nothing at all… DO NOT PICK the crusts.

    And don’t blame the internet or this site for your problems. Daniel is offering good advice here. Your doctor may have good advice as well. It’s up to you to decide what the best course of action is in the end.

    • Tarik

      EXACTLY!!

    • http://www.danielxmiller.com Daniel Miller

      Thank you :)

    • jon

      idk man my ec spread after leaving it alone as well. prior to leaving it alone (roughly a year and a half) it was tolerable but it spread rapidly to areas that never peeled in a short amount of time. tarik do you have a photo of your lips to share?

    • Cameron

      No one is blaming anyone. Everyone here just wants answers to get rid of this. If that means asking questions about the method or other alternatives then that should be fine. If we can’t question this method or others we may never be healed because i think that the fastest way for us to find out how to beat EC is for us to do just that and try to figure out what is going to work rather than fighting about which method is best. Also, I have had this for more than 10 years and it has not spread until recently.

      • http://www.danielxmiller.com Daniel Miller

        I welcome anyone to ask questions, and to explore different options as far as curing this condition. I created this site because there was no concrete evidence as far as people trying to cure this and successfully cure this. My ec spread in the beginning while leaving them completely dry, but dramatically got better when I started getting them wet. Which is clearly shown on my pictures.But when someone comes on my site and starts bashing all the hard work I’ve done for the past months, which saying it’s been difficult doesn’t even begin to put it lightly. And then on top of that saying that my method does not work, which it clearly does and is working. I have had a couple people email me saying that either they are fully healed from my method, or one of their lips are fully healed from my method.  I’m sorry to say, but most doctors don’t know how to treat this condition, as I had it for years and went to countless one’s.

        Just because someone’s EC spread while trying my method does not mean that my method doesn’t work.

        • Cameron

          I am not trying to bash anyone and i am not saying that your method doesn’t work. I have been doing exactly what the point of this site is and I have been leaving them alone. The only other thing I have been trying to do is find something protective to keep on the lips while they heal, which you are also considering. I’m sorry if you felt I was directly bashing the method, because I’m not, I’m still following it.

        • Racheld2169

          Hey is it ok to use petroleum jelly ? My lips aren’t as severe but worried they could get bad wen I’m older

          • http://www.danielxmiller.com Daniel Miller

            That depends on who you ask. I prefer to use all natural methods and others don’t think it matters. Results have come from both sides, so the best answer is to test some out for yourself and if it burns it probably isn’t the best product for you.

      • Novaseline

        I’m currently getting treatment from my doctor. He has prescribed an ointment… and in his words “Leave the buildup alone!”… picking it will cause further trauma and irritation which causes it to spread to the deeper tissues and spread to a wider area. So if you decide to go with a doctor and get an ointment, or usual natural stuff on your lips…do so at your own discretion. It may help or make things worse. The only definite here is that picking it will make it worse.

        • Will

          Yeah, all the ointments I was prescribed made it worse. Probably the least bad was cocoa butter… it doesn’t cause the skin to swell or turn white like petroleum jelly products. But I’m not sure it’s doing anything positive either. It moisturizes the skin but it then can get too soft and come off.

  • Tarik

    The way i see this method yall…its gonna take 3 months to basically stop the chunky build up soo thats the scab grows as just one flat surface on ur lip with no gaps…and then the next 5 months the size will keep decreasing slowly if u have cases similar to mine and jaye’s. Thats why i believe to completely heal and get 100% healthy again its going to take 12 months.

    • Will

      It does look like Jaye’s done it. I REALLY hope he has. It would be such a blessing.

      He’s probably got the only pics on the forum that look less bad than my EC. Unfortunately if it does take a year that means I still have 11+ months to go lol…

      • http://www.danielxmiller.com Daniel Miller

        Jaye is a girl :)

        • Tarik

          lool how can u confuse a name like jaye as a boys name??

          • Tarik

            BTW Jaye!! how has the coconut oil been doing for you? i dont think im gonna try it loool it might just mess up my whole recovery but is it showing improvements for u at all?? :D

          • jayejaye

            Haha the name is commonly spelt Jay for a boy and Jaye for a girl :)

            I think the coconut oil has helped me yes. I have currently stopped applying it (3 days) to make sure that my good results stay even without the oil. 

            I think we will beat this and I can’t wait for that day!

          • Will

            I may try this coconut oil. I used cocoa cream before and it wasn’t as bad as other things, but I’m hesitant to use anything. The creams tend to make the skin soft, which tends to leave it prone to fall off :-/

          • Tarik

            yhh exactly..thats what happened with the carmex for me last year. In the shower the skin just came of so easily because of it.

            Ikr!! the day that comes wen my lips get cured is gonna be a day of relief!! At least now we know not to ever pick it again for sure!!

          • Will

            EC sucks so much… this is the hardest thing I’ve ever had to deal with.

          • Tarik

            once u leave them alone for 5 months it gets fine mate…u just have to forget about it and live your life…do u have any hobbies or things u like to do. Like me i love working out, playing basketball nd football…find hobbies that can distract u from ur condition.

            Explain everything to ur friends so it wont be awkward hanging around with them!

          • Will

            Are you putting anything on them Tarik?

            If not, are you letting them get wet or keeping them dry?

        • Tarik

          any whoooo yhh i think itll take roughly a year to be back to normal….its not even hard anymore tbh i hardly think about my lip condition. I think my progress and jaye’s is about neck and neck tho, but since im on month 5 today my condition looks like hers from the august/septemberish…I believe we are nearing the end of the journey :D …hopefully lol

      • jayejaye

        Hi Tarik and Will. 

        I’m a she btw!I haven’t cured myself yet. My lips still peel, it’s just thinner so you can’t see it as much any more. It’s more lip coloured. 
        My recent photos look so good because I’m using coconut oil. But the true test of being healed is when you stop using everything. 
        I’m giving myself 3 years to beat this completely.

  • Tarik

    Im just soooo thankful for daniel showing me this way to get rid of at, and i found it at a young age, coz i dont know what life would be like if i was suffering with this in my 20s-30s…

    • Will

      Yep it sucks at 28 lol.

    • Novaseline

       Vaseline sucks for EC… it’s terrible and makes things worse.

      • Will

        It’s weird that so many doctors recommend it though. I couldn’t find any way to make it work. It just messes up the top layers.

  • Debd1980

    does anybody smoke on here? do u think it makes things worse and also i think u shud defo not pick or peel but may b a lubricant with it may help, im coming up 2 leaving it alone 4 weeks now but r seriously considering using carmex aswell or may b vitamin e but im yet 2 get some, such a terrible antisocial condition, i think whats the point doing my hair n putting makeup on while my lips look like this, i have full lips aswell, i have red that its people with full lips  who have reported having this, going 2 see doc 2moro but he didnt take me seriously b4, he just told me not 2 pick at it drink plenty fluids and use vaseline which by the way was terrible, it was fine 4 a week then completely stripped my lips, in fact made them worse

    • Exfch2006

      quit smoking

    • Will

      I don’t smoke.

  • Will

    I don’t know if you guys have heard of the X-Prize, but it was a cash prize contest that was created to see who could design a private space craft able to reach orbit. It famously worked and one company was able to design a spacecraft that is now being prepared for commercial tourist flights.

    I was wondering if it wouldn’t be interesting to create a similar contest to find a cure for EC. We could create a non-profit company or start a kickstarter project and set some conditions for winning, such as finding a treatment for EC and successfully treating 5 known EC patients who then have to remain symptom free for at least 5 months (or something like that), with maybe an additional bonus prize if the cure lasts for a year. We could have an independent panel of doctors judge the contest results. It might encourage people to try to find a working cure, and we could encourage friends and family members to donate to the fund to make it a big prize. I might be willing to donate $2,000 to get it started.

    What do you guys think?

  • Malcom123

    Does anyone else just get sick of EC?… :-(

    • Exfch2006

      Sure. I think most people who have medical conditions feel this way all-the-time. obesity and acne are 2 other conditions I can think of off the top my mind. also people whose condition is mentally and physically draining. Lupus, chronic fatigue syndrome. Also people who have irritable bowl and have lot of pain as well as using the toilet every hour.

  • Tarik

    Jaye when are you going to upload your picks for december!?!?! :D

    • jayejaye

      Maybe tonight! :)
      I’ve been going out heaps and having a really good time. 
      EC is finally starting to not effect my life!!

      • Will

        I’m so glad for you :-) .

        I’ve actually started to reach the acceptance phase with this, so I’ve managed to go out more and face people, even though my lips still look like crap. The only prob with going out is when people want you to eat or drink in public (I wonder if I can buy some mcdonald’s type straws with a cover on them to carry with me when I go out lol).

  • Exfch2006

    Daniel, do you let warm water from the shower hit your lips? 

    • Exfch2006

       also… do you break out (blotchy red chest) when you drink beer, I do, and do you experience bloating when you drink beer or have noodles in your diet? 

  • Debd1980

    i went 2 the doctors yesterday and he gave me hydrocortisone 0.5% ointment, use twice a day apply thinly and he said use vaseline inbetween, he was pretty nasty with me when i told him i had been looking on internet 4 a cure, use for 2 weeks so i am going 2 try this method, he said i shudnt let my lips dry up because they will never heal, this as spoilt my xmas completely and terrible for me 2 work with in a shop on display 2 the public, i was managing it b4 well the best i could but was still stressful :(

    • Will

      Hopefully it works for you. I tried hydrocortisone 0.5% before and vaseline, they both had the same effect. The skin became white like it was too hydrated, then it fell off. It looked fine for a day or two and then the crusting came back. I used vaseline for a while it but it would just cause the skin to constantly turn white and fall off.

    • Exfch2006

       Hi Deb, have you tried the cocoa butter stick by Palmer’s? Maybe you could call in to the doctors nurse and see if it is okay you to use that than vaseline. He’s probably just looking for you to use something that contains as few ingredients as possible.

      • Will

        I agree about the cocoa butter Debd1980, it moisturizes without turning the skin white. However, I stopped using that too. I’m just using water now (moisture from shower and maybe occasional dabs of water here and there).

  • Tarik

    btw GUYS are my gums supposed to be slightly red?! because i just noticed this now suprisingly lool its just a tiny line where the scab usually occurs lool! It dosent sting or anything like that just a tiny bit reddish instead of pinkish…or maybe its nothing lol

    • Will

      I haven’t noticed that on mine.

      • Tarik

        Maybe im seeing things lool coz today their pink :/
        Daniel what was that u was talking on ur inner lips?

        • Will

          If it’s in the gums it might be something not related to EC, maybe you could go to a dentist (though tell him not to stretch your mouth open :-/).

          • Tarik

            i dont think its anything tbh, coz it seems their fine now! Tbh i remember like 7 months ago when i had some yeast on my tounge or summin and they gave me some gel to get rid of it. The derms thought it had something to do with EC but they were wrong so i guess ur right it has nothing to do with EC.

          • Will

            Hopefully it’s nothing too bad.

    • Exfch2006

       Red gums are supposed to indicate something is wrong. They are suppose to be pink.

    • http://www.danielxmiller.com Daniel Miller

      If your gums are red, then you need to floss more. Get a floss brush or floss picks and don’t stretch your lips at all when using them. I have an oral B floss brush (looks like a tooth brush with a floss pick at the end instead of a brush) and it works great. Your gums will probably bleed a lot when you first start using it, but after a week or so of using it everyday they should stop bleeding when you use it and turn the healthy light pink color :)

      • Tarik

        could this red line stop my progress of my lips getting better tho??

  • Adele

    Hi all,

    Do any of you find that your lips stick together when you sleep at night? I think this is really slowing my progress……… How do
    You deal with it/what do you do?????? Help please! ;)

    Also my bottom lip stays attached for just over a week and then detaches from the inside but is very raw underneath, what should I do?

    • http://www.danielxmiller.com Daniel Miller

      My lips occasionally stuck together during the night…one thing that seemed to help was taking a shower right before I went to bed, this kept my lips wet and I don’t really remember them sticking anytime I did this…see if that helps any. And just try your best to keep the skin on longer…

      • Adele

        Thanks Daniel,
        If I get them wet they become stickier?!

        This time is so much harder than the last time I had this! :(

    • Will

      I’ve had this problem twice, once from food or other junk landing on the lips, and the other time when I got sick and I had to puke (I know gross, it was a pretty bad experience with EC).

      Anyway, the only solution I found was to put some aquaphor on the lips so it would cause the top layer to fall off. I re-started the leave alone method after that. I haven’t had a problem with sticky lips since.

      If it’s food you might try gently dabbing the lips with bounty and some water.

      If it’s just your skin sticking together without any special cause, that’s a problem. I’ve thought of a few ideas, most of them sound crazy but they might work. Most of them are a variation of putting something between your lips.

      Crazy idea 1: This is a little crazy but I’m wondering if it might not be possible for you to put some barrier between your lips while you sleep and keep it attached to your head somehow. You could use a baby’s teething ring, and attach a strap to it (say a surgical mask strap or shoe laces) so it stays between your lips while secured to your head.

      Crazy idea 2: You could use a small plastic cup, think of one of those Solo brand party cups, they have a comfortable edge, I’m thinking one of the smaller size cups, and use a one hole holepunch to cut some holes in it. Then attach it to some kind of strap (again shoe laces or a surgical mask strap or string, etc.) to the holes and around your head, and place the cup between your lips. The solo cup is plastic so it won’t get damaged by saliva and with the comfortable edge it shouldn’t bother you too much while you sleep.

      Crazy idea 3: Maybe using a modified surgical mask (I believe they sell them at pharmacies in boxes). You could cut it such that part of it could fit in between your lips (think of it like cutting a spoon shaped piece placing a spoon between your lips). It might also be possible to use crazy glue to stick a comfortably fitting plastic piece onto the surgical mask.

      Crazy idea 4: You could use a scuba mask with a snorkel. The snorkel could go between your lips and remain attached to the scuba mask.

      Crazy idea 5: you could take the strap of a surgical mask (or a scuba mask strap) and attach it to something else that could fit between your lips.

      Crazy idea 6: you could go to a dentist and have him create a plastic divider for your lips using the casting materials they use for creating invisaline clear braces. You could cut holes in it for a strap. Or the dentist could create braces for you that have a plastic extension that extends beyond your teeth to the area between your lips (the dentist would have to play with the mold a bit, but it’s doable).

      Crazy idea 7: you could use a piece of cloth and run it between your lips, tying it behind your head, kind of like a gag. Like a cheap movie gag. It could be something comfortable like silk. you would let a portion of it slip between your lips to block them from toughing each other.

      Crazy idea 8: Don’t hate me for this one, you could use a ball gag (kind of sexual, I’m sorry, but it would block your lips from touching each other).

      Crazy idea 9: You might be able to use a belt, maybe get a clean new one, in a comfortable material and tie it around your head lightly with the belt in between your lips.

      Sorry if these ideas are offensive in any way, just trying to help. I hope you get better soon :-) .

      • Adele

        Hahahaha Will, that really made me laugh, not good with EC!

        They do it all the time, the main reason I can see is that the skin gets quite raw from the dry skin coming off to early, which causes the too and bottom lip to stick together :(

        Does anyone else with EC get this?

        • Will

          Well, they say humor is the best medicine :-) . But those were actually serious suggestions as silly as they sounded. I went to art school so I tend to come up with unusual ideas to solve problems haha. If you manage to find something that helps with that let us know. I haven’t had that particular problem, but I’m going to try to put together a list of people’s suggestions for common problems on my progress gallery (in lieu of actually building a website yet). I’m Will Stark btw.

          I have EC on both lips, but the top is not as bad (except in the center triangle… which is super annoying). EC seems to have spread to all of my lips right around the vermillion border, but the top forms a much thinner crust than the bottom (still annoying cuz it looks terrible when I drink something). It’s also weird because I never touched the top (except for the triangle) or the corners of my mouth, but those are peeling too. (Super annoying).

          How long did it take you to get back to normal last time?

          BTW I found some straws that come in a wrapper on Amazon.com that I’m going to carry around with me for parties and dinners lol. Unfortunately, I run a small law firm so I have a lot of social events I have to go to (which I used to love till I got EC). Though I’m becoming a lot more accepting. Therapy and psych meds have helped.

          • Adele

            I know haha, definitely creative ;) and thanks, it’s nice when you get a reply, us lot aren’t really on our own!

            Well last time I got it after having my daughter, and I suffered with it for 18months but loads of that time I was applying creams ect so total time with nothing was about 8-10months to TOTALLY CURE but about 2 months before it stopped I went on Sporanox (strong anti fungal med) for 2 weeks so don’t know If that helped????

          • Will

            If it’s a dinner with friends or family, or even my partner, I’m definitely pulling out the straws lol. I guess I just won’t drink with clients (maybe I can take them to a beach bar where they serve  piña coladas or other drinks that use straws haha).

            As for Sporanox, I hadn’t heard of anyone trying it. Let’s see how it goes for this time. If you don’t use it and you get cured you’ll know if it was leaving them alone only or using Sporanox. I’m doing straight leave alone right now and “trying” to keep the diet (plus Seroquel for my OCD). Still a little confused as to how often to let them get wet. But I’m not worried, at least I’m not causing it to get worse with ointments and steroids anymore.
            BTW if you spoke Spanish I might send some work for you just to help out. Especially if you know how to do research. It would actually be nice to hire someone with EC. Though most of our work is in Spanish and we’re a pretty new firm (so we don’t have a ton of $$$).

          • Adele

            I think Sporanox was probably nothing to do with it, more just a time thing……

            But yep I will know this time!

            I’m actually in sunny old England and speak minimal Spanish, our family
            Does have a holiday home in the Costa but all I can do is order a glass of wine in Spanish fluently, what else do I need to know lol

          • Will

            Well if I can figure out a way for you to help us I will give you a shout out ;-) . Happy new year!

          • Adele

            Yeah, I’m having th same problem with the water thing, I just tend to do it when they feel really uncomfortable and after I eat but I’ve been gently dabbing them with a towel so that the moisture doesn’t take more skin off….
            Have you been leaving them after getting wet to air dry?

          • Will

            Been trying to. Today something strange happened where the scabs didn’t dry up. At least the central portion towards the inside of the mouth stayed humid while the portion on the outside was dry. I am somewhat concerned, but I figure if something starts to feel too off I can always use aquaphor or vaseline and remove the top layer. So far I will be leaving them alone and observing to see what happens.

          • Adele

            I take straws out in a bit of kitchen foil so they stay clean and hide them in my bag, I do think it’s a little easier for girls to drink from straws, do I really feel for you lads with this!

            My top lip peeled only thinly last time and your pics are quite similar to
            How mine was originally, I really dont think it will take long at all for you!

            I was a legal secretary for a law firm and will definitely go back to that when my children are old enough to start school. Try not to let it bother you, your lips are a lot nicer than mine!

      • Adele

        Nope, not offensive, but some are quite funny :) !

        I have some of those cotton wool bundles that dentists use down by your gums, they push my bottom lip out which might stop the two sticking together……. Hopefully!!!

        Does your EC effect both your lips?

        I had this 2 years ago and git rid of it
        For about 6 months, then was really stupid and put something on my lips I shouldn’t (never again!!!) but YOU CAN get rid of this, I did with love alone method last time, I just used a tiny amount of almond oil when they was 95% better to ease the dryness once all peeling had stopped.

        Hope you get better soon too! And everyone else on here!

    • Pearlpowder

      Apply vit e oil (from gel capsule) or use your saliva, without licking it… Licking your lip line makes it drier from my experience.. Hope this helps

  • Jade

    This blog is fantastic, it is so great to finally be able see someones week by week progress with both videos and pictures.

    I will follow your progress for a little while longer but I think I am already persuaded to try the leave alone method now just from what I have seen on here. 

     :)

    • Will

      Check out the progress galleries too, particularly Jaye’s. She seems to have gone the furthest towards normal.

    • http://www.danielxmiller.com Daniel Miller

      I’m glad you found us :) I’m uploading a video as we speak! http://youtu.be/lUaktp0NAMA the link will become live in about 45 minutes!

  • Exfch2006

    Did you guys know that dermatophyte infections feed on the keratin in the epidermis? If you’ve followed anything I’ve posted you’ll know I think either a autoimmune issue or virus is the cause behind the scene of EC, but after reading this I think it is more likely a dermatophyte infection. Not sure. I’ll have to read on, and it is not like I am a medical expert, so who knows.

    Please read further where it says: “Common mistake that many clinicians make is to prescribe combination
    antifungal corticosteroid products (eg, Lotrisone®) for the treatment of
    common fungal skin infections without confirming the diagnosis. This
    course of action is not recommended for several reasons”

    Link: http://www.uptodate.com/contents/dermatophyte-tinea-infections

    • Will

      Interesting.

  • http://www.danielxmiller.com Daniel Miller

    Uploading a video at the moment for your enjoyment :) haha. http://youtu.be/lUaktp0NAMA

    I have been trying coconut oil cream for the past couple days, it’s organic, and it doesn’t cause my crusts to separate early! I am waiting for them to send me some hand made coconut oil, should be here Friday. I will do a review on it and let you all know what I think! Also I am doing a Q&A on this coming weeks video, so if you would like to be in it, please ask your questions now! :)

    • Will

      Do you ever clean the scabs? How do you clean them? My mom (doctor) is concerned about bacteria build-up on the scabs, she suggested I dab a little listerine gently over the surface with a q-tip to kill bacteria. 

      I’ve also been gently using bounty with water whenever I feel they’ve been touched by food.

      • Exfch2006

         you are soooooo lucky that your mom is a doctor. How long have you had this?

        • Will

          Not really, my mom doesn’t know anything about this condition except what I’ve told her about it. I’ve been trying to convince her I have EC for months. I even showed her online articles and a dermatology book and pointed out how I met all specifications for it, but she still thinks it might be allergies or drug induced (even though I had the patch test come out negative and none of my drugs are on the list for drug induced cheilitis), though she agreed leaving them alone was a good idea. Mom’s been kind of an obstacle actually. My dad is also a doctor, also not a dermatologist, I managed to convince him I had EC by freaking out about it until he agreed lol. The only way it has been helpful is that I quickly got to see all kinds of specialist friends of theirs, most of whom did not know about EC. All of them gave me ineffective advice.

          It probably started earlier when I was going through a very difficult time and was picking at my lips a lot (they were also behaving strangely, building up a kind of really soft layer of skin that was annoying and all I wanted to do was remove it every time I felt it). I first noticed something was off in July but I was able to manage it with chapstick. Then it started getting serious in November when the whitening with water started. I tried leaving them alone, gave up, tried some more ointments, then went back to leave alone and here I am.

          • Exfch2006

            Do you have any family history with stomach problems?

          • Will

            I can find out for you, but not that I am aware of. Do you have a private email or progress gallery forum account where I can PM you the info? Don’t want to post it all out here lol.

          • Exfch2006

             Thank you! Here’s my email.. exfch2006@hotmail.com

          • Will

            Sent you a couple of emails. Let me know if you got them, and I hope it helps with your research. Let me know what you find out.

        • Will

          Actually, one correction: Having parents for doctors does help in that I can get any medicine I want or any medical test or procedure I need without having to go to another doctor 15 times. Where I live doctor’s orders are required for most procedures and medication. So things like an allergy test or a the atopic cheilitis IgE test are hard to get performed. Doctors are under pressure here to save money so they will try as hard as possible to give you the least tests they can, so they can keep the most money from the health insurer as possible. Supposedly it’s to save on healthcare costs, but really what I’ve seen it do is delay diagnosis and make life difficult for the patients. A medical diagnosis for EC might take 5-6 doctor visits, even if you’re going to a pathologist.

  • beto

    Making great progress. Crazy to compare your early pics to now.

    • http://www.danielxmiller.com Daniel Miller

      Thank you :) slowly, but surely!

  • Tarik

    How many more months do you think itll take for you to get cured mate?

    • http://www.danielxmiller.com Daniel Miller

      I wish I could even guess! lol

      • Will

        Hopefully not many, your lips are starting to look like mine.

    • http://www.danielxmiller.com Daniel Miller

      I put your comment in my newest video! :) http://www.youtube.com/watch?v=Y3fqO0enmLY

  • Tarik

    Just a shout out to Jaye!
    Keep me posted on ur progress hun lool coz whenver u get cured itll mean the my journey is coming to an end :D

    We can get through this yalll

    • http://www.danielxmiller.com Daniel Miller

      I put your comment in my newest video! :) http://www.youtube.com/watch?v=Y3fqO0enmLY

    • jayejaye

      I hope so for us both!! I just put my progress gallery up. Fingers x’ed that 2013 is the year we are cured :)

  • Tarik

    Whenever I exercise after I take a shower as the days go by the skin underneath my moustache seems to get more whitish after my showerand more obseravble! Do you think I shouldnt exercise and that it could cause my lips to get worse and stop my healing process due to the white skin under my moustache building up??

    • Will

      Personally, I think that may be a judgment call. I probably would take a break from exercise and see what happens, though you could also not take a break and see what happens. Really going either way will teach you what the best choice was based on your results. 

    • http://www.danielxmiller.com Daniel Miller

      I put your comment in my newest video! :) http://www.youtube.com/watch?v=Y3fqO0enmLY

  • Will

    Happy New Year, or should I say, happy last year of having to deal with EC! ;-)

    • http://www.danielxmiller.com Daniel Miller

      I “liked’ your post! :)

  • Exfch2006

    Awesome progress Daniel!

  • Pearl

    Hi Has anyone tried vit e on lips? How is it so far?

  • harry

    i thing vitamin B complex capsules would also going to be better for you…..i am taking them and so impressed of result caused by them on ma lips

  • Adele

    How’s the coconut experiment going Daniel?

    • http://www.danielxmiller.com Daniel Miller

      I talked about this in my newest video! :) http://www.youtube.com/watch?v=Y3fqO0enmLY

      • Adele

        The speaker in my phone has broken so I can’t hear it and I’m rubbish at liP reading lol

  • Tarik

    I personally think its bets to just leave them alone guys and not add anything ot ur lips. Just pure water.
    That way u know for a fact no harm can be done and ur lips will only get better in the long term. Oils could just cause it to get worse and irritate it after how far weve gone.When I used grape sead oil 8 months ago it caused some of my healthy skin to turn into EC infected. Just stick with water and trim sides that start to full off and everything will be fine

    • Will

      However, Jaye has been using coconut oil and she’s made progress with it. I think with water the problem is that you either use too much and detach the skin or too little and it evaporates or gets absorbed quickly.

    • Selena

      Tarik, did your EC come from accutane by any chance?
      Thank you!

  • Tarik

    I remember one of my derms saying that leaveing it alone will cure it but it will take time so she said ur gonna have to have a strong mind to cope with it…but she told me not to use anything on them whilst leaving them alone, especially oils!

    • Adele

      You sound like your doing brilliantly tarik, I’m 26 and have had this (for the second time) since September :(

      I was so stooooooopid and put some vitamin e oils on them yesterday and undid about 2 weeks worth of good!

      With the water do you leave it to dry on your lips on dab it dry with a towel?

  • Debd1980

    hi does anybody elses lips have a burning sensation and tingling sensation because mine do

    • Adele

      Yep, from time to time mine do. Think it might just be the dryness, my hands can get the same sensation when they are really dry, but if there is swelling as well I would go to your Drs, might be a slight infection……….. Hope that’s some help :)

      • Debd1980

        hi i have been 2 the docs a week ago and he as given me hydrocortisone ointment to use for 2 weeks twice a day and my lips do look better but early days yet, i was having a burning tingling sensation on lips b4 thow in fact thats how my peeling lips started in the begining that was my first signs lips feeling like they was burning and tingling and it has carried on right through, last night i did do alot of kissing thow and today they feel bit raw and burning and tingly so think it might of made it worse, think it may of took slight skin off my lips but hey ive gota enjoy myself sometimes lol, need 2 cheer myself up but lips are paying 4 it 2day, but anyway i have had burning and tingling sensation frm begining and numbness too

        • Will

          Be careful Deb, gotta be gentle with the lips while you’re trying to fix them. 

    • Adele

      Ps, are you using anything on your lips? Products would really make my lips burn, I’m doing the leave alone at the mo and dont get it half as much now.

    • Exfch2006

      yes.. they also get numb only at the peeling area. 

      • Debd1980

        i get numb feeling aswell as the burning and tingling

  • Exfch2006

    Thanks to Deb’s question, I’d like to ask if you guys could do a very simple favor. Could you take something pointy (knife, dental tool, toothpick) and touch the peeling area and surrounding areas to feel the difference of the numb area and normal areas, and then could you find someone with normal lips to do the same and see if their lips match the sensation because I did this with my mom, and she can sense every part of her lip whereas I have numbness where my lip peels. Even when I have moisturizer on it and when it is peeling minimally. The numbness is on the surface and below it as well. So, that means I can push the tooth pick down on the numb area and I still will not feel sensitivity from the pressure. 

    • Debd1980

      i can remember when my lips were normal and i never had any of these feelings on my lips, i really hope i can get back there

  • Debd1980

    i remember at the begining constantly checking my lips bcuz they was always burning and tingling, i sometimes even had burning sensation on tongue aswell, its just horrible 4 ur lips 2 feel like this all time, really gets me dwn, i just hope my sexy time last night hasnt made my lips worse, but i dont want 2 put my life on hold while i have this bcuz who knows how long that will be

  • Debd1980

    by the way i live in england, anybody else on here frm england

    • Adele

      Yep, I am! :)

    • http://www.danielxmiller.com Daniel Miller

      I would love to visit there sometime!

      • Debd1980

        u shud come out here, america sounds more exciting 2 me thow lol

  • Pearl

    Excfch, theres numbness on top of the dead skin, when it peels or even when its attached, you can feel the sensitivity. Or maybe it also depends how long has the dead skin been attached??

    Deb1980, the tingling will go away,…

    Update on using vitamin e (gel)… It made my lip “Mature” faster. I use it twice a day for 4days.. BUT my lips were not like so built up.. Maybe i will try to use just once a day???

  • Pearl

    Hi Daniel, whats the brand of the coconut cream that you are using? And is the ingredient jus coconut ?

    Hope you can post a picture or a video on how you apply it… :)

    • http://www.danielxmiller.com Daniel Miller

      I will let everyone know in my next video :) I want to test it out for a little bit first

  • Exfch2006

    how old were you when you got this? I was 20

    • Pearl

      Had it for 3 months (and counting)… Im thirty-ish +++

      • Exfch2006

        Hi Pearl :) So you recently finished accutane? That drug did what it was suppose to for me but gave me horrible side effects that are long-term; as in my skin will probably go back to normal in 20 years. I have serious reaction to the sun now that I been off the drug for 3 years to where I break out in hives. Honestly, my dermatologist was not looking out for me like he should have and I shoulda never been put on the drug because I never had cystic acne. I finished back in 2009 after taking 40 mg inconsistently for 6 months. Afterwards I guess I am thankful for how healthy I have become as a result of counteracting the side effects : )

        • Pearl

          Hi exfch (:
          Yeah i finished just july 2011.. Had accutane 20mg daily (inconsistenly also) for 4 months. Its good that you have already recovered – health wise.sorry to hear about your skins sensitivity to the sun… Accutane should really be banned, the after effects are horrible! I remember my derma telling me, theres no pain in beauty…thinking abt it now, Its not really worth it..

          But we’ll beat this EC…

    • http://www.danielxmiller.com Daniel Miller

      I got this at 20 as well

    • Debd1980

      hi im just wondering if your still using medication for coldsores and if you have had any improvement :)

      • Exfch2006

         I only used it for 4 days. Because I used it after doing a colon cleanse, during which my lips improvement varied from day to day, it was not a good indicator if the medication alone improved my lips. But ya it helped to a point then I began to use  cocoa butter stick by Palmer’s. If I had not began using a moisturizer then using the medication alone would have been a better indicator to whether or not it did improve my lips. Sorry I couldn’t have been more helpful. If I had to do all over again I’d do it without anything else interfering.

        • Debd1980

          so i wonder if the colon cleanse is good 2 try, i heard about that, what did u have 2 do

  • Selena

    I got this from taking stupid accutane some time ago, and after I am cured I want to make a blog or something warning people that you can develop EC from it. Who else has gotten it from the drug?

    • jayejaye

      I have had the drug before (at age 16) and got this when I was 26. My skin has been sensitive ever since. So sensitive that I can’t use a cleanser or barely moisturise because my skin gets inflamed. 

      I think Accutane makes us more susceptible to having overly sensitive skin and inflammation. 

      EC is an inflammatory condition. 

    • Pearl

      I took it just last year, from march to july. Have EC now, for 3.5months. My lips look horrible! They are greenish and layers upon layers of skin are piling up!

  • Debd1980

    its been neally 2 weeks i have been using hydrocortisone ointment and vaseline now, my lips look better but little bits still seem 2 be peeling but putting the ointment on stops it but problem is when i eat or even close my lips little bits of skin come off, my lips feel sensitive 2 touch aswell, i think i might need 2 use it longer may be not sure, im going 2 go back 2 doctors and ask him what he thinks, i just wish they would go back 2 how they was, the sensitivity and tingling makes me paranoid a bit i keep checking my lips thinking ive got a coldsore coming even thow i have never had 1 in my life, this is how i have been since ive had peeling lips

    • jayejaye

      How long are you planning to use the hydrocortisone ointment and vaseline? And what is your next step if it doesn’t work? (I hope it does work btw!) 

      • Debd1980

        i really dont know, i tried the leave alone method for a month and i couldnt take it no more, it seemed 2 get worse and looked horrible, i think you really need some kind of lubricant aswell as leaving it alone, i went 2 my doctors in tears and this is what he perscribed for me, it will be 2 weeks this friday coming, i havnt got all the build up no more and when i wet my lips theres just a little bit of white skin on my bottom half of lip, i think i might need 2 use it 4 another week or so, best 2 ring doctors and ask i think, do you use straws 2 drink or do you drink normal out a cup or bottle and how are your lips doing :)

        • jayejaye

          Great, keep us posted. 

          I used to use straws for EVERYTHING.I don’t need to any more because my lips are almost healed. But I try to avoid coloured drinks or fizzy drinks because these are definitely not good for the condition, the lips or your health :)

          • Adele

            Hi Jaye,

            Do you think the best bet is to not apply anything? Or do you think they need moisture to heal?
            I’m so glad that your lips are doing so well!
            Did you ever used to get pain on the insides of them top and bottom lip touching where the skin is pretty raw?

          • Debd1980

            whats your secret then how have you healed yourself and how long have you suffered, ive stopped using the hydrocortisone now was making my lips red and sore and tender, going 2 ring doctors and see if theres anything else, may b i need some bacterial cream or something:)

  • jayejaye

    Daniel!!! How’s the coconut oil experimentation going? How are your lips today? 

    • http://www.danielxmiller.com Daniel Miller

      I dunnnoooooo I think I’ll make a video, and ask what you guys think!

  • BRguy

    I’ve been using Protopic for 3 weeks and my lips have improved a lot, anyone else tried it?

    • Kostinos1 2

      Hard to believe. Protopic just peels the skin off. It explicitly worsened my EC. Curious though, your lips do not peel anymore.

  • Debd1980

    ive never used accutane to my knowledge so do you think i have ec or may be something else

    • Adele

      You can get it through trauma to your lips when they get really dry, through weather, sunburn, mouth breathing with a cold or at night or also (more uncommon) fungal infection (you would have a white coated tongue which is very sore/burning, and it will usially come on after being unwell or antibiotics,but it is possible, I’ve seen a few cases

      • Adele

        Sorry, computer being silly!
        I’ve seen a few cases online where people have had chronic dry lips and either Fluconazole 2 weeks course has cleared it or clotromizole cream (the stuff you get from the pharmacy for thrush!)

        • Debd1980

          thanx 4 ur reply, i remember having a bad cold and kissing with dry chapped lips i think that might have been the start of it, i wonder if i could of got some kind of infection in my lips off having chapped lips and kissing and doing stuff might of led 2 bacteria getting in them, but i can also remember being on alot of antibiotics around that same time aswell so not sure what as caused it, all i know it as had a big impact on my life since i have had this and it is very depressing, you take it 4 grantid having normal lips, how are your lips doing and i think your brave doing the leave alone method i tried it for a month and it was the hardest month ever, i havent put any more hydrocortisone on 2nite think im just going 2 stick with vaseline and see how it gos bcuz lips are tender and swole, i catched my lip early on n really hurt and swole where i catched it, they are red 2 i think this is bcuz the hydrocortisone bcuz i have been using it 12 days, where about do you live in england :)

          • Adele

            To be totally honest the leave aloneethod isn’t doing to great for me at the mo and I’ve been on it for 4 months now so I’m starting to use a foot cream (yes a foot cream lol) it has 20% urea in it and peppermint oil (which will be good if there is any infection!) and urea is good for getting the skin to repair, I’m only using it twice a day though……
            I’ve actually had EC before and I took about 18months to fully go
            And that was using a combination of leaving it alone and Daktarin cream every now and then and at the very end of it I used burts bees the one that’s in a little tub.

            I’ve had it this time since september :(

            Maybe try a cream that has a anti fungal and antibacterial ingredient, most of the athletes foot creams have these and they also have a moisturiser in them to help with the skins elasticity.

            My problem is that as soon as the skin heals over, it’s so tight that I’m tears and I’m back to the beginning of the healing process! I totally agree with not pulling the skin off but my lips are desperate for some moisture!!!!

            I’m in east Anglia, where abouts are you?

            And hope you lips are feeling better soon :)

          • Debd1980

            i live near birmingham, ive been suffering since about may last year and never had any trouble with lips b4 then, i have stopped using hydrocortisone frm yesterday, my lips felt really sore and tender and i know what you mean the new skin is really tight and easily splits and peels thats y i think its best 2 have some kind of lubricant on them, i have also tried daktarin its 4 bacterial and fungi infections isnt it and i thought it was good, how many times did u apply it cuz i was putting it on my lips 4 times a day may b that was too much bcuz i noticed after a few days the corners of my mouth was getting red and irrated, it seemed like it was putting too much moisture in corners of mouth and was causing irration so i stopped using but thinking bout it may b i was applying too much, how many times was u using it a day and y havnt you used it this time:)

          • Adele

            It’s a horrible condition isn’t it! :0/

            I dot know if it’s because I used it quite a lot last time but it’s not agreeing with my lips this time, like you said its irritated my lips a bit this time but was great last time! Go figure! lol

            I only used it 1-2 times a day max, and I will only use the foot cream I’m using at the mo for a max of 3-4 days at a time and that’s Only when they feel awful!

            Unfortunately and as horrible as it is leaving them alone with occasional use of a moisturiser was the only way I healed them last time and it did take 18minths to fully heal!

          • Debd1980

            omg did the condition get better as time went on thow, and i do believe in leaving it alone but with a moisturiser bcuz lips r meant 2 heal better when kept moist and not letting them dry out, i hope you get rid of yours too hun :)

  • Guest

    hey bud been following your blog and think this is a great courageous effort on your part. keeping them dry is not the solution, leave them alone and keep them lubricated, get them wet and then put a thin layer of vaseline to seel in the moisture everytime they feel dry dry. vaseline is the best thing you can use if you apply it this way and is not the toxic devil like many people say. this is why the medical community favors it, just use it properly. the problem with the chapstick you had is because your lips absorbed them and did not like the ingrediants in them after a while, vaseline sits on the surface and is not absorbed, the water you put on underneath is the moisture it locks in, dry lips are irritated lips and irritated lips continue the ec cycle, try it out, you can always stop if you feel its slowing progress, best of luck.

    • Exfch2006

      whoever you are I agree with what you said. I’ve been wondering about this for sometime, “what would happen if I left the vaseline on without wiping the dead tissue off and just left it alone.” Seems like common sense until this wonderful dermatologist I had came along with a tissue and instructed me to wipe all the dead skin off. This guy made my lips worse and I always wondered about my instinct to leave it alone ever since.

    • Adele

      I totally get what your saying but how bad is your EC? If I put Vaseline on my lips (and I have) it doesn’t matter if I leave the white skin alone or not because the simple action of eating/talking/opening, closing my mouth is enough to remove the skin in itself and then your back to the beginning of the cycle! I would love, love, love to find something that just acted as a barrier leaving the growing skin where is it, but to this point I haven’t, but hope everyone find their silver bullet soon! :)

  • Adele

    This is a quick message for Jaye!

    Do you think that you should leave the lips alone for as long as possible first and then try something like coconut oil when they are lots better?

    Or

    Use an oil from the beginning?

    • jayejaye

      I would DEFINITELY leave my lips alone for as long as possible first. 

      To be honest I don’t know if the coconut oil is going to cure me. 

      It has made my life easier to live and has seemed to give benefits & improved my healing. 

      But only time will tell. 

  • Pearl

    Hi Daniel,
    each of us has a different reaction to stuff we put on our lips…
    Your lips has improved a lot by leaving them alone.. While others have to moisturizers…
    I tried coconut oil b4 (cold pressed), didnt work for me either..

    • Adele

      There is quite a few stories on google where cold pressed coconut oil had a drying effect on people’s lips.

      Your so right, everyone reacts very differently to products on their lips.

      I watched your last video Daniel, do you think the coconut oil made them worse? They looked a little more built up then they have over the last couple of months……

      Quick healing to everyone!

      • http://www.danielxmiller.com Daniel Miller

        yeah it seems like everyone has a different reaction to it!

  • Guest

    My lips didn’t react well to cococut oil… made them build up more. It looks like in your vid you have more buildup. I would ditch the coconut oil and find something else.

  • Guest

    Hey Daniel in the video you said it spread… when did it spread because in your earlier videos it looks like its covering you bottom lip as well?

    • http://www.danielxmiller.com Daniel Miller

      I meant the bottom part of my bottom lip…if you look at my very first video, you’ll see the spread of EC goes all the way down now.

  • Exfch2006

    I just uploaded a progress gallery in you wanna see : )

    • Debd1980

      yes lets av a look:)

    • http://www.danielxmiller.com Daniel Miller

      Looking great!

  • AnthonyME

    So, Daniel. Any tips to limiting your smiling and movement of lips?

    • http://www.danielxmiller.com Daniel Miller

      I just tell the people around me to not make me laugh, and also when I feel like I’m about to laugh I force myself not to smile, and if I can’t stop it I just hold my cheeks :)

  • Debd1980

    hi every1, im going 2 try just using vaseline on lips 4 a while now as it just adds a barrier over your lips protecting them and keeping any natural moisture in rather than putting something on them which your lips absorb, i will let you know how things go

    • AnthonyME

      Good luck then. I tried Vaseline for the last 4 days, and the first 3 my lips were perfect….. but on day 4 they became dry and stiff. -_- 
      Hope you have better results.

      • Guest

        Trick with Vaseline is not to slather it on like gunk… you need to wet the lips, and apply a THIN layer to trap in the moisture everytime they start getting dry.

        • AnthonyME

          Hmmmm… I’ll try again and see how it goes. Thanks, guess it didnt help that i was slapping it on like my life depended on it

    • Bob

      I’ve been wanting to try vaseline too. I’ve been using aloe vera gel (straight from the plant) for about 2 weeks now and my lips aren’t building up as much as before but i don’t really know if they’re healing or not :/
      but the thing is the aloe vera dries up really quick like in a couple of min so i’ve been trying to use it about every hour or so…i kind of want to try the vaseline though and just leave my lips alone.

      • Hope

        Keep trying the aloe vera thats something to try i havent heard of anybody else using it and keep us posted please!!! Thanks

  • Gthreat

    Hello. I have the peeling issue as well. However, after all my research into it there are a few things that didn’t add up.

    I’ll get to the point:
    -The “line on your lips you’re healing” at the start (photo) may be due to lichen planus.

    In my case it’s clearly visible inside my mouth on both jaws; looks like large white veins. They hed toward the mouth … and I guess they continue to the lips.

    For me both issues appeared close together.

    If you Google images of “lichen planus” you’ll see a few images of it in the jaw like mine, but if you Google “lichen planus lips” you see images similar to your case and mine as well.

    It can cause auto immune reactions which is why the lips peel the way they do. Here’s the kicker, sometimes it will heal itself after a few years.

    I’m setting an appointment tomorrow to ask more questions.

    MY QUESTION TO YOU:
    -Do you have any of the sign of lichen planus?

    Here are links to images that look like my jaw and lip (without the dead skin)

    lip:     http://www.medivisionfilms.com/uploads/thumbs/a1UfMEYn2H5BNbVuTZAI_large.jpg

    jaw:  http://missinglink.ucsf.edu/lm/DermatologyGlossary/img/Dermatology%20Glossary/Glossary%20Clinical%20Images/Lichen_Planus_Mouth-V.jpg

    • http://www.danielxmiller.com Daniel Miller

      Thank you for sharing your story! Yeah I haven’t seen the white lines on my lip or mouth before, but what you wrote looks similar to your condition…Keep us posted on how things are going for you, hopefully it isn’t too painful.

  • Kostinos1 2

    It may be cheilits grandularis.

    • Exfch2006

       maybe

    • Gthreat

      Possible, my apt. is soon .. I’ve got a spread sheet for the Dr. … I’ll add that as well.
      Also going to talk to a dentist soon.

  • Tarik

    Its still okay to clip them or cut the parts off when they seperate and flake off from the lip right..just cut them without touching the parts that are still attached?

  • Tarik

    dont use anything to moisturize them guys! Daniel like u said when i first read this site, adding nothing at least gives u the knowledge that ur not harming them! Leaving them alone and adding nothing has given us all amazing results that creams or oils could never have…dont give up now weve gone so faR!!

  • http://www.facebook.com/profile.php?id=501439519 Mike Giardino

    I really need to stop checking curezone and solely come on here. Curezone and the people on it with their different opinions is realllly stressing me out whenever I get second thoughts of doing or trying something out.

    • Kal

      I hate the format of the curezone forums… like seriously what is that? Web design from 1981?

      • http://www.danielxmiller.com Daniel Miller

        lol I don’t like the format of the site either, haha

  • Alexis

    Hi Daniel,

    I have had what I now believe is very very mild exfoliative cheilitis for maybe a little over a year. I’ve lived in Hawaii my whole life and it’s VERY humid and wet there, which has luckily helped me with dryness of my skin. However, I just moved to Washington and it is now winter and very very dry :(  Just this December, when I applied an EOS lip balm, my lips all of a sudden would start to tingle and burn a little. I immediately stopped using it but the feeling and pain and dryness, etc. has not gone away. I still have it and my lips are peeling a lot during the day. I began to get concerned just earlier this week because it’s been a month now and my lips are not getting better. I am SO GLAD I found your site and videos! I am going to try and do what you recommend so as to let my lips heal before it gets worse. I hope that it doesn’t, and I give you credit for making this site! I have also had very bad skin (acne, dry skin) since middle school and have battled it since then (I’m now 21) so I know how frustrating and embarrassing things like these can be! It’s hard to not get depressed about it when everyone else seems to be just fine while you’re suffering. I hope that now my lips aren’t going to be giving me problems, but thank you for posting all of this. It’s been so helpful and encouraging. I hope to stop it before it gets too bad!!! <3

    • Kal

      Good luck. :-> Post a progress gallery if you have time.

  • Kal

    Hey guys, it’s Will Stark, this is my new nickname. So I went to see a plastic surgeon today. He said he had successfully treated a few cases of EC. He gently removed the layer that I had been building up (my lips once again looked completely normal under the callus) and put me on some kind of chemical that kind of feels like heavy chapstick mixed with topical vitamin E and oral vitamin C. I had not intended for him to remove the layer and just wanted him to see it, but his “examination” turned into just carefully removing the entire callus layer with a gentle chemical and a wooden tool he had (wish he’d asked me first but by the time I figured out what he was doing he was already doing it). Anyway, I’m going to post a pic of what they looked like before and after he removed the callus.

    He said he would perform a biopsy in a couple of weeks if this didn’t work. Unfortunately he killed my leave alone (although I wasn’t seeing much progress, I don’t know if I was doing something wrong). Will keep you guys updated with the progress gallery.

    • Exfch2006

       Yeah, I’d been surprised too. Look forward to seeing your progress :)

      • Kal

        Well I figure it’s one more medical alley to go down. All failed medical roads lead back to leave alone so… may be back to it in a few weeks lol. Wish me luck.

    • Gthreat

      interesting … please keep us up to date

    • Guest

      hey kal what is the name of the product you’re using?

      • Pearl

        Hi guest, how was the petroleum jelly on your lips?

      • Kal

        Hey dude, so the first thing the doc put on my lips was like heavy chapstick, but I only used it that one day. I don’t know what it is.

        The thing he prescribed to me is Triamcinolone Acentonide Dental Paste USP 0.1% mixed with Vitamin E (100mg). The Acetonide is apparently a steroid, it’s kind of sandy in its consistency and without mixing with Vitamin E it’s very hard to apply to the lips.

        So far I haven’t noticed it working. Although the vitamin E is pretty nice on the skin (i’ve been using the oil form, though you can also mix it with the gel form by cracking open the gel capsule). Vitamin E does work for lubricating the skin a little, which may help for those doing “leave alone” who feel their lips get too dry.

    • Debd1980

      how much did it cost, sounds promising, i hope it works :)

      • Kal

        Well I don’t know if it cost anything to me, I have a good health plan and the doctor is a family friend. I didn’t pay anything from my wallet but they did ask for my insurance card.

        I will update on what happens.

        • Debd1980

          yes keep us updated im excited 4 u :D

  • BRguy

    hey i’ve been trying this for 3 weeks now ( using protopic and not peeling my lips), and it’s like 1/3 healed already, normal skin has grown back over the irritated part and it looks better then ever.

    • http://www.danielxmiller.com Daniel Miller

      That’s great news! Would you like to share a picture? :)

    • Kal

      Be sure to take pics and make a progress gallery if you see improvement last a few months.

  • BRguy
  • http://www.danielxmiller.com Daniel Miller

    New video uploading! My thoughts on moisture and a week later: http://www.youtube.com/watch?v=Pzc_Qv-GbT4

  • Tarik

    Jaye just a quick question do ur lips build up like they did in the previous months. Coz ur pics just shows ur lips as normal but with a thin layer, is that how they look all the time throughout the month, not building up after 10 months?? :)

    • jayejaye

      My lips still peel but you can’t see it any more. At most it looks like chapped lips. My lips peeled today actually. I could tell they looked worse than usual and I trimmed them because I felt self-conscious. 

      The main difference now is that my lips don’t form LAYERS UPON LAYERS UPON LAYERS. My lips would be so built up before that they would go crusty and yellow and I wouldn’t be able to move them.

      • jayejaye

        p.s. the flaking around the crusting has also COMPLETELY gone away. 

        • Tarik

          Okay thats fantastic news then, i am completely comparing my situation to urs at the moment. Because my cycle compared to us is pretty much identical. My lips look like how urs looked in month 6 atm so im guessing in 3 more months i will have the same outcome as you inshallah :D  
          The smell is in the air od us defeating this once and for all!!

          • jayejaye

            I hope so :) My fingers are crossed for us both.

            On the top lip it is about 1 third effected. On my bottom lip it is 2 thirds effected. The corners of my top lip has stopped peeling. It is mainly the middle part on the top lip.

        • Tarik

          oh yh btw atm how far is ur lip line where the crusts start appearing on ur bottom lip? less than half way? :)  

  • jayejaye

    Daniel!

    I’m really interested in the outcome of this coconut experiment for you. 

    Is it just me or can you can see the colour of your lips through the crusts?And also are you talking a lot easier? I’ve noticed in your past videos that the movement of your mouth is restricted. Do you feel like you have some flexibility back?

    I think they look much better today than your last video. I think you need to try it for one more week at least. 

    Do you still have the tingling? 

    FYI: I have gastritis atm and potentially h pylori. This seems to be very common with EC. What are your thoughts on this?

    Thank yuuuuuuu! :)

  • jayejaye

    Great article on Dr Oz about lip balm addiction and coconut oil remedy:

    http://www.drozfans.com/dr-ozs-advice/dr-oz-lip-balm-addiction-coconut-oil-lip-moisturizer-remedy/

  • Antonio

    So did you find a cure, Daniel? Because I noticed moisturizing my lips with Meadow Foam Seed oil actually slows the peeling process, but once I leave the lips without any oil the peeling process starts again. Any ideas?

  • the ascendant

    hey guys, im about 5 or 6 weeks intot he leaving it alone method now. I have seen great improvement but I agree that probably using some product might be beneficial If we do not wipe the white, softened skin off. What do you think of combining both methods though? Eg. applying coconut oil every 2,3 or even 5 days, or 2 weeks coconut oil, 2 weeks leave alone.. ?

    • Kal

      I think that might help, leaving the lips “completely” alone does tend to dry them too much. 

      • jayejaye

        Yes I completely agree. I did 3 days without coconut oil and today I just found that it feels so much better with it on. My progress is still going forward and it is less traumatic for the lips. I think over application can be detrimental though because the lips still need to learn how to be self-regulatory. 

    • jayejaye

      I think it it too early early to tell if coconut oil use is going to be beneficial long term. What you need to remember is the majority of progress Dan and I made was over 8 months of applying nothing. 

      There’s only one way to know though and that’s to try it and let us know how it goes. 

  • Tarik

    Also Jaye!!!!
    Starting from next month do u think u could try doing a blog of ur pics everyday for the month or 2-3 weeks if thats too much. Just soo i can see what ur lips look like on a day-to-day-basis. That would be really helpful thanksssss!! xx

    • jayejaye

      Hehe okay! I actually haven’t applied coconut oil to my lips for the last 2 days and instead have been using a bit of milk on a spoon and dipping my lips in. I’m taking a photo of my lips every day to see what happens. A guy on the fb page is claiming that it has almost cured him. Will see what happens with it this week. 

      • DaMa

         Jaye, can you tell me how did you get your cheilitis? I’m very glad that your condition is better! How are your lips now?

    • DaMa

       Jaye, can you tell me how did you get your cheilitis? I’m very glad that your condition is better!

  • Kal

    Hey guys, you can add Vitamin E in oil form (100 iu) to the list of liquids that don’t turn your lip skin white but do help to moisten them. Been using it for a few days and it’s very gentle on the lips.

  • Guest

    dan where u at its the 15th!?

    • http://www.danielxmiller.com Daniel Miller

      Sorry I’ve been busy, I will try to do an update sometime later tonight :)

  • Guest

    nice your lips are looking healthy you can smile now!

    • http://www.danielxmiller.com Daniel Miller

      thanks! :) We’ll see how it goes!

      • the ascendant

         are you using coconut oil or cream? After the coconut oil has dried, my lips start ithing and buring slightly. Do you experience the same?

        • the ascendant

           Also the sides get a little red. I think you had the same in one of your videos..

          • http://www.danielxmiller.com Daniel Miller

            Yes I had the same reaction. I am using a coconut cream. It doesn’t make them burn, it’s all natural and organic. I will put it in my next video. If its irritating I do not recommend using it.

  • HI

    EWWW DEVIL CHILD EWWW

    • Kal

      Jackass.

    • http://www.danielxmiller.com Daniel Miller

      I don’t believe in the Devil.

  • chesire

    hi deserves a dose of karma… clown… dan i agree with what you said about don’t use if it feels irritating… i think that’s the way to beat ec… do everything we can to keep our lips irritation free and that means no picking!

    • http://www.danielxmiller.com Daniel Miller

      Exactly! :)

  • Bob

    Can someone explain the “milk theory” to me? I don’t have a facebook so I can’t see it. Do you just constantly apply milk to your lips? Did this person get fully cured doing this?

    • http://www.danielxmiller.com Daniel Miller

      He was applying milk to his lips about 3 is so times throughout the day I believe. Just put milk in a small container an put your lips in it for a few minutes just let it soak there. I have been using raw milk which is really hard to find but if you can get it that would be a lot better for you and your lips (read up about the healing properties of breast milk for babies and you’ll see why raw milk is better).

      • Bob

        Ah ok I see! Guess I have a little bit of research to do lol
        Did this person get fully cured doing this?

        And how long did they soak their lips in the milk?

        • http://www.danielxmiller.com Daniel Miller

          They are still undergoing the experiment. And for a few minutes each time :)

          • http://www.danielxmiller.com Daniel Miller

            I asked them to make a post in the progress gallery section, so look for it in the near future! :)

          • Adele

            Sounds interesting! I would be worried
            About it causing an infection if I got caught under a scab though…..

          • Kal

            I agree, milk goes bad when not in a refrigerator… it could rot on your lips.

          • Adelemilleare

            This was exactly my thinking :0/ and milk holds good and bad bacteria, even pasteurised! I have a low white blood count and my haematologist told me that yogurt and milk I should avoid as the bacteria in them could cause me problems, even the supermarket brands! My thinking is that milk holds lactose (a sugar) and if your prone to the skin on your lips splitting with this condition then that could feed any nasties already there and cause a localised infection, can’t say I’ll be trying this, but each to their own!
            Good luck peeps :0)

  • Adele

    Hi everyone, I’m having a ‘bad day’! And just wanted to see if anyone else gets this……

    My lips on the inside of the mouth are really raw and sore especially when I’m eating or drinking through a straw (I wouldn’t even attempt a cup, they would probably stick to it!) I’m trying really really hard to stick to the leave alone method and have done so for the last 4.5months with only a couple occasions where I have applied anything!

    To people who further along with then leave alone method, did you get this?
    Has it got better?

    I didn’t have this much discomfort last time :0(

    • Tarik

      Been doing it for 6 months now. I havent had the stickyness inside my mouth. When skin peeled whilst applying steroids and carmex etc. My lips itself felt sticky when the skin came off. It had a raw feeling to it but since starting the leave it alone. The stickyness and crusting have both stopped 

      Just keep going and dont apply anything to ur lips :)

      • Adele

        Thannks tarik,

        I’ve been doing this for 4.5months so don’t understand why I’m still getting the rawness?!

        It’s only on the top lip line that the skin is raw, I just can’t seem to keep the middle scab on :( it last 2-3 days then an edge comes up and shrivels away exposing the raw skin underneath…….. Argh!!!

        How long did your scabs stay on for? Just find it do hard to heal with the natural moistness of the mouth that seems to always get onto that skin?

        Was there anything that you did in particular to stop the scabs from coming off to early? Or with helping them form?

        Sorry for all the question I just feel I should have seen better results after nearly 5months.

        Thanks :)

        • Kal

          This is kind of counter-intuitive to the leave alone method, but you could try using an oil on the part that is drying too quickly. I’ve been using vitamin E oil and it does seem to help a little. Coconut oil seems to be the other option. You can see on my progress gallery what happens when I apply vitamin E oil.

          • Adele

            Thanks Will!

            Hope your getting on ok? It’s the vitamin e oil irritating your lips at all? Like making them red, itchy, burning?

            I’m sort of stuck in a limbo, leave alone method seems to be taking ages to
            See any sort of real improvement, yet when I try a product it just seems to
            Make thing worse, I almost get a bit scared to try something new :0/

          • http://www.danielxmiller.com Daniel Miller

            Hey Adele!

            So I had this problem a long time ago, and it was a little difficult to resolve, but there must be some kind of trauma you are causing to your lips without realizing it.

            Are you doing any of the following: coughing, laughing, sneezing, smiling, eating with mouth open slightly wide, talking a lot? These could be causing trauma to your lips and making the parts that are healing start to die once exposed to air after they are separated from the skin by one of those events (or similar).

            You are more than welcome to try a different method (as many of us are now venturing into) to see if it speeds things up. However if whatever you use caused ANY of what you mention, redness, itching, burning, inflammation, then do not use that product. Get something different. I am using organic coconut cream as I had a lot of burning and itching with the coconut oil, I think it was too potent for my very sensitive skin.

            We will find the quickest answer to healing this…that I assure you. It’s just taking us a while, but we are definitely on the right track.

      • Adele

        Sorry lol also do you sometimes get split in your lips when smiling/eating because the skins elasticity isn’t very good? This seems to start the healing progress all over again as well…

  • Tarik

    Daniel i dont understand in your site it said that all the creams oils and steroids were causing this to get worse. Youve gone sooo far why are u all trying new theories after 10 months of hardship?

    • Kal

      I think the problem is that totally dry lips might not be the answer. If the dryness causes the skin to contract and detach at the edges, that allows for the skin under the detached part to just start building up again. Also note that Jaye has been using oil and seen improvement. I think some moisture might not be such a bad thing.

    • http://www.danielxmiller.com Daniel Miller

      So the true reason that I am adding new methods to my theories is because I have been thinking a lot on what actually caused me to get EC. I had used chapstick for years and years, and only got EC at the age of 21 or so…the main event that triggered my EC was a dentist visit where they stretched my lips and when I started flossing with regular floss and stretching my lips, that is the actual point in my life where my lips started getting dry and flakey. At that point I started rubbing off the dead skin in the shower. There are several people who are trying other methods that involve keeping them moist while not adding trauma (rubbing/peeling the lips) is the key to healing this the fastest way. I am not saying my method will not work, but I am saying there may be a faster way. Which we are working on now.

      At any rate, if my lips get worse I can always go back to my original method, so far they are not progressively getting worse (which I would be able to tell). And I also wanted to note during the first couple months of my leave it alone experiment my EC spread like crazy over my whole bottom lip, something it had never done in the last 3 or so years before starting my treatment, and those areas were constantly being held in a moisture environment, however I was not rubbing those areas of my lips. I believe the dryness may have caused the nearby cells to start the programmed cell death cycle which is what caused it to spread rapidly.

      We will see what happens, but I am ONLY going to be using natural ways on my lips, and will never revert to a chemical product, because that is something I do not wish to do. But those are my thoughts on this. Just don’t rub the dead skin off and I believe keeping them moist could in fact heal them considerably faster. :)

      Let me know what you guys think.

    • Kal

      Check out my progress gallery, at one point, my EC was actually spreading to new areas with leave alone, you can see it in the pictures. I think it could have been stress since I was under a bit of stress at that time, but it could also have been the dryness on the lips causing that.

  • Kal

    The hardest part about EC is not being able to go out to dinner without (a) being really embarrassed that my lips will crack, break off or otherwise behave unpredictably just from chewing food… and (b) not being able to drink a glass of water without a straw for fear that it will ruin my top lip… I think I’ve rejected over 40 dinner invitations… this sucks.

    • Adele

      Go out for dinner, take a straw, and enjoy! ;0)

      • http://www.danielxmiller.com Daniel Miller

        I agree! Don’t lose your entire social life just because of this condition! Make sure the people know about what’s going on and it will be so much easier. :)

        • Kal

          I probably should, I’m the first person to say that people shouldn’t let EC control their lives… however, dinners are like the hardest thing… :-/ I’d rather go out to the movies or really anywhere that doesn’t involve eating and drinking in public.

          • http://www.danielxmiller.com Daniel Miller

            The saying, the more you do it–the easier it gets, is VERY true with our situation. Just do it, and keep doing it. :) You’ll be fine, I promise!

  • Tarik

    Good luck to all of u on ur nex experiments, I hope u recieve the results u are looking for. For me im gonna still continue with leaving the malone. I use water btw every now and then which i feel has been the main thing for my vast improvement. I think experimenting new ways to cure this is really good. But i still believe leave them alone with no chemicals or oils just plain water is the best way. These past 6 months have been sooo relieving ive seen more improvement in the first 3 months of doing this than in the 2 years of applying constant steroid creams vaseline and oils etc!

    Good luck pplllllllll

    • http://www.danielxmiller.com Daniel Miller

      I’m still with ya buddy! I’m not doing anything constantly, just twice a day and not major, so we will see what happens :) make sure you stick around cuz I wanna watch you get cured!

    • Kal

      I think water is not a bad way to go. Similar concept. I’m only applying Vitamin E oil twice a day too.

  • Deborah Aldridge

    Daniel, have you tried a parasite cleanse? If not, Humaworm has a great one that is easy to do. Also, take coconut oil internally. Start with a tablespoon a day and build up by teaspoons to 3 tablespoons a day. I have EC, not as bad as yours, and I find that when I stop taking my coconut oil, it gets worse. 

  • Debd1980

    hi every1, coconut oil is good 4 killing fungi and bacteria, do you think we have candida overgrowth and thats whats causing our lips 2 peel, was any1 on antibiotics b4 lips started 2 peel because i was, i never took antibiotics in my life until the begining of last year and i was perscribed a few different antibiotics over a few months and after that was when all the problems started

    • Adele

      Yep! Last time I got EC was after I was put on a heavy course of antibiotics for a month……

      • http://www.danielxmiller.com Daniel Miller

        No antibiotics for me….they must have caused your lips to dry out, which made you rub them and started the EC cycle….that’s the most logical thing I’ve come up with for people who were on medicine (like accutane)

      • Debd1980

        thats strange bcuz i was on antibiotics 2 and i had alot of stress at the time aswell, i have noticed if i drink alchol it makes it worse sometimes and fruit seems 2 make it worse thats y im also thinking fungi bcuz fruit has alot of sugar in it as does alchol

        • Adele

          Really really sounds fungal to me and my Dr said that is a major cause of EC, because I never rubbed or pulled skin off my lips and this still happened…..

          I really think give the tabs another go, brushing your tongue won’t be enough, def try the coconut oil but the caprylic acid in it isn’t that high an so will help but might not cure.

          I had the same as Daniel, the coconut oil irritated my lips so apply with caution,

          Good luck :)

          • Debd1980

            im not going to put the oil on my lips, instead im jus going to use it as a mouth wash i think, would you use it neat or add water, ive got sum frm tesco its virgin coconut oil quite expensive, its white in colour in a round tub :)
             

      • Debd1980

        i had thrush in mouth after them aswell and tried nystan for a week then tried antifungal tabs n stopped thm after a week cuz made me feel ill, i asked my dentist about it and he told me not 2 take anything and just 2 brush my tongue regulary

  • Debd1980

    i want to try coconut oil myself where would i get it from people, i live in england, would supermarkets do it or should i try health shop like holand and barret or somewhere else :)

    • Adele

      Tescos sell it with the olive oils! And the co op do with their health food range, you can get it in holland and barrats but it’s a bit more expensive there…..
      Yeah I def think it can sometimes be a fungal thing but if it is a cream/ oil will only help a certain amount, you need Fluconazole oral tablets for 2 weeks. Also don’t eat sugary products!!

      • Adele

        Ps, an easy way to know if you have a fungal oral problem is a white thick coated tongue which if you scrape your finger nail/ teeth against it you will see a ‘track’ where you just did that.
        Also a
        Burning sensation can be present. I’ve actually got a 2 week course of antifungals and if my lips don’t start to show some improvements soon then I’ll be taking them!

        • Debd1980

          trouble is i tried antifungal tablets last summer only took thm for 1 week and i felt really ill while i was taking thm so i stopped after 1 week,  ive got sum in the cupboard but frightened 2 take thm bcuz how they made me feel b4, some days my tounge does look white i brush it everyday, i have recently given up smoking 2, its 10 days 2day, i do crave sweet things alot of the time, im going 2 cut my sugar right dwn n watch what im eating and try this coconut oil i think, so tesco does it then, thanx 4 ur reply:)

          • Exfch2006

             yay!!! you quit smoking.. high five*  : )   Everytime someone says that I get so happy

          • Debd1980

            thankyou, it will b 2 weeks 2mora ive been cigarette free :)

          • http://www.danielxmiller.com Daniel Miller

            I’m so proud of you! :)

  • Tarik

    UPDATE!

    The sides of my bottom lip are nearly cured!! Its just the middle part of my bottom lip now that has a scab about less than half of my lip covered. Closer and closer to freeeddoommm!!! :D

    Top lip has cleared up fntastically just a little dryness and flakes but no scabs! should be 5-6 more months and this hell ive suffered for 2 years will all be over! Just in time for summer 2013 aswell :) )))

    • Tarik

      Also btw i think the reason Jaye is getting brilliant results with the coconut oil is because her scabs like mine are single-flat layered. If u have chunks of scabs piling up atm then im not sure the coconut oil or other oil products will worked best for you, but try it nevertheles and all of you keep my updated on ur progress!!
      Have an A2 Biology exam tommoz, cant believe ive survived with this in school and kept so relaxed and social for 5 months around people. I still remember my convo with daniel about how the first day is gonna be hell :L
      Thank you Daniel for everything, also how many of u like me are from England London??? :D  

      • Tarik

        college* lool

      • Debd1980

        i live in england, but not london

      • AnthonyME

        Are you leaving them alone, or using the coconut oil?

      • http://www.danielxmiller.com Daniel Miller

        You’re welcome, I’m so glad you are doing well :) see I told you you could make it through :)

    • Adele

      Really pleased for you Tarik!
      Was your top lip very affected when you started? I’m still getting quite thick dry skin on the top lip but seems to be getting less tender. And the bottom lip is getting a little thinner or the build up side of things……
      My skin detaches from the inside of the lip on my bottom lip, does this happen to you? I Don’t get a split down the middle of my bottom lip like some people do, so wondered if you trim the skin when it detaches? I do from the sides but was sure if it was a bad idea to do so with the inside?

      I’m about an hour from London, we’ve got a lot of snow here! :)

  • Chapped

    Awesome site, I’ve been using coconut oil as the ONLY thing that actually helps heal.  You are right, just leave them alone and let your body heal itself.  Everything else just prolongs the agony.  I got EC from a candida overgrowth that infected my sinuses.  The mucous would run down from my nose onto my lips.  I had antibiotic cream that I used for months, and afterwards, EC!  Fixing your diet and using coconut oil are the answer! 

    • Debd1980

      hi was just wondering r u cured now and how long did u suffer with it :)

    • http://www.danielxmiller.com Daniel Miller

      I’m glad it’s working for you :) Please let us know how you are doing!

  • Kal

    Going in for the biopsy today… crap… I hope it doesn’t scar my lips any worse.

    • http://www.danielxmiller.com Daniel Miller

      Most biopsies don’t appear to leave a scar. I believe you’ll be fine :)

  • AnthonyME

    What is the name of the coconut oil that you use

    • http://www.danielxmiller.com Daniel Miller

      It’s by Tropical Traditions

  • Exfch2006

    Hi Daniel. Does you bottom lip still burn?

    • http://www.danielxmiller.com Daniel Miller

      nope not anymore after stopping the coconut oil

  • Evan11

    Thank you man, the idea of just leaving it be just like a scab has shown great changes for me. My lips are almost back to normal. Everyday since i first saw your website, iv woke up to see even more healing! I have also used most every method at a pharmacy and failed. I never really thought about to stop peeling them and put down the chapstick and lip medex.. basically doing nothing at all. Only about 2 more weeks i suppose and they will be back to the smoothness they were 3 years ago. This experience has made me very humble, but i am now soo happy that its almost over. Thank you again my Friend :)

    • Exfch2006

       Really, wow. Do you think you will make a gallery?

    • http://www.danielxmiller.com Daniel Miller

      You’re welcome :) keep me posted on your progress!

    • Kal

      Yeah man if you can make a gallery it would really help. The more people we have with galleries the better we will know what works and what doesn’t. You don’t have to put your whole face, just your lips (look at mine to see how I did it). It’s pretty anonymous and it really helps the community of EC sufferers on this site. 

  • Exfch2006

    I think they look “weird” because your bottom lip is inflamed. If you decide to quit using the cream one day and your lip decides to do a 360 on you, then try to stay calm because I think your lip will rebuild itself with new tissue quickly given you put moisturizer on it for the duration until it reforms its structure. After that, if I were you, and this is just a hypothetical situation, I’d slowly back off the moisturizer and wear spf. I hope you are not exposing your lip directly to sun right now for the fear that the integrity may not be strong nough to protect your lip from future cancer (actinic cheilitis). Just my  $0.02

    • Exfch2006

      This image is in where I posted a gallery. It is after about 4 1/2 months of leave it alone treatment without anything on my lips AT ALL. No moisturizer, no nadda, exercising and eating healthy. I was taking 2 capsules of a supplement named MagO7 for 3-4 day at this point. MagO7 is a colon cleanse which is just very high in magnesium. Has anyone else experienced their lips getting better after a colon cleanse?

      • Exfch2006

        This was after about 4 1/2 months of leave it alone treatment without anything
        on my lips AT ALL. No moisturizer, no nadda, exercising and eating
        healthy. I was taking 2 capsules of a supplement named MagO7 for 3-4 day
        at this point. MagO7 is a colon cleanse which is just very high in
        magnesium. Has anyone else experienced their lips getting better after a colon cleanse?

        • Kal

          Not bad! I would go out on the town all the time with just that :-)

        • http://www.danielxmiller.com Daniel Miller

          They are looking great!!! :) you look almost healed in this picture! And I’ve never had a colon cleanse, and thank you for the advise as well :)

          • Kal

            I’m probably going to try it too, I’ve been having a lot of digestion problems that started at about the same time that my EC started, including an appendectomy I had in July :-/

        • Debd1980

          ive also heard this too, im going 2 look in2 having it done, and colonic irrigation if thats how u spell it lol sorry, its all about the inside and digestive system and that starts with your mouth, your mouth is part of digestive system :)

    • Exfch2006

      SOMETHING USFUL… Just a friendly notice..since coconut oil/coconut cream has antimicrobial and antifungal properties, call a doctor and leave a message with the nurse that you think you have candida on-your-lip and you have already started to put VIRGIN COCONUT OIL on your lips and want to know for how long continued use should you keep it on your lips so you can avoid creating an environment where resistant strains to the coconut oil grow out of control. If you use it for only a few days..you might be screwed worse than you are now with a bran new infection..if you use it too long..i dunno.. call the doc and ask then come back here and let us know : ) 

  • Kal

    Alright, got the biopsy, not painful at all. Uploading pics to progress gallery.

    • http://www.danielxmiller.com Daniel Miller

      biopsy doesn’t look too bad at all!

      • Kal

        I think it’s good to get it done when your lips are due to fall off anyway like mine were because they will most likely have to remove the scab/callus layer.

        • Adele

          Do you lips feeling tender/raw when you have your scabs removed or when they come off on their own accord?

          • Kal

            Usually some part of them does feel raw. The last time the doctor did it they got a little raw, but the doctor wanted to apply steroid directly to the skin below the scabs to see if it would stop it.

            This time, honestly they don’t feel raw at all, though they feel off in the usual way that lips with EC feel off. A little sticky. It may be from the antibiotic. But honestly I feel no pain or rawness, not even in the biopsy area. I’m not even swollen.

  • http://www.danielxmiller.com Daniel Miller

    Video from yesterday, my lips peeled, let me know what you guys think! http://www.youtube.com/watch?v=NctMIPQYwwM

    • Exfch2006

       They are not sensitive..but are they numb? If they are numb you probably have fluid build up under the skin which is putting pressure on your nerves, thereby the numb feeling.

      • Exfch2006

        that is not an educated guess by the way..just my sense of reasoning, so I could likely be very wrong.

        • Exfch2006

           and : ) … i think you are moving in a very good direction because what I see is you began using coconut oil which triggered and immune response further inflaming and tissue replacement followed by crusts that slowly will reveal new skin from switching to the coconut cream that calmed the situation. I see swelling that is on it way to calming down but not quite there yet and my prediction is you will continue to use the cream for 2 weeks as frequently as what you are now, then you will probably be able to back off a little as time goes by but I think you will remain using moisture for as long as scientist are not given the grant money to find out what is causing the keratin conversion problem. Did the chicken come first or did the egg. Is there something causing our lips to become inflamed and causing the keratin conversion malfunction or is the keratin conversion malfunction genetic or secondary to another issue that is causing the inflammation. Or my guess seemingly makes sense but is actually out in left field. Who knows.

  • Exfch2006

    Daniel.. I think it is a very good idea to put a disclaimer on your website for those who try to follow the coconut oil procedure but need to understand if they stop within a few days they will have created an infection which did not exist on their lips in the first place because coconut oil is similar to an antibiotic and used the wrong way will select breeding for resistant strains.  

    • http://www.danielxmiller.com Daniel Miller

      Where did you get that information from? Coconut oil is considered a very safe food…

      • Adele

        I was wondering the same thing….
        Jaye actually put a link up a while ago where a Dr recommends coconut oil/Shea butter or Pure lanolin for use on dry lips ….

        • Exfch2006

           coconut oil has ANTI-bacterial and ANTI-fungi properties…. “ANTI” is latin greek root for “against” .. that does not mean kill… it only means “against.” What this means is an antibacterial or anti-fungi is either taking away the food the microb needs to eat in order to live and reproduce or it is blocking a reproducing mechanism of the microb. If microbs have no food they no live..if they cannot replicate…they cannot pass on their genes to their “young” to carry on after they die. So in that case they slowlyyy die off. However. If you use a substance that is a antibacteria or antifungi to slowly get rid of an infection but end up using the substance differently (for a shorter period of time) then what happens is once the bacteria or fungi has eventually died off from the substance prohibiting their food source or reproduction cycle…what is left..and what you have created at that point in time is a population of bacteria or fungi that is still alive because they were born with something special which protected them from the substance that was suppose to rob their food or keep them from reproducing… now these bad boys find all the normal microbs and pass on that “something special” so they can encode it in their genes and reproduce like bunnies….bunnies that have multiplied exponentially (2 to the second power is 4 to the second power is is 16… and so on) every single hour until what the host (you) are left with is one bad ass infection that will not care if coconut oil (anti-bacterial substance) is around or not because their “something special” protects them from the treatment.

          It’d be like putting 20 bunnies in a room, spraying each with antibunny, then stopping the treatment in the middle of the experiment where there would be only 10 bunnies left alive, 3 of which have the “something special” (just like there are some humans who NEVER GET SICK because they have “something special”) and then those 3 bunnies fornicating with the last 7 who appear to be sickly but who are strong enough to have babbies who turn out to be resistant to “antibunny” spray and end up breeding with eachother and creating a new population that will not be affected when sprayed with anti bunny. Moral of the story..the longer you treat…the more you kill.. the less chance a resistant strain of bacteria has to create its own population.

          • Exfch2006

             JUST TO MAKE THIS CLEAR I AM ONLY TALKING ABOUT PURE VIRGIN COCONUT OIL AND TO CHECK WITH YOUR DOCTOR FOR HOW LONG ONE SHOULD USE IT… LENGTH OF TIME…LENGTH OF TIME..LENGTH OF TIME ….I AM NOT SAYING IT IS BAD..I AM SAYING TO FIND OUT HOW LONG YOU SHOULD USE IT FOR

          • Debd1980

            i was using daktarin oral gel on my lips for a week and it was great, my lips were the best they ad been since it started then after a week i just started using it once a day instead ov 3 times a day and the peeling came back i also think my lips got resistant 2 the daktarin, my doctor as given me sum fluconazole capsules now 2 weeks worth, ive bin taking thm 5 days now and cant c any improvement yet i av still bin putting the daktarin on now and then 4 a bit ov lubricant, my doctor sed it sounds like fungal bcuz the daktarin worked for a week. i dont kno wot 2 do my doc gave me hydrocortisone ointment b4 all this n that made thm worse, i also think this is fungal jus need something 2 work

      • Exfch2006

        I took intro to biology, biology one w/lab, biology two w/lab, human anatomy and physiology 1 and two w/labs , Nutrition, and one semester of microbiology w/lab. I probably have more than 3,000 hours or more worth of reading front to back college text because i loved these subjects and felt responsible for covering the basics to the best of my ability so I would not ever have to worry about looking foolish when it came time to apply my knowledge to a profession. I also took a lot of other science courses which mention the subject of bacteria and fungi becoming resistant to treatment. Just cope and paste what I said into google and it will probably give some helpful answers. It is a subject worth educating yourself on since you are a great influence here on your website.

  • http://www.danielxmiller.com Daniel Miller

    Make sure you check out my new pictures on the “reading more” for this week! Or just click here! Let me know what you guys think! http://danielcmiller.com/?page_id=3373

    • Adele

      Hi Daniel,

      Hope alls going well.

      I’m not knocking what your doing, I think we all gotta do what we gotta do ;0) but do you think it’s going to be any different to what you said was happening before you started your leave alone? I have everything crossed for you and I’m certainly not here to tell people they’re doing the wrong thing (there already seems to be far to much of that on other sites for EC) just wondered if you actually feel like this could cure OR just manage?
      I would love to find a cream that could hide the symptoms of EC but all creams for me just seem to take off the skin and leave raw lips :(

      So glad your finding something that helps…
      X

      • http://www.danielxmiller.com Daniel Miller

        I originally attributed getting EC from chapsticks, however I now believe I was wrong in that regard, as I didn’t truly get EC until I had visited the dentist and started flossing with manual floss everyday where I would stretch my lips considerably to get to my back teeth…this is really when my lips started getting dry. I used chapstick before this and never got EC…so I really don’t think it was the actual cause, however it could have helped. I believe not causing trauma is the main key to healing this condition, and the easiest way to do that is by keeping the wound in a constant moist environment. Several people are having great progress and some ever have eliminated the skin from building up and are just working on getting the inflammation down at this point. It is true that scabs take longer for things to heal than if you were to keep it constantly moist (as in the inside of the mouth wounds compared to wounds on the skin–the mouth heals much faster).

        Once I can get the lips to quit building up skin then I can ease off of the product slowly and this should heal my EC a lot faster than letting the scabs build up and fall off on their own as that action alone causes a lot of trauma that I may not be aware of even.

        • Adele

          Makes sense, I hope you make good progress!

          How many times a day do you apply product?

          The only confusion I had is that you had your lips in moisture for years and you said it didn’t work?

          • http://www.danielxmiller.com Daniel Miller

            Because I was constantly peeling and rubbing my lips so the new skin wouldn’t show. Now I am letting the skin grow as it wants an just keeping it in a moist environment. So I won’t be causing constant trauma anymore.

  • Adele

    Has anyone tried Glycerin on their lips?

  • Tarik

    Daniel bro i think you should stop the coconut cream/oil..it looks like its making it worse tbh, theyve gone soo red and it looks painful. I have a feeling the scabs are gonna build up like in ur older photos back in month 4 etc. Water is the safest product to use, no chemicals no add stuff just pure naturelle

    • http://www.danielxmiller.com Daniel Miller

      I’m not using chemicals, this is an all natural and organic product and is very safe on the skin…but please read my response to Adele down below for my reasoning of switching to this method and let me know what you think.

      • Guest

        i agree with what you’re doing but just because coconut butter is organic does not mean it’s the best emoliant for you… my lips react to coconut products in a pretty bad way… i got redness and more buildup… if you go off the coconut products shop around until you find the best moisturizer for you.

        • http://www.danielxmiller.com Daniel Miller

          My lips feel wonderful with the cream that I am currently using :) and the redness has gone down a lot since starting, I think the main issue was the oil…but I’m just taking it one step at a time :)

  • Exfch2006

    Who here is a nerd? I’ve got fun stuff for you to look through.  http://www.ncbi.nlm.nih.gov/books/NBK6247/ and then http://www.interfil.org/diseasesTypeInII.php#2  Enjoy.

  • Exfch2006

    Daniel, Adele, does what I wrote in response to your question help you understand why a person should ask their doctor for how long a period a person should use virgin coconut oil on their lips as a topical as an important question to ask in order to avoid potential infection that might become resistant to the coconut oil?

    • http://www.danielxmiller.com Daniel Miller

      Yes that makes sense :)

  • Guest

    damn they’re looking good this week daniel… the best yet, i take it back about the coconut cream… looks like you’re on your way!

    • http://www.danielxmiller.com Daniel Miller

      haha, thanks :D Can’t wait to see what the next couple months bring!

  • harry

    great progress…ur lips are looking osum man….hats off to your determination……:)

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much Harry! :) That means a lot!

  • Tarik

    ughhh i dunno what to do. whenever i exercise the white stuff just builds up under my moustache and below my lip. Do you think i should stop exercising coz im not sure if it will ruin my progress?

    • http://www.danielxmiller.com Daniel Miller

      Keep exercising! I used to get this buildup a lot once I started leaving my lips alone, a lot in the beginning when I didn’t use water, however since I started my trial 3 weeks ago with the coconut cream, the buildup has literally halted, and I don’t get it very much at all anymore.

      • Debd1980

        hi daniel, what coconut cream r u using is it a lip balm or body cream, glad u r getting some improvement with your lips :)

  • Tarik

    how many of you on here cut the ends that seperate from your lip btw? and also its okay just to lightly touch ur lip from time to time right coz it makes me feel more comfortable. I wash my hands alot so i wont be passing any bacteria lol and anyway the scab protects the lip from bacteria 

    • http://www.danielxmiller.com Daniel Miller

      I touch my lips all of the time, lol…and I don’t wash my hands very often, most of the soaps have bad chemicals in them … lol

  • Em

    http://voices.yahoo.com/clown-lips-cure-candida-lips-exfoliativa-cheilitis-4208219.html
    This is interesting, think it might be worth trying. I suffered for years as a teenager, it stopped for years and this week came back :( . So i did the candid test, a water test you can do at home using salvia and it it showed that i have it. I have added the link above as it makes a lot of sense about killing the bacteria. Lets hope this works!

    • Debd1980

      do you mean hand wash and when you rinse it off your lips do you dry them first b4 applying vaseline

    • Random_Miyato

       So how’s it working, man? I will totally try it myself if I get a decent review from you.

  • Tarik

    Just watched an amazing movie, and advise EVERYONE ON THIS SITE who hasnt seen it already to watch it called: BEASTLY. with Vanessa Hudgens

    Always remember there is someone out there with a worse problem than you and that everyone has their faults and insecurities, be thankful you are not someone out there with a life-threatening disease or autistic condition that will be with you till your death bed..

    No matter what, hold your heads up high people and give thanks to God :D

    • Kal

      Yo Tarik, when are you going to make a progress gallery? :-)

  • BRguy

    Guys, finally, FINALLY i am cured !!!!! for real !! first of all, sorry if i write something wrong cuz im Brazilian and i dont speak english 100%.
    Sooo, i posted here already talking about Protopic, which was helping me a lot with my EC, i’ve suffered from EC for three years and tried several lip creams and remedies. In december (2012) i went to the dermatologist, he prescribed me Protopic and told me to use it for 3 months. At first I thought it was getting worse, but after 2 weeks it started healing. After 2 months,the redness was gone, both upper and bottom lips, but after 2 more weeks I thought to myself, ”shit, this is not getting better, it looks the same for the last 2 weeks”, so monday (2/4/13), i decided to stop using protopic and leave my lips alone, and for my surprise the normal skin started to grow and my lips started to look normal, no more scabs, no more redness and all that shit, NORMAL!! I am so happy =D, cant belive im finally free.

    So i recomend u guys to try protopic, use it untill the redness is gone and then leave ur lips alone, so the normal skin can grow back, it wont take more than a week for the normal skin to grow, it took me 4 days only. It burns a little bit, but its worth it !! =D

    Good luck Daniel.

    Tchau.

    • Kal

      How long have you been cured? Remember it’s hard to really tell if a cure for EC is working until you’ve been symptom free for like 3-6 weeks.

      • Exfch2006

         oh yeah, you make a good point about that.

  • U2eazy07

    Whats the point of doing these courses. Do you get a degree or certificate, or is it just something to learn from?

    • Kal

      You get to (a) fill your time while you heal (a lot of people with EC don’t go out, and don’t even want to go to college for fear of being seen with EC), (b) learn something from great schools like MIT and Stanford, (c) get a certificate (though they are not accredited yet).

      But really college level education itself has inherent value. The fact that it’s free doesn’t diminish that value.

      In fact for someone with serious EC who is of college age, an accredited online degree might not be a bad way to go.

      • Polarlips

        Thank you Kal for providing these materials! I would do it whenever I feel down to distract me from ec.

        • Kal

          No worries, I’m always looking for ways to help my fellow ECers. ;-)

      • U2eazy07

        wow you get a certificate? Thats pretty neat. I think ill give it a try. 

        • Kal

          They are not accredited yet, but you could put it on your resume. Say you are an engineer, you could add 3-4 classes on engineering from coursera to your resume. Coursera is trying to get accreditation for their courses however, so eventually you might be able to patch together a major or minor degree from the courses.

  • the ascendant

    hey, your lips are looking great Daniel. I started applying natural products to my lips aswell (a cream with beeswax, shea butter, coconut oil, vitamin e etc..) two weeks ago and its not helping at all :( . Same build up… the scabs are just soft now but get off when i carefully apply the cream :( .

  • Emily

    Hey first off I would like to thank you so much for this site, its helped me tremendously. Second, when are you going to post a new update?? I just started the coconut oil cream and my lips are improving greatly, so I’d love to see yours now! 

    • http://www.danielxmiller.com Daniel Miller

      I just updated it two days ago and posted a video. If you are using a phone for this site please use a desktop computer or switch to desktop mode to see the latest. I sometimes forget to update the mobile version :)

  • Kal

    Daniel, my God, your lips look incredible.

    • http://www.danielxmiller.com Daniel Miller

      Thank you :) I really believe we have finally found the Answer :)

      • Kal

        I’m so happy for you, this is really great :-)

  • Gthreat

    Daniel, the link to the cream you’re using has a ton of products on it. Which one are you using? Are you applying it to the lips directly

    • http://www.danielxmiller.com Daniel Miller

      I’m using the unscented kinds…I recommend the lotion though because it goes on much easier.

      • Gthreat

         Thanks for the reply. I’ll try it, the images are inspiring.

  • Exfch2006

    Hello Daniel. Your lips are looking very nice. Would you mind telling us how many times per day you apply the cream, and is it to the entire lip, and what do the lips look like when you wake up in the mornings?

    • Emily

      I was also wondering this exact same thing. I’ve been applying multiple times a day but I’m worried I’ll get a dependence on the oil like I used to be addicted to chap stick! I’m still in high school so I feel the need to apply it more so my lips don’t look so awful. Are you also using the oil?

      • http://www.danielxmiller.com Daniel Miller

        Hey guys, sorry it took so long to respond :) I just apply it as often as I feel dryness coming on…that could be  once every 30 minutes while working (I talk on the phone at my job) and every hour or two while not doing anything at home…and I don’t know if you will get addicted to it or not, the main purpose is to get the inflammation down and help the body stop sending healing signals to the lips, which will cause the buildup to stop. Once your lips quit building up skin you can start to ease yourself off of the lotion.

  • Tarik

    Hmmm it seems doing my insanity workout for the last 2 weeks had made the scab on my bottom lip smaller and thinner! Hopefully this progress will keep continuing

    • http://www.danielxmiller.com Daniel Miller

      that’s great news!!! Keep us posted :)

  • mike pylon

    Awesome! i’m gonna hit up some of that coconut lotion… the antifungal and antibacterial properties of it are probably helping your lips heal faster on top of the moisture.

    • http://www.danielxmiller.com Daniel Miller

      my lips def seem to like it!

  • Tarik

    whats happened with jaye? has she cured!?!

    • http://www.danielxmiller.com Daniel Miller

      She took some time off, she actually just updated on the facebook group. I’m sure she’ll post an update on here soon :) but still chugging along lol

    • George

       She’s dead

  • coolbeans

    youre very good looking ;)

    • http://www.danielxmiller.com Daniel Miller

      Awee well thank you :) that is very sweet of you, haha.

  • Emily

    why did you decide to start using aquaphor as well? also, on a scale of 1-10 how bad would you rate kissing with peeling lips? mine look about how yours do now this is the worst they got before i started using coconut oil, thanks and yours are looking great!:)

    • George

       Because he don’t know where he is going, so he talk about it like it’s miracle, the same when he talk about “leave alone method”, he don’t know where he is going.

    • http://www.danielxmiller.com Daniel Miller

      I wanted to experiment with a couple things, and I used it years ago for a couple years and it lasts a really long time on the lips. So I basically wanted something that I wouldn’t have to constantly put on my lips, however I am using it in combination with the lotion as well, which seems to be helping a lot :)

  • George

    Hey Daniel, you’re a faggot :)

    • Kal

      idiot.

    • Exfch2006

      u should make a better point than the lowest provocation you can sum up. lazy and angry 

      • Exfch2006

         ooor  you could have some dove chocolate with them nice uplifting messages inside to perk up your hormones

    • http://www.danielxmiller.com Daniel Miller

      If I was worried about your opinion, I wouldn’t have let the world know. Keep on hating :)

  • Kal

    Went to a bachelor party last night. First time I’ve gone out drinking in a while. It was pretty fun.

    • http://www.danielxmiller.com Daniel Miller

      I’ve been going out as well, enjoying life! It feels great :)

  • Kal

    Yeah, but look, he’s documented everything he’s done. He’s got a huge trail of pictures. He’s also made this site so that other people can post their pictures and methods (the discussion forums here are much better than curezone). So rather than get angry that he hasn’t always gotten it 100% right, you should appreciate that at least someone is willing to put themselves out there and show you the process they took. A lot of people claim they’ve been cured without showing any proof. If you read his posts Daniel only says “I’ve found a method that shows improvement” and he shows you the improvement. Also if you talk to him he will tell you he hasn’t been cured, that he’s just trying out things that appear to show progress and documenting it. I think calling it a “cure” was just his way of trying to be positive, and when he started the site he probably thought just doing “leave alone” would work. Give him a break. It’s not like the doctors can do any better.

    • George

       He’s a faggot !
      When you don’t know, you don’t make ! That’s it.
      It’s not a help to advice something you are not sure.

      • Kal

        Alright moron, here’s some real sh!t, he’s pretty God d@amn close to a cure. So just f*cking lay off alright. PS I hate you more than him.

      • http://www.danielxmiller.com Daniel Miller

        The leave it alone method has been proved by a couple people, however it takes years. I still believe I would get healed eventually with that method, however we are finding FASTER ways to heal this, which is why I switched my method. But thanks for bringing sex into the mix…because that’s totally related.

  • George

    And REST IN PEACE Jay, it’s so sad she’s commit suicid :(

    • Anthonytk09

      IS this forreal?

      • George

        it’s sad but yes..

        • Polarlips

          How do you know about it, I wonder. Do you personally know Jay?

          • Exfch2006

             George is an angry individual who feels no remorse when referring to Daniel as a faggot or claiming that Jaye committed suicide. He will come out of soon enough. Let’s just consider him asleep for now.

          • George

             Jay had really comitted suicide ! It’s not a lie, that’s why i’m angry against Daniel, everybody here listen to him like he’s the “ANSWER” but he doesn’t know where he’s going, and he make people sicker than they are. That’s why Jaye is dead today, i’m one of her closet friend, you’re idiot !!!!!!!

            I cry a lot, everyday, my bestfriend Jaye…

          • Kal

            Dude, you are crazy. I don’t know what Jaye is doing, but if she had committed suicide it wouldn’t be Daniel’s fault, it would be the exfoliative cheilitis. Also, she’s made the most progress of anyone, so it wouldn’t make sense for her to commit suicide now. Also, can you stop being an ass for one second? Why don’t you go troll youtube for a while.

          • http://www.danielxmiller.com Daniel Miller

            This dude has been harassing me for several weeks ever since he found out I was gay. No Jaye didn’t commit suicide, and she is doing well. This guy is an idiot and I will be banning him from my site when I get home. He has no life, clearly.

          • Anthonytk09

            First time hearing bout that too. But that is no reason to spam and freak out about. & Classifying someone as dead for no reason is just as ridiculous.

          • Twopolarbears

            Let’s wait for Jaye to update then everything will be clear.

          • http://www.danielxmiller.com Daniel Miller

            If he knew her personally, don’t you think he could at least spell her name correctly? He’s delusional. Jaye just posted an update in the Facebook group only a few days ago.

          • Exfch2006

            I really hope when you chill out you come to your right senses. The fact that you are so angry and have this condition probably means you might be able to solve it with a really healthy diet. Not eating the right stuff will throw your body out of wack and makes some people experience abnormal levels of stress and anxiety and depression. Get your diet in check George. The best people to see are dieticians for this issue. You;d be amazed.

  • Twopolarbears

    Daniel, did you ever have some light yellow liquid coming out from the scab when you leave them alone? How did you deal with that? Now it is strange that I’m having that thing and I don’t know what to do but I don’t want to apply anything on it yet. 

    • Exfch2006

      I am not Daniel, and that is infection. Don’t worry you’ll get rid of it in no time. See a doctor for it if you can.

      • Twopolarbears

        As it takes some time before I can see a dermatologist. So do you suggest that I should not do anything about that area for the time being?

        • Exfch2006

           I would trim back any extra skin and clean it out with dawn soap dish detergent and then moisturize in between with a small amount of vaseline. Honestly you need to get that infection out so that is what I’d do.

          • Osmuzd

             hi, i wouldn,t use detergent!! use tea tree oil for infections..will clear it quite soon..will sting a bit..you can mix it with honey…xxx

          • Exfch2006

             why not use dawn soap to clean out a wound?

    • http://www.danielxmiller.com Daniel Miller

      Yes I had the liquid, it doesn’t appear to be anything more than what the body produces when it makes a scab. Pictures/videos about when I had this: http://danielcmiller.com/?page_id=2161 I personally don’t believe you have anything to worry about if it’s the same thing, as nothing happened to me. :)

  • Osmuzd

    TRY EARTHCLINIC.COM , UNDER AILMENTS, LIPS…
    COCONUT OIL, INGEST WITH WARM WATER….MANUKA HONEY..AS LIP BALM…GREAT!!

    • Exfch2006

       awesome, thank you. I just finished making my own lip balm because of this.

  • Kal

    Daniel, the forums are down. “Internal Server Error - The server encountered an internal error or misconfiguration and was unable to complete your request.”

    • http://www.danielxmiller.com Daniel Miller

      Dang. I’ll check it out when I get home. Godaddy probably just messing things up, haha. It’ll probably fix itself, but thank you :)

  • Exfch2006

    I just had a common sense thought some of you might appreciate hearing. When I get stressed or have anxiety my mouth becomes completely dry. So what if that is how we got it. Chronic stress and dry mouth? and then the stress from having it, then putting vaseline or derived product…mineral oil derived products on lips in attempt to stop it..which I guess is unhealthy for our lips. I think many things contributed to this as do most of you. Maybe even drinking beer on a regular basis had its way with my lips too. That was then. I am very healthy now and I just made a home made lip balm from …. bees wax, coconut oil, shea butter, cocoa butter, almond oil…olive oil…vit e capsule… so if i hydrate with good stuff and keep my mouth moist, then maybe the skin will heal for good over a few months of consistency and healthy diet with plenty of water. Maybe even some oral gel on the inside of lips between jaw for night time might help. What do you guys think?

    • http://www.danielxmiller.com Daniel Miller

      I think that’s a great idea! It appears there are so many different ways people have gotten this that anything seems possible. I think the lip balm you made sounds great though :)

      • Exfch2006

         thanks. looks like your top lip is healing faster

        • http://www.danielxmiller.com Daniel Miller

          yeah it def is, like the sides don’t seem to even build up anymore!

  • Alexandria

    I just stumbled upon your website today and I just wanted to say that I am sooo Proud of you and what you are doing although i don’t have  Exfoliative Cheilitis or know anyone with this condition. I just wanted to say that I am Totally Happy for you and that I am also confident that your lips will get fantastically better

    • Kidchameleonv

      But daniel kille Jaye !! She comitted suicide because of him DANIEL YOU ARE A GAY FAGGOT

    • http://www.danielxmiller.com Daniel Miller

      Thank you so much :) that means a lot to me…I made this site so everyone could come together and we could all finally find a cure as a team :) and it looks like we are nearly there!

      Thanks again!

  • Kidchsm

    Hey daniel you are a faggot ! You are GAY :)

    • Kal

      Why do you care so much George?

  • Kidchsm

    Hey daniel i dońt like your face you are ugly :)

    • http://www.danielxmiller.com Daniel Miller

      Lol you may not realize this, but you are just making me money by visiting my site all of the time. So hate all you want, I’ll take it to the bank. :) oh and I just talked to Jaye last night. She’s doing wonderful. :)

      • Amandajane

        Wow you are gorgeous! Your eyes are beautiful and your lips so pouty, I think you are handsome even when you are going through the lip peeling problem. Sening you lots of well wishes! Amanda.

  • http://www.danielxmiller.com Daniel Miller

    I’m almost at a year guys, ahhh feels like forever lol…

    • Kal

      You’re a tank. Thanks for not giving up. It’s really nice to have someone post their progress like you have. Good luck!

  • Rawan

    Hi Daniel, i wanna congratulate you your really strong ! am having this problem as well :(  
    and i wanna ask you what exactly the cure to it ? should i just leave them alone till they peel off by themselves? 
    am really frustrated :( :(
     

    • Ash

      hey dude
      good job for not giving up. …im currently in high school and for me personally, im finding it pretty hard doing this as im always around my friend and school mates and I can tell that they’re looking at my lip through their eye but luckily some of them understand the problem. Anyway, hope you heal and feel better.

  • Kal

    The problem with this condition is:

    For a long time, there will be little progress, solutions will not come easily, and at times you will feel hopeless.

    The solution is:

    To find meaning in life. Life is about much more than our appearance. We are more than a disease. We are a mind, a body, an intellect. We are the love of our friends and family. We are the people we care about. We are what we achieve, what we make, what we build and what we leave behind. We are a hope that some day, the darkness will fade, and things will be better than they are today. We are unbeatable and unbreakable. If you knock us to the ground, we will rise, again and again. We will never give up. We will find the way. We will live this life. And the darkness will learn to fear us. It will never take hold of us. We will win, however long it takes.

    Stay strong everybody. Your strength gives me strength.

    • Twopolarbears

      Thanks so much Kal for sharing this. I am so touched after r